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Okay I have had low ferritin for years, but haven't done much, resisted iron due to side effects. Last nov/dec 07 I got some answers from reading about my hypothyroidism/Hashi's ( hx=15 yrs) and how it can cause low ferritin, etc. I learned that I don't convert T4 to T3 and switched from synthetic T4 to Armour. I also found out I have adrenal fatigue. I learned that having a thyroid problem means I may have some vitamin/mineral deficiencies. I started taking Adrenal Support, B's vitamins, magnesium, zinc, Wilsons Adrenal Stress Formula, Vit C, sea salt, floradix, sublingual ferrous sulfate (may stop- it is staining teeth), Iodoral, hydrocortisone, Vit D, fish oil. I feel SOOOO much better, except:

significant hair loss and continued poor tolerance to exercise. I had labs done a couple of months ago and ferritin did not budge. I am thinking it is due to poor absorption. This is why we got a RX for sublingual iron-but now I think it is staining my teeth. I am thinking of adding Betaine to help with absorption. Sound right?

Any input? Oh and I take C with my floradix. I may switch to Proferrin ES although that made me bloat- could that mean poor absorption? Would taking Betaine help. I am desperate to get my levels up. I hope to get in next week to draw labs. How many days to I stop the iron to get accurate test? 3 days? Any other labs that would be helpful? I think I have a lot covered with the supplements. I use to only take levoxyl, now I take lots and feel so much better. This ferritin has me stumped though. I would love to STOP losing hair, it is scary.

Thanks!!
Jlt,

thank you for your post. No one has raised any questions about the nausea - they just treat it without really being sure of its cause. I guess it's easier that way. I have some other unresolved issues. There always seem to be several good possibilities, making it either difficult, impractical or too costly to attempt to pin down the exact cause. Perhaps the tests I will be having in the near future will help get to the bottom of this. It would be nice.
I hope that eating more red meat will help you build your iron levels up. I also hope that your hormones check out OK. Mine probably wouldn't, as I take a female-hormone altering diuretic that also helps prevent the loss of too much potassium. However, it is also associated with an increased risk of bleeding from the stomach and duodendum. Of course, this fact is not stated in the abreviated and (in my opinion) rather selective list of side effects on the pharmacy printout. It also causes tumors (as shown in lab testing - also not listed), and its long-term effects on people are not known, because they have not been studied. For this and other reasons, I think that at least some of my issues could be med-related. I just hope that this drug is doing me more good than harm. :eek:

flowergirl
prokureur - The reason my doctor is doing everything for me is that he works in a University and he deals with small groups of "problem patients". By 'problem', i mean people who are doing all the right things, yet are having problems raising their ferretin and have a diagnosed thyroid condition. It also helps that this doctor is a Hashi's sufferer himself and relates to all we are going through. I'd say it's more like my guardian angels were looking after me as i did a heap of research on here, then as a last resort found a Trichologist for my hair loss (i had given up on all other doctors) and he diagnosed my Hashi's, helped lift my ferretin and he is the one who knows my current doctor and referred me on. It was more like an unplanned chain of events.

I agree with FLFLOWERGIRL, gluten intolerance and low B12 are often causes of low iron as well as all the other things eg: internal bleeding, heavy periods, vegetarian diet etc. My current doctor wants my ferretin over 100 and even up to 125. A higher ferretin is very beneficial for the thyroid too. I guess if you have had one of those biopsies (or whatever they do) to diagnose gluten intolerance or Celiacs and it's come back that you dont have that then that rules that out. It's probably good to get the biopsy done as blood tests can give false positives and false negatives. You should get your B12 checked too.

In my case, i'm not sure how much of my slow rising ferretin is due to gluten and how much to not being able to digest protein. I've been reading up on malabsorption issues and it's amazing how the inability to digest certain things can cause quite a lot of different side effects ef: edema (swelling anywhere in the body), dry skin, hair loss, anemia, easy bruising, dehydration, fatigue, vision problems. Taking those symptoms into account, who knows just how many things could be/were affecting my hair shedding.

At the end of the day, no matter what your doctor is or isn't doing, you need to do as much research, learn as much as you can and make lists, find out who can do more tests and then start ruling things out. I guess it doesn't help when doctors say your tests came back 'normal' just because the test results are 'within range'. That's why boards like this are great as there are a number of people around who really know their stuff and can help with test results.





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