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Hi Shirley..
I agree with scout I also have normal blood levels although my MCV levels were edging up with every test....
This is were a lot of docs drop the B12 thing because they think if your FBC is normal there is no problem if the bloods are out that can dictate Pernaciuos Anemia also know as Megablastic anemia........

However this thinking is very out dated as you can have a severe deficiency without blood symptoms like elarged red cells, scout and myself prove that one..

Its hard when you have to convince someone otherwise isnt it........Is it possible for you to try another doctor...Where abouts in the Uk are you there is a Dr Chandy over there how I believe is fabulous here treats CFS & MS with B12............

If you can try to get those other tests mentioned before taking supplements as the supplements can skew the test results....

But with all those symptoms you need treatment for sure ...neurological damage usually occurs before blood changes at least that is what I have heard...There is a small window to repair damage I was told once you have gait problems its around 6 months or it is irrepairable.......But I know of people who have had excellent results after a year of gait problems......When I was really bad I couldnt stand with my eyes closed I would just fall right over that and my digestive issues were the last to occur before I got treatment...
Please keep us posted...........
Best wishes to you

Cheers
Rainbows End
Linda,

Would you please review this and make any corrections/additions? Also, do your mother's symptoms change at all if she eats sugary things (sweets or fruit), caffeine? alcohol?

When did she begin having the urinary tract infections? Was it the two years before the stomach problems? If not, when?


Prior to 9-07 healthy woman
9-07 presented with severe stomach pains
diagnosed with h pylori and GERD
3-08 treatment: nexium, cipro, omeprazole
4-08 phenazopyridine for urinary tract infections
5-08 prednisone
9-08 anxiety begins
10-08 anxiety attacks
10-08 tetracycline for h pylori, lexapro for
anxiety/depression, xanax, metoclopramide hcl for
stomach
stomach and anxiety problems remain unresolved
xanax dosage doubled to 3 mg/day
lethargy and loss of speech,
xanax stopped abruptly
anger, paranoia, violent, suicidal, claustrophobic
10-08 Hospitalized and in psych unit
12-08prescribed Haldol, Geodon, Prolixin and Prilosec,
Nexium, Pepto Bismol, Mylanta
Geodon and Haldol disco’d
prescribed Risperdal, Ambien for sleep, Klonipin for
anxiety
hospitalization in Oct 08
diagnosed with depression
prescribed klonopin
loss of cognitive function begins
paxil prescribed for anxiety
experienced auditory hallucinations, (voices)
admitted to hospital and prescribed Seroquel
diagnosed with psychotic depression
shaking and nervousness began after psych
unit discharge

admitted to an ALF
PET scan suggests alzheimers

4-08 taken off ALL meds for a month
shaking continued, speech quieted, walks slowly, waddled gait

4 or 5 of 08 Increased desire for sweets and coffee (caffeine)??

Linda, I have not kept up with the alzheimer's research...have you checked with the "experts" on the alzheimers' board for their opinions and interpretations regarding the tests?? Again, I don't think your mother has AD (for one thing AD develops slowly and your mother's symptoms occurred rapidly)...but the people on the AD board may have info that would help.

Bethsheba
[QUOTE=bethsheba;3763219]Linda,

Would you please review this and make any corrections/additions? Also, do your mother's symptoms change at all if she eats sugary things (sweets or fruit), caffeine? alcohol?

When did she begin having the urinary tract infections? Was it the two years before the stomach problems? If not, when?


Prior to 9-07 healthy woman
9-07 presented with severe stomach pains
diagnosed with h pylori and GERD
3-08 treatment: nexium, cipro, omeprazole
4-08 phenazopyridine for urinary tract infections
5-08 prednisone
10-08 anxiety attacks
10-08 tetracycline for h pylori, lexapro for
anxiety/depression, xanax, metoclopramide hcl for
stomach
stomach and anxiety problems remain unresolved
xanax dosage doubled to 3 mg/day
lethargy and loss of speech,
xanax stopped abruptly
anger, paranoia, violent, suicidal, claustrophobic
12-08prescribed Haldol, Geodon, Prolixin and Prilosec,
Nexium, Pepto Bismol, Mylanta
Geodon and Haldol disco’d
prescribed Risperdal, Ambien for sleep, Klonipin for
anxiety
shaking and nervousness continued[COLOR="Red"](when did this begin??)[/COLOR]
diagnosed with depression
prescribed klonopin
loss of cognitive function begins
paxil prescribed for anxiety
experienced auditory hallucinations, (voices)
admitted to hospital and prescribed Seroquel
diagnosed with psychotic depression
admitted to an ALF
PET scan suggests alzheimers

4-08 taken off ALL meds for a month
shaking continued, speech quieted, walks slowly,
waddled gait

Linda, I have not kept up with the alzheimer's research...have you checked with the "experts" on the alzheimers' board for their opinions and interpretations regarding the tests?? Again, I don't think your mother has AD (for one thing AD develops slowly and your mother's symptoms occurred rapidly)...but the people on the AD board may have info that would help.

Bethsheba[/QUOTE]
I just went back and looked at your questions and forgot to answer your first one...you asked about eating sweets or caffeine and if her symptoms changed. I don't know if her symptoms change, but she craves coffee and sweets all of the time...never passes it up. She used to be that she would have her coffee with meals but not usually in between meals and she never hardly ate sweets. Now, when we go to the store, she wants to get coffee cake to eat with her coffee. She has gained a little weight because of this...this has just been since April or May.





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