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jlt18 - i'm in the same boat as you. Suffered with extremely low iron and took 2 years to raise it and that was when i found out that i had Hashi's.

A lot of thyroid sufferers have low iron problems. It is also very common for thyroid sufferers to have very low Vitamin D. Your doctor should check that also. Both iron and vitamin D malabsorbtion can be cause by gluten intolerance. Has anybody checked whether you are gluten intolerant? It's a simple blood test. Once again, us thyroid sufferers often have varying degrees of gluten intolerance.

With the vitamin D, when i was told to take it i began taking the basic 1000IU measurement (one gel capsule) as per instructions on the container. Next blood test i hadn't moved much and then my doctor issued me with some vitamin D drops which i drop 7 drops (4500IU) of onto my tongue each night after dinner. My vitamin D has moved up a little bit faster after taking a higher dosage. My doctor said taking vit D at night after dinner is more beneficial as its more likely i would have eaten meat and the vit D absorbs better. maybe this is due to the protein. He said vegetarians have a harder time absorbing vit D (and it has to be D3, not the other D).

I also have problems retaining iodine in my body. I lose more than i ought to and iodine is necessary for a healthy thyroid too.

I too have the adrenal issues. My doctor put me on Cortate tablets to help with my low morning cortisol levels and i'm so much better now. Are you only taking vitamin type supplements to help with your adrenals or are they actual medication what you are on?

If you were taking your iron along with the T4 you were on before that would make the T4 less effective and would also mean the T4 wouldn't be giving you the full benefit of making you feel better. You can take iron and other supplements alongside T3 med's but not T4. I believe i was told to not take iron or other vitamins 2 hours prior and 4 hours after taking your T4 meds. This is going to worry me next week as i've only been on a T3 med (triiodothyronine) and as of monday my doctor will be starting me on a little T4 (thyroxine). I'm juggling enough med's and supplements as it is and it frustrates me having to spread things out so that one thing doesnt inhibit another.

My medicinal listing and time frame is fast resembling a train time table :D It's ok if you are at home all day, but i work full time and remembering and taking time out to take this, eat food prior to taking certain things, take one thing and wait before you can take another is driving me nuts. The thing is, nobody at work understands. They simply think thyroid issues are like a headached, you pop one pill and hey presto problem solved. They don't realise how much stuff i actually take and how tired i sometimes get. maybe it's because i'm so good at hiding how i feel and just put on a happy face!!

Just incase you didn't know, zinc should not be taken until either 2 hours prior or after taking your iron, just like caffeinated beverages, red wine and dairy products inhibit iron absorbtion.

I'm not sure what Betaine is. I was taking a formula which my doctor's chemist especially made for him and its not a commercial brand, but there are a variety of commercial ones which people on these boards have a had decent success rates with. If your iron constipates you there are stool softeners you can buy. If it causes irritable bowel then you can take iron phosphate which calms the the stomach/bowel.

It's quite a long road and so many of us have been room mates here on the anemia board for quite some time (a number of us have thyroid issues too). So be prepared to bunk down for a while, but you are in good company :D
prokureur - The reason my doctor is doing everything for me is that he works in a University and he deals with small groups of "problem patients". By 'problem', i mean people who are doing all the right things, yet are having problems raising their ferretin and have a diagnosed thyroid condition. It also helps that this doctor is a Hashi's sufferer himself and relates to all we are going through. I'd say it's more like my guardian angels were looking after me as i did a heap of research on here, then as a last resort found a Trichologist for my hair loss (i had given up on all other doctors) and he diagnosed my Hashi's, helped lift my ferretin and he is the one who knows my current doctor and referred me on. It was more like an unplanned chain of events.

I agree with FLFLOWERGIRL, gluten intolerance and low B12 are often causes of low iron as well as all the other things eg: internal bleeding, heavy periods, vegetarian diet etc. My current doctor wants my ferretin over 100 and even up to 125. A higher ferretin is very beneficial for the thyroid too. I guess if you have had one of those biopsies (or whatever they do) to diagnose gluten intolerance or Celiacs and it's come back that you dont have that then that rules that out. It's probably good to get the biopsy done as blood tests can give false positives and false negatives. You should get your B12 checked too.

In my case, i'm not sure how much of my slow rising ferretin is due to gluten and how much to not being able to digest protein. I've been reading up on malabsorption issues and it's amazing how the inability to digest certain things can cause quite a lot of different side effects ef: edema (swelling anywhere in the body), dry skin, hair loss, anemia, easy bruising, dehydration, fatigue, vision problems. Taking those symptoms into account, who knows just how many things could be/were affecting my hair shedding.

At the end of the day, no matter what your doctor is or isn't doing, you need to do as much research, learn as much as you can and make lists, find out who can do more tests and then start ruling things out. I guess it doesn't help when doctors say your tests came back 'normal' just because the test results are 'within range'. That's why boards like this are great as there are a number of people around who really know their stuff and can help with test results.





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