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Hello FLFLOWERGIRL!
Thank you for your post to me & RainbowsEnd(my lovely "Aussie pal"!).It is so nice to meet you also!:)

It's a good feeling when you know you've helped someone!:angel:

There are so many people here with undiagnosed health issues,but at least we can all contribute our knowledge of what we've been thru and maybe just maybe it will help someone.......and when it does it's Great!!!!

Thanks for sharing a bit of your story.My family and I lived in St.Pete.for over 7 years...we came back to IL in 1989.It was so lovely in FL.My mother-in-law still lives out there and she loves it...of course!Wow how time goes by so fast.I worked for awile at Eckerd's drug store back then and I remember the Tyrone Square Mall and used to ride those lovely buses with my kids a lot!It was so nice living out there and we have many fond memories from when we lived there.:)

Your B12 level was kind of good at 800-900...what was the normal range at the labs where you had it tested?I'm just wondering........the lab my dr. uses says norm is 200-1100(such a wide range,isn't that?).Mine right now was 420...which my dr. thinks is pretty good,but it Always drops back down to the 200's if I don't get the shots.:(

I wish more drs. were aware of B12 issues.My hematologist(she's now retired....boo hoo hoo...she was an awesome dr.!)said a good level should always be above 400.I think the more B12 you have the Better......as it is so very important to the central nervous system.That's great that you have your parents taking it too...they say we need more B12 as we get older and I actually read that nursing homes are giving B12 to their residents to prevent B12 deficiencies....love that!!!!:angel:

So a lot of vitamins are important for us,but B12 is a really vital......so many neurological problems can and do arise when we are just at the lower end of the normal range...I think we should advocate that the labs should change the numbers for what's a "normal range"......maybe then drs. would be able to help more people before they get symptoms and have to suffer!:)

I see my dr. on the 23rd this month...I'm gong to ask him to check my ferritin,because in the past I've always been low(my # was 11...really low if you ask me,but he said I was "in range"...haha the normal was 10-276....:(

Hope you have a lovely sunday....I sure miss the beautiful beach in St. Pete.!:cool:

Take Care~Scout
Hi Emmaspaws!!!:)Wow I can't believe you live where we used to!I think we lived on 17thAve.,N....yes it is a small world!!!!Well I'm glad you seem to be in better spirits today...life is not easy,but we can get thru the rough spots with support & love from others!:angel:

Okay let's see...if I remember correctly the large red cells would show in the MCV(the # will be at the higher end of the normal range).Now if they had checked her "folate" that comes under folic acid and even if that's a good number you can still be B12 deficient.My old hematologist said there's so much folate in all foods now that it actually "masks" the B12...a higher level of folic acid then actually makes it look like you're okay,but when the B12 is low a lot of times the folic acid is high....confusing but true!;)

Well I'm not sure your mom's drs. ordered All the tess that go with the B12 level check.Those are MMA(methylmalonic acid level)which if elevated points to a B12 deficiency(even if B12 is in normal range,but the B12 will probably be at the lower end(under 400 if your labs are about the same as here).:)

Please make sure you find out exactly what her B12 level is(ask for a copy....to see what that lab uses as a normal range..this is very important!).If her dr. only ordered the B12 test and she's running low on it,but still in range then Demand the MMA,Homocysteine & Folic Acid tests also.;)

Drs. are a royal pain in the behind...haha,but let's give 'em a chance to see if they can get a clearer picture of what's happening to your mom.Oh I just hope & pray that it's going to be something simple that can be corrected.

I founnd in my experience that even though drs. mean well...they are wrong a Lot of the time.Just goes to show that you have to listen to what your body is telling you.For instance I had a dr. during the roughest part of my B12 deficiency and he said that he "checked everything"and couldn't find a thing wrong with me other than a low white cell count and low platelet count.So then I just went to the hematologist he sent me to a year earlier and I told her my symptoms and she knew right away it was B12!!!!My B12 was 279(normal low end) and my MMA was over 400(more than double the high number allowed!).So there you have it........now let's just hope something shows up in your mom's tests.:angel:

Have A Beautiful Day!

Scout;)
Hello Linda...Oh my goodnes I'm so sorry the test result was that high.Is your mom taking any supplments right now?That can cause the resuts to be off...plus was she fasting for the test?My hematologist said fasting is pertinent for a correct level with this....even though MDs say you don't have to.

I know that sometimes blood can be too acidic or too alkaline also...have the drs. did a thorough blood count to check everything to rule out all blood disorders?I assume they've checked all her electrolytes and such?Why are they giving her folate?I would check into that.I think RainbowsEnd might have some very good comments on that one.There has to be a reason for them to be giving her folate...it must be low????There's something there that's for sure.....

Try not to be discouraged....something will surface....we are here for you Linda ad we care!

Scout~
Hi there Linda....sorry about the folate,but I'd ask the dr. why they gave it to her before(she must have been low and needing it back then I would presume).

Usually the MCV will be elevated...your mom's is at the high-end...which could mean something.Her ferritin isn't that great either....ferritin is the better test for iron I've heard.At this point it is hard to say that anything is pointing to anything.RainbowsEnd will be sure to have something to add about this.

Those other tests they do for B12 are MMA(methylmalonic acid) which if elevated is a B12 deficiency.Also the Homocysteine test which if elevated points to B12 def. also.You can be elevated in one or the other or both...if those ar normal then there's no B12 def.

Usually the B12 has to be at the lower end to warrant testing for the MMA and homocys.

Did they check her other counts for potassium,magnesium,calcium,protein,etc.?Just wondering....there's so many important blood tests that canbe done...I sure hope the drs. looked at everything to rule out possibilities for anything that would cause your mom to be shaking/trembling so much.

I agree with Bethsheba though that giving your mom extra supplemenys might do some good...it certainly can't hurt.

I am very interested to see if anything shows in her uninalysis...her white count is a little at the high end also,but I'm not familar with her history on her WBC from the past.

Also what meds is she currently taking?Any?None?Also did they do an EEG(brain wave test) for her?Iwould think they would if they did an MRI....that could tell how her brain is functioning.If they haven't did one yet then request that they do...it's an easy test...youjust lie there and close your eyes while they have tiny little electrodes on your head(they attach them with water-soluble glue)then it gives a print out of the brains electrical activity...it's painless...easy as pie...like a lie detector test...sometimes when there's something going on in the body it will show in the brain wave patterns....good idea to have it checked.

Okay well I know this is frustrating,but just keep advocating for your mom...there's many avenues to investigate...don't give up hope.....have a good night.

Scout~
I just wanted to wade in on the B12 topic. My dad was not feeling quite well for a long while and as i'd learnt a lot through spending time on the anemia and thyroid boards i decided to have my dad fully checked out. A couple of other family members on dad's side have thyroid issues too so i thought his symptoms might be thyroid related.

Typically, his tests came back at very low end of range for some things and high end for others. The lab even put these in bold and use an '*' to alert the doctor. The doctor dismissed him as healthy and that was that. That's when i stepped in and put him on Vitamin D and B12 and also a top up dose of daily iron as his ferretin wasn't too bad.

In 6 - 7 weeks he has changed almost completely. His Vit D and B12 have shot up. He no longer wakes during the night and can't get back to sleep. Instead he might wake, but rolls over and falls asleep again. He's not as moody or deathly tired. He's got more bounce and looks more alert and happy.

To think he didn't want to do the blood tests in the first place saying it was "age related". he thought he had to be this way due to turning 70 in 6 months time. Now he see's the difference :) I'm still mad as hell at that doctor, also the fact the doctor wanted to put him on meds which bi-polar people use as well as those with epileptic seizures. Fortunatly my dad refused to take the meds once he read the information leaflet, which also stated they were used to 'calm psychotic episode'. Fancy that!! all it was was a simply B12 and Vit D deficiency.
Hi bethsheba - yes, you could be right about my father. He's also wary of treading on doctor's toes. Oddly enough, his ferretin is ok. Back in 2004 it was 80 and end of last year it was 119, but my doctor got me to get some iron picolate (sp?), at least i think that's what it was called, to take so that his iron can get a bit higher or at least not drop.

I'm the opposite, no dramas with my B12, just my iron. Oh yes, and both of us had the very low vit D.

Not sure if you read in one of my posts somewhere, his doctor died suddenly not that long ago. The new doctor replacement isn't much better, but will do any test you want. My dad said that he keeps asking "anything else, anything else". So we could get quite "test happy" with this doctor at the very least. Not sure what he's like at reading the tests, but i can always get my own doctor to interpret them.

I don't think it's a geographic issue in our case, i believe it's something linked in with our genetic autoimmune issue. My dad's brother overseas had his thyroid removed a LONG time ago, while his daughter was born/contracted diabetes at a very young age. One of her babies was still born and riddled with diabetes to the point they couldn't even allow her to see the baby. Her next baby was healthy, but has got a thyroid problem and is on medication. Not sure whether hers is autoimmune, but i'd hazzard a guess that it is. If only i'd known as much about the thyroid back then as i do now and had know the family history, i feel i could perhaps have acheived more.

Thanks again for all your help. You are a true gem, helping everybody so much :)





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