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hi everyone
theses 2 b12 threads have been very helpful, a lot of good info shared here.

ive been ill for about 8 years now, the past year ive been going to the doctor to try and find out why ive felt so ill for so long... my symptoms are...

- Always really tired, i wake up after 10 hours sleep and still feel tired, weak and canít walk up a flight of stairs without being out of breath, no energy or motivation to do anything, constant exhaustion.
- Sensitive to heat- if its a bit cold i feel really cold and my hands and feet go numb and purple, and if itís a bit hot i feel really hot and sweat lots.
- Digestive problems.. really noisy stomach growling all the time, inconsistent stools, bad bloating, horrible stomach pain, craving food and feeling hungry all the time (especially sugar and carbs), donít put on weight no matter how much i eat, get really faint and shakey if i donít eat for a couple of hours or sometimes just at random times, this is only relived by eating.
- Heavy and painful periods (eased a bit with the pill), breakouts of spots on face and scalp, excess hair, greasy skin
- chest pain/tightness
- Feeling thirsty all the time (despite drinking lots of water) and having a dry, mouth/dry sore lips but still needing to pass water quite a lot
- Rashes on upper arms
- poor posture/uncomfortable back
- severe sweating, muscle twitches/pulsations
- alcohol affects me alot... legs go funny after only a few sips of beer or wine
- Brain fog, feeling Ďout of ití, not being able to concentrate, forgetting things, vision going funny - a bit dark/patchy light/blurry - colours go darker
- heavy eyes, feel like theyíre trying to cry sometimes
- off balance/clumsyness - clip door frames a lot - busy places and flourecent lights make me dizzy and spaced
- Chronic post nasal drip (a cause has never been found), pressure in the head, tingling, , stiff neck, uncomfortable back, stiffness in lower back
- Lump in front of my right ear/top of jaw which is sometimes sore and glands under chin/top of neck get tender and sore, also had lumps in nose
- Severe anxiety and depression caused by having all of these problems, get nervous about stupid things/panic attacks , no confidence or self worth, social anxiety, difficulty talking to people, easily embarrassed for no reason/blushing Ė like i cant control myself.

now, my doctors tested me for all the basic things and they were all normal.
so shes diagnosed me with IBS and thinks that all my symtpoms are casued by anxiety, im sorry but this is rubbish. my anxiett didnt start unitll a couple of years after i started getting exhausted and the stomach problems began. theres no way anxiety can casue all of these problems.

she also thinks i may have ME, im wating to see a specialist.
i dont think this is right, im almost certain my problems are casued by b12. i had to make the nurse take a blood smaple for b12, becaseu the doctor said there was no need... my result...272.
now my doctor says this is fine, no treatment needed, its normal becasue the range is 140-900. but from what ive been reading here 272 is not normal and not a healthy level.

do people think that low b12 could be casuing me to feel this exhuasted and ill? i think i may have hidden b12 deficiency.. and want to get other peoples opinions before trying to force my doc to do more test...
bethsheba..
infectious disease specialists and neurologists may have lots of experience and education, but they dont know my body or how ive felt for almost a decade, only i no that and all im saying is that from everything ive read my symtoms sound far more like b12 deficiency than lyme disease, and since i have a low b12 level anyway, i think thats a good bet. im not ruling out lyme disease, and maybe it is something i will persue if nothing turns up with the b12.

scout..
thankyou so much for your help and support.
ik definelty going to push my doc for the tests this week and if not try and get her to refer me to a hemotologist.
it may turn out that i dont have a hidden b12 deficiency, but i still need to know, its the top of my list at the moment and i match all the symtpoms. and even if i dont have it my b12 is still too low for my liking so ill be taking something to try and get that up.

ill post if i get anywhere! thanks again
hi help wanted....your B12 is too low...I have been to several neurologists(including two from Rush University,Chicago Illinois) and they told me a healthy B12 level should be over 400.Yes there's a possibility you could lave Lyme Disease,but you could also have one or more of a zillion other health problems.

Just don't get overwhelmed with thinking that you might have this or that.Your B12 is at the low end which is medically proven to cause neurological symptoms.My dr. said I was fine,but I wasn't so I went on my own to a hematologist and she said I wasn't fine.The B12 shots gave me back my health.I had all the tests to see what was causing the lower B12 and everything came out fine.The dr. then said it was most likely my diet.I have allergic bronchialasthma so I don't get a lot of dairy in my diet.My asthma symptoms went away after my B12 level went up.B12 is a Vital part of the central nervous system and when your level is low you start using the B12 that is stored in your liver.Alcohol,smoking,diet,IBS,fluctuations in hormones..these all can deplete your B12.

Lyme is a very cruel disease,but so is cancer and a whole lot of other diseases.It's very difficult as we've heard to get a Lyme diagnosis,but you have to have been bitten by a tick and that's a fact.

Just take it one step at a time....and starting with getting your B12 level up is a good place to start.

Take care...I'm here for you Scout xx
Hi Shirley.....at least you can see the neurologist...that's great!Okay tell him you want an MMA test,Homocysteine test and Folic Acid test...if the MMA or Homocysteine are elevated you have a hidden B12 deficiency....the folic acid might be low or high.

Low borderline B12 can cause the nerve problems...tell your neuro that you want him to check for an "occult" B12 deficiency,because you don't want to waste time and lots of money on more expensive testing...like MRIs and such if it could be something as simple as needing B12 injections.

Tell him you have "a close relative" who has the same problem with their B12 being low,but not under the normal range who was DX with a hidden B12 deficiency.At this point that's the only way you might get a dr. to do those tests for you...your B12 is too low...not a healthy level....Good Luck...post back if you like...I'll try to help any way I can...Take Care Shirley~Scout
[QUOTE=Lynnv48;3790445]Hi. I was diagnosed with B12 deficiency (level was 175) after trying to figure out what was wrong with me for almost a year. I have had 3 injections, and the dr. has me taking oral supplements as well, and basically just told me I would be better in 6 mo to a year. It seems that my symptoms have not gotten better, in fact they may be worse. I can only walk for maybe 10 min at a time, then need to sit, tingling from head to toe, and general weakness. I have a couple of questions, first of all, [COLOR="red"]does it really take that long to begin to feel better? Is there anything that can be done in the meantime to expedite the process? [/COLOR] Thanks so much for any help anyone can give me.[/QUOTE]

My doc had no predictions about my feet. It's been over 8 weeks since my treatment started, and everything is pretty good except foot numbness. Being the farthest point from the brain it's probably the last to heal. OTC pain meds don't seem to make any difference. I'm expecting 6 months or so to get better.

But keep in mind that if nerve damage has gone too far before treatment was started, it may be permanent.





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