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prokureur - The reason my doctor is doing everything for me is that he works in a University and he deals with small groups of "problem patients". By 'problem', i mean people who are doing all the right things, yet are having problems raising their ferretin and have a diagnosed thyroid condition. It also helps that this doctor is a Hashi's sufferer himself and relates to all we are going through. I'd say it's more like my guardian angels were looking after me as i did a heap of research on here, then as a last resort found a Trichologist for my hair loss (i had given up on all other doctors) and he diagnosed my Hashi's, helped lift my ferretin and he is the one who knows my current doctor and referred me on. It was more like an unplanned chain of events.

I agree with FLFLOWERGIRL, gluten intolerance and low B12 are often causes of low iron as well as all the other things eg: internal bleeding, heavy periods, vegetarian diet etc. My current doctor wants my ferretin over 100 and even up to 125. A higher ferretin is very beneficial for the thyroid too. I guess if you have had one of those biopsies (or whatever they do) to diagnose gluten intolerance or Celiacs and it's come back that you dont have that then that rules that out. It's probably good to get the biopsy done as blood tests can give false positives and false negatives. You should get your B12 checked too.

In my case, i'm not sure how much of my slow rising ferretin is due to gluten and how much to not being able to digest protein. I've been reading up on malabsorption issues and it's amazing how the inability to digest certain things can cause quite a lot of different side effects ef: edema (swelling anywhere in the body), dry skin, hair loss, anemia, easy bruising, dehydration, fatigue, vision problems. Taking those symptoms into account, who knows just how many things could be/were affecting my hair shedding.

At the end of the day, no matter what your doctor is or isn't doing, you need to do as much research, learn as much as you can and make lists, find out who can do more tests and then start ruling things out. I guess it doesn't help when doctors say your tests came back 'normal' just because the test results are 'within range'. That's why boards like this are great as there are a number of people around who really know their stuff and can help with test results.





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