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Chronic Low Iron?
Aug 6, 2008
If I had been told all of my life (as far back as I can recall, and I am 37 now) that I am "slightly anemic" why do you think that would be? I tested more than slightly a couple of months ago, and had to go through some major testing. I went on iron 325 mg. a day and it brought my hemoglobin level nearly to normal fairly quickly. However, my ferritin is still only at 7.

I have had my "insides" checked, meaning just had an endoscopy and colonoscopy. No internal bleeding found. I have mostly mild to moderate periods.

Why would someone be chronically low on iron in this situation?

P.S. when I just had my colonoscopy done, they had me on oxygen for the procedure-a first. I wish I had some of that for at home! I have a hard time breathing sometimes.
I am unsure if you read correctly. I am on 325 mg. per day-still. Even though my hemoglobin has gone from a 9 to an 11, I will be on it for 3-6 months. Also, I asked my dr. about Thalassemia, particularly since I am of the heritage it affects-tests show negative.
Negative for B-12 probs. I had biopsies taken to rule out a couple of things. I know that since I have a hiatal hernia and severe GERD that being on a PPI has probably reduced my stomach acid, thereby making things worse.
I just want to know why even while taking iron and having a nearly normal hemoglobin level, my ferritin being low, I CAN'T BREATH.
I pant just from walking from my car to the door to work. I pant going DOWN one flight of stairs.
My blood oxygen level must have been low for my dr. to give me oxygen during my colonoscopy.
How does someone know whether or not to go to the hospital?
How does one know whether or not their dr. is taking you as seriously as you would like?
How does one know whether or not you need iron via IV?
How does one know whether or not you need a blood transfusion?

Long story long, I don't think I should be nearly blacking out if I am on 325 mg. a day, and my hemoglobin is nearly a normal range.

I don't think I should be having a hard time breathing.

I don't think I should have calf pains that GO THROUGH MY 50 FENTANYL PAIN PATCH and require additional pain measures.

I am tired of being tired. I am tired of feeling like a fish that was taken out of the bowl of water.
If you remember that commercial where the fish are in the bowl and the water level keeps getting lower-I can relate.
If you have ever gone swimming and dived kind of deeply under the water, and you are kicking and swimming up to the surface, but you are nearly there and your air is gone- and you are starting to just slightly panic--THAT is how I feel almost all day almost everyday.
Thanks for your replies.
Tired,

Sorry to hear about your problems. Do you have any other medical conditions, such as asthma, cardio problems, diabetes, etc.?
What I am thinking of is that your breathing problems could be completely unrelated to anemia. I know how terrible not being able to breathe is. To me, that is worse than almost any pain. I also know what shortness of breath does to ķur energy levels, when not enough oxygen is getting to the organs and tissues. How long have you had the SOB?

FG
[QUOTE=flowergirl2day;3681437]Tired,

Sorry to hear about your problems. Do you have any other medical conditions, such as asthma, cardio problems, diabetes, etc.?
What I am thinking of is that your breathing problems could be completely unrelated to anemia. I know how terrible not being able to breathe is. To me, that is worse than almost any pain. I also know what shortness of breath does to óur energy levels, when not enough oxygen is getting to the organs and tissues. How long have you had the SOB?

FG[/QUOTE]

Thanks for your reply.
To my knowledge, the only other reason for the breathing problems are having a deviated septum and being a naturally shallow breather. I also thought that it might be due to stress as when I am upset, as it sits in my chest. I also am on Fentanyl 50, which can affect breathing, but unlikely that it is an issue as I am used to being on it and have been for many months. (Years, actually.)

The SOB has been an on and off thing-meaning I have good days and bad days. I would say that I have been oxygen deprived for years. I just used to think that since I was such a shallow breather, that was why. I didn't know much about anemia, even though I knew I had it. (If I take a deep breath, I get dizzy.)

My dr. has told me to simply go to the ER as I might need a blood transfusion. I know good and damn well once I get there and wait 3 hours to be seen, they will test me and realize that my hemoglobin is not low enough to do so. I have an 11.1 last they checked. Although my ferritin is only a 7.

I have now been short of breath where it is affecting me severely for at minimum a couple of months. I don't exercise anymore. I try to keep movement to a minimum as even walking about my office makes me dizzy.

I know this isn't healthy. I know that it isn't normal. I just don't know what else to test for, and or if I should just wait and see if taking iron via pill will build up my stores enough to make this stop.

My son is now taking over some of the household duties as I simply can't.
Thoughts?
[QUOTE]I also am on Fentanyl 50, which can affect breathing, but unlikely that it is an issue as I am used to being on it and have been for many months. (Years, actually[/QUOTE]

Taking a drug for years does not guarantee there won't be any problems down the road. Adverse reactions or side effects can occur at any time, months or years after starting the medication. Think about it: in clinical trials and studies, the drugs are tested for a relatively [U]short[/U] period of time on a [U]SELECT[/U] group of patients, who have usually just [U]one[/U] medical condition (not a severe form of it, either) and meet many other criteria. To me, any results thus obtained are not a guarantee of the drug's safety, and the claims that they had been tested on a sample of a general population and found safe are ridiculous.

The true test comes after the drugs' release for use by the general public in clinical practice. This means people of all ages, with various genetic makeup and personal characteristics, and from varied ethnic backgrounds, many of whom have co-existing diseases, taking the same drug. It is not surprising that many adverse effects of the new drug are discovered during this period. Unfortunately, these adverse reactions go mostly unreported.

Similarily, some people develop drug [U]tolerance[/U] after many years of using it. It stops working for them. Some drug's long-term effects on people are not known, because they have never been tested on people. (I take one like that).

[QUOTE]The SOB has been an on and off thing-meaning I have good days and bad days. I would say that I have been oxygen deprived for years. [/QUOTE]

I like Christina's suggestion of GERD. This condition often causes shortness of breath. Unfortunately, there are so many others that do the same! You would be surprised to hear what some possible causes of SOB are. I know I was. I researched this topic thoroughly, because not being able to breathe became a big problem for me. I too have had to quit physical activity. I feel great if I make it up the stairs without becoming completely breathless.
I still don't know the cause of my problem, and probably never will. There are just too many likely possibilities. After I had the pulmonary function tests, it was asumed I had asthma. I only took asthma meds briefly and felt no change in my breathing. I also have several other health issues, all of which can cause SOB. A few of my meds can cause it as well.
I hope you'll find a solution and will find something to help you with your breathing.

take care, :angel:
flowergirl
Thanks for your replies. It gave some good info. I do know that I am dealing with some mega-serious GERD. It has been somethin awful this week.

I think I am feeling a bit better since starting my iron. At least I was breathing easier this week. Perhaps I will just give it time.

I definitely have anxiety. No question about that! I just know that there is a difference between the way I feel with anxiety and the way I feel with anemia with regards to breathing and one is different than the other.

Anyway, got to run, will add more later. Thanks again.





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