It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Anemia Message Board


Anemia Board Index
Board Index > Anemia | 0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


Hi Tibby2

Nice to hear from you. I don't know if you have picked up on my other posts but my ferritin which was tested a couple of weeks ago after taking supplements for 5 months was only up to 22! I am still feeling like c*** and have been off work for 4 weeks with terrible dizziness and balance problems. Life sucks! Can't wait to get up to a level of 50 and see if I feel any better.

I think that an attack of Labyrinthitis started all my problems. That lasted six months and occured 4 years ago. I have always, since 13 years old had heavy periods. They used to last seven days but in the last few years have only lasted 3 days but have been really heavy. So, I think my ferritin levels may have been low for years before this attack of Labyrinthitis (ear virus which actually causes dizzines, balance problems, anxiety etc.). Obviously when I got this ear stuff, my body would have tried to dip into my iron reserves to help me recover and they just weren't there. Since I was first ill, I completely changed my diet to a good healthy one with lots of veg, fruit etc. I think this is why I am not actually anaemic. So, the battle rages on - every time I get a silly little cold or something the dizzies take over my life. I also think that this is not still Labyrinthitis (which my docs insist it still is), because a) they have never found anything wrong with my ears, b) I have not suffered from anxiety since the first attack (which is classic with inner ear disorders) and c) it is very rare to keep on suffering like this with Labs (4 years now).


In answer to your question, I have seen it mentioned lots of times that ferritin levels go up and down but I don't know what causes that. I know that when I have my period I am like death warmed up and feel so tired. I'm not good at knowing when I am actually due but I can tell because the day before it comes I am so unbelievably tired. This lasts till a few days after it is over and then I start to feel normal again (as regards the tiredness).

I can only sympathise with you as I know exactly how life limiting this all is. I am sitting at home at the moment, unable to work, bored out of my skull and sick of feeling dizzy. Do you have to work?

Take care:)

Mac2
[QUOTE=Mac2;3899249]Hi Tibby2

Nice to hear from you. I don't know if you have picked up on my other posts but my ferritin which was tested a couple of weeks ago after taking supplements for 5 months was only up to 22! I am still feeling like c*** and have been off work for 4 weeks with terrible dizziness and balance problems. Life sucks! Can't wait to get up to a level of 50 and see if I feel any better.

I think that an attack of Labyrinthitis started all my problems. That lasted six months and occured 4 years ago. I have always, since 13 years old had heavy periods. They used to last seven days but in the last few years have only lasted 3 days but have been really heavy. So, I think my ferritin levels may have been low for years before this attack of Labyrinthitis (ear virus which actually causes dizzines, balance problems, anxiety etc.). Obviously when I got this ear stuff, my body would have tried to dip into my iron reserves to help me recover and they just weren't there. Since I was first ill, I completely changed my diet to a good healthy one with lots of veg, fruit etc. I think this is why I am not actually anaemic. So, the battle rages on - every time I get a silly little cold or something the dizzies take over my life. I also think that this is not still Labyrinthitis (which my docs insist it still is), because a) they have never found anything wrong with my ears, b) I have not suffered from anxiety since the first attack (which is classic with inner ear disorders) and c) it is very rare to keep on suffering like this with Labs (4 years now).


In answer to your question, I have seen it mentioned lots of times that ferritin levels go up and down but I don't know what causes that. I know that when I have my period I am like death warmed up and feel so tired. I'm not good at knowing when I am actually due but I can tell because the day before it comes I am so unbelievably tired. This lasts till a few days after it is over and then I start to feel normal


mac,thanks for replying .It really is such a drag this stuff isn't it..I really find it interesting the way the balance stuff goes with it,i have read a lot of that,& also expierience it..i don't think it has anything to do with ears to be honest.,another thing for the doctors to fob you off with when they just don't have a clue,and don't want to waste time & money on you.they will also say you don't have symptoms with low ferratin,but I have all the symptoms of aniemia,untill my levels come up again.,like yourself,i feel awful,during bleeds and for about a week after,how im feeling is reflected in my palid complexion.. ..my periods went wrong around the time my iron dropped to next to nothing,and I believe its the ongoing defficiency puting them out of whack.it can't be particularly good for us physicaly or mentaly to be defficient for so long.
on a lighter note!i really do think you will feel much better,when your levels get past around 40 or so,like I mentioned,at 57 I felt so much better.i think a level of 100 & over would be optimal though.seems like a long way away at the moment.!good luck with getting your levels back up mac.
[QUOTE=Mac2;3905325]Hi Tibby2

Isn't this just amazing. That's exactly what I am like, need support when walking outside and grabbing onto stuff at my worst times. It's quite funny really when you have a 'turn' and have to grab onto someone and they are not expecting it!
Funny you should say about the blood sugars as well. I don't have a problem with my sugars, you know when you do the test, mine are always perfectly normal, but I do need to eat at certain times of the day. I need something at about 10.30, (piece off fruit or a couple of crackers), and then I have to have an early lunch otherwise I feel like I am going to pass out. So, there is definitely something going on there. Got the dreaded period today, heads totally gone. Will bump the iron up over the next fews days, don't want my precious ferritin draining away - lol!



Can I just ask - in an earlier post you said that your ferritin dropped from 43 to 20 in the space of a month. Why do you think that was? Was there a reason why you had two ferritin tests within the month?

Glad to hear you are feeling better today :)



well hello mac!. i had the test as i routinely moniteri my ferratin levels occasionaly. at that point it was on 43 ,high for me,because i had been treating myself properly & regularly with iron, & vitamin c for once! lol.anyway,after i had that test ,i had a period.. my periods are never just periods,they are heamorrages .& low & behold became inreasingly ill,it just crept up on me.. i felt like a mess ,shaky,pale,sweaty ,sleeping all the time .was even told i had m.e! i asked them to test my ferratin on advice of a friend who knows about my iron thing. & it had droped by 23 units ,within four weeks of the first test.,the cause was the one period.It took a couple of weeks or more to build it back up again... this is an ongoing issue for me,which is sometimes made worse by me being lax with the pills,running out etc. i would be dead without a doubt if i didnt just have that iron holding me through bleeds.but thats all it does really. getting the levels up & staying up will be impossable,while im still having periods like i do.!
anyways, keep getting your levels up & I bet your dizzeness will start to trail off .!will be interested to see how you go mac !
Mac2[/QUOTE]
Hi Ladies,

Fatigue - it took me six months to jump by 12 points to get my ferritin to 22. It takes a long time! I am still taking supplements daily and the one I take is called FERSADAY (100mg) which is ferrous fumertate 322mg. I take one of these per day, this is the one the doctor has prescribed for me. I also take one FEROGLOBIN B12 tablet per day which is 24mg ferrous fumerate and includes other B vits and zinc and copper. This is from a company called Vitabiotics and I get it online as I don't have a supplier near me. They are really gentle on the stomach too. So in all I take 124mg iron per day as a supplement, then of course in my diet I include red meat a few times a week, which is the best way to get iron. Also, cereals are a good source as iron is added but I am not a fan of cereal. The spinach you are taking will probably not be doing you any good ironwise as it also has something in it that cancels the benefits of the iron out! I also have plenty of veg and fruit, brocolli is a good source. You must also take Vit C and I take a high dose supplement which helps with absorption of the iron. Stuff such as calcium, tea and coffee can hinder absortion so these are best avoided until a couple of hours after or before taking your pills.

I have been taking this increased dosage of iron for the past couple of months so I don't know what my ferritin is at at the moment, hopefully it is much higher but I do not feel any better.

I also have crashing fatigue where I just cannot seem to keep going for a second longer but I always seem to keep going!

God knows how long my ferritin has been low, but I was struck down by Labyrinthitis 4 years ago (inner ear virus), and I too have put loads of weight on, I just cannot seem to lose it! I am putting it down to middle age because I am 48 years old. I have a cousin who is the same age as me as she has no other health problems and she is bigger than me!!

Kitty - please don't feel guilty that you cannot do what you used to do. I used to blitz the whole house on a Monday every week and EVERYTHING would get done. Now I have to accept that I cannot do that anymore because it totally wears me out and I do a little each day. You do have something wrong with you and it is not an excuse -it is real!

I have never been a one for exercise but I love to walk. Why don't you try that? It is good for the health and good for the mind. Give it a go - you might enjoy it!

Take care

Mac2 x





All times are GMT -7. The time now is 04:11 AM.





© 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!