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Hi

I have been reading through the posts and see that a lot of people with low ferritin levels also suffer dizziness and balance problems.

I have suffered these problems for years now and every time I catch a virus my problems escalate. (Maybe because my body is trying to dip into my iron reserves which are just not there?) My ferritin levels are 10 though I am not anaemic.

I also have a few of the other symptoms mentioned by many of you i.e. hair loss, palpitations, chest pain.

I have had many visits to the ENT over these last 4 years but nothing has been found regarding my ears. My doctor, however, insists that my problems are because of my ears, I was initially diagnosed with Labrynthitis then Vestibular Neuronitis. I am beginning to wonder if all my problems have been down to having low iron reserves due to all the stuff I am reading on this board.

I have been taking liquid iron for a couple of months now but do not feel any different. I know it takes a while to get into the system and I know I am probably not taking enough. I have been taking liquid iron, six 5ml spoons per day, each spoon has 7mg iron in it. I have changed this to taking one slow release capsule which has 24mg in it plus two spoons of the liquid stuff. Does this seem ok? I am taking a brand called Feroglobin and I am terrified to overdose on this stuff! Is it really ok to take more than the recommended dosage listed on the packet?

Also, those of you who have suffered dizziness, at what level was your ferritin when you stopped experiencing these symptoms? I live in hope!!!

Thank you.


Mac2
Mac2--Welcome to the boards!!

You are not on near enough iron to replete your stores of 10 (which is borderline/no iron stores) whether you are anemic or not. Anemia is the final end stage of iron stores and you are very close. This may be a lot of your problem. There is only one way to find out and that is to replenish your stores and see if the symptoms self correct, if not, you will know to look elsewhere. It's a long hard road for some, so try to be patient.

I think that you will feel much better if you get more iron. I now take 150 mgs of elemental iron daily to replenish ferritin stores, was on 300mgs when anemic. You should ask for a script or find an iron that is higher and easy on the GI tract verses some harsh OTC irons that can make some people really sick.

It is so worth the oral iron therapy, I cannot express to you the difference in your "quality of life" if this is from low stores. I started feeling better and having energy but fatigue remained at a 20ish ferritin. Every time my ferritin raised, I felt even better.

Whenever you have low iron levels along with another underlying condition I think that this condition may become worse. Sometimes you have more than one thing going on and will only know why when you rule out the iron problems. Best of luck to you. Keep us posted. FLFLOWERGIRL:)
hi,i too have this horrible vestibular stuff,i feel disconected from life and myself,foggy hazy eye feeling,cognative issues,buzzing in the head,floaty, ,anxiety,(which is caused by the symptoms),i feel clogged up in my face ,kinda behind the eyes,and also some mild pain with it.ive also had a few attacks of vertigo in the past.i also have a low ferratin..which was 20 about a month ago. dropped from 43 in the space of just over a month..the first time i discovered this iron problem it was at a level of 7.and after a few months of iron treatment my cog fog certainly improved hugely.the recent drop caused me to feel horrendusly unwell ,with all the above symptoms coming back stronger than ever,plus sleeping for hours after the slightest exertion plus depression to boot. I do not know if the low iron causes these symptoms,as they first came on after a rapid prescription drug withdrawal some years ago.But i do know for sure that with my still sensative cns if my iron gets low these symptoms intensify massively.The problem with this vestibular stuff,is that what is already a mine field in terms of looking for causes etc,is made even more of a minefield by not being able to think straight while you are trying to work it all out!
i occasionaly have days where all these syptoms seem to mirraculasly dissapear,and i have the total luxury of being able to see life through clear eyes,which makes me wonder if there are other triggers also.Does anyone else have "days off"?:confused:
[QUOTE=Mac2;3803973]Hi

I have been reading through the posts and see that a lot of people with low ferritin levels also suffer dizziness and balance problems.

I have suffered these problems for years now and every time I catch a virus my problems escalate. (Maybe because my body is trying to dip into my iron reserves which are just not there?) My ferritin levels are 10 though I am not anaemic.

I also have a few of the other symptoms mentioned by many of you i.e. hair loss, palpitations, chest pain.

I have had many visits to the ENT over these last 4 years but nothing has been found regarding my ears. My doctor, however, insists that my problems are because of my ears, I was initially diagnosed with Labrynthitis then Vestibular Neuronitis. I am beginning to wonder if all my problems have been down to having low iron reserves due to all the stuff I am reading on this board.

I have been taking liquid iron for a couple of months now but do not feel any different. I know it takes a while to get into the system and I know I am probably not taking enough. I have been taking liquid iron, six 5ml spoons per day, each spoon has 7mg iron in it. I have changed this to taking one slow release capsule which has 24mg in it plus two spoons of the liquid stuff. Does this seem ok? I am taking a brand called Feroglobin and I am terrified to overdose on this stuff! Is it really ok to take more than the recommended dosage listed on the packet?

Also, those of you who have suffered dizziness, at what level was your ferritin when you stopped experiencing these symptoms? I live in hope!!!

Thank you.


Mac2[/QUOTE]

You may also want to get your thyroid(TSH, Free T3, and Free T-3 and antibody tested). When I problems started about 4 years ago, it was due to anemia. I had heavy periods, bleeding ulcers and having 5 kids over the years ran my system down. No doctor ever tested me for anything until I was at death's door. I was finally dx with hypothyroidism, ulcers, and heavy period, and absorption problems which I do not absorb iron or vit at all.
It is a shame that you have to be almost dead for doctors take you seriously.
I also had sinus problems and finally had sinus surgery. I still have dizziness when I my sinus acts up. But my ENT told me that my eyes are not connecting signals to my brain. Also found out that I have herniated c spine disc which also causes dizziness. The only thing that works really well is half a Xanax for the dizziness. My ENT says it helps to calm the nerves in my head/ear.
Your ferritin should be at least 50 according to my hematologist. My hair stops falling around 70. The only way I can get enough iron is by infusion. You may want to get your basic test at your PCP but a hematologist can help you with your iron. They know more about ferritin levels than a PCP.
hi mac.i stop feeling dizzy at around 40 and above.tho I still have other symptoms mildly. I recently got up to 57.the highest its been,for around 18 months.i was ok there,but know I could have felt bettter.
frankly,this ferratin / period stuff is starting to get me down big time,and i wondered if anyone has the problem of their ferratin constantly going up and down due to extremely heavy & irregular periods?i have been on iron for about 18 months ,yet even with the suplimentation after every bleed,i am left pale,& ill, the change in me after yet another period is quite dramatic.does anyone else expierience similar issues?I have bled heavily for ten days,after the feratin result of 57 and feel terrible now,am breathless,anxious,(even though i am quite happy!)low energy,foggy headed,aches and pains ,wobbly , head & sinus pain,digestion stuff.
this is all so tedious,as its very disruptive to my life...i am hoping to find a salution in the merena coil soon..would so apprieciate any feed back..
[QUOTE=tibby2;3898715]hi mac.i stop feeling dizzy at around 40 and above.tho I still have other symptoms mildly. I recently got up to 57.the highest its been,for around 18 months.i was ok there,but know I could have felt bettter.
frankly,this ferratin / period stuff is starting to get me down big time,and i wondered if anyone has the problem of their ferratin constantly going up and down due to extremely heavy & irregular periods?i have been on iron for about 18 months ,yet even with the suplimentation after every bleed,i am left pale,& ill, the change in me after yet another period is quite dramatic.does anyone else expierience similar issues?I have bled heavily for ten days,after the feratin result of 57 and feel terrible now,am breathless,anxious,(even though i am quite happy!)low energy,foggy headed,aches and pains ,wobbly , head & sinus pain,digestion stuff.
this is all so tedious,as its very disruptive to my life...i am hoping to find a salution in the merena coil soon..would so apprieciate any feed back..[/QUOTE]


Hi Tibby i am goining to have the coil fitted too in a couple of weeks, i am hoping it will stop the bleeding which the docs say is the cause of me losing iron. I only bleed heavily for 2-3 days but they say it is enough to make the difference.
[QUOTE=Mac2;3899249]Hi Tibby2

Nice to hear from you. I don't know if you have picked up on my other posts but my ferritin which was tested a couple of weeks ago after taking supplements for 5 months was only up to 22! I am still feeling like c*** and have been off work for 4 weeks with terrible dizziness and balance problems. Life sucks! Can't wait to get up to a level of 50 and see if I feel any better.

I think that an attack of Labyrinthitis started all my problems. That lasted six months and occured 4 years ago. I have always, since 13 years old had heavy periods. They used to last seven days but in the last few years have only lasted 3 days but have been really heavy. So, I think my ferritin levels may have been low for years before this attack of Labyrinthitis (ear virus which actually causes dizzines, balance problems, anxiety etc.). Obviously when I got this ear stuff, my body would have tried to dip into my iron reserves to help me recover and they just weren't there. Since I was first ill, I completely changed my diet to a good healthy one with lots of veg, fruit etc. I think this is why I am not actually anaemic. So, the battle rages on - every time I get a silly little cold or something the dizzies take over my life. I also think that this is not still Labyrinthitis (which my docs insist it still is), because a) they have never found anything wrong with my ears, b) I have not suffered from anxiety since the first attack (which is classic with inner ear disorders) and c) it is very rare to keep on suffering like this with Labs (4 years now).


In answer to your question, I have seen it mentioned lots of times that ferritin levels go up and down but I don't know what causes that. I know that when I have my period I am like death warmed up and feel so tired. I'm not good at knowing when I am actually due but I can tell because the day before it comes I am so unbelievably tired. This lasts till a few days after it is over and then I start to feel normal


mac,thanks for replying .It really is such a drag this stuff isn't it..I really find it interesting the way the balance stuff goes with it,i have read a lot of that,& also expierience it..i don't think it has anything to do with ears to be honest.,another thing for the doctors to fob you off with when they just don't have a clue,and don't want to waste time & money on you.they will also say you don't have symptoms with low ferratin,but I have all the symptoms of aniemia,untill my levels come up again.,like yourself,i feel awful,during bleeds and for about a week after,how im feeling is reflected in my palid complexion.. ..my periods went wrong around the time my iron dropped to next to nothing,and I believe its the ongoing defficiency puting them out of whack.it can't be particularly good for us physicaly or mentaly to be defficient for so long.
on a lighter note!i really do think you will feel much better,when your levels get past around 40 or so,like I mentioned,at 57 I felt so much better.i think a level of 100 & over would be optimal though.seems like a long way away at the moment.!good luck with getting your levels back up mac.
[QUOTE=Mac2;3903999]Hi Tibby2

I felt really off again this morning but better this afternoon. My symptoms are as follows

1. Dizziness
2. Balance problems where I feel I am going to fall over
3. Fatigue
4. Palpitations on and off
5. Brain fog
6. Headaches
7. Itchy skin
8. allergies - I don't know if this is connected
9. asthma worse



yes,Mac,.severely. but i think it started from the drug withdrawal.I was so bad I had to shuffle along the walls to get from one room to the other .couldn't go out some days etc.. I have the double whammy of that & the low iron.. these days I feel fine except for around & on my period,since I began the iron. I rarely get particularly dizzy now...but have noticed it slightly the last few days. because of rediculas bleeding. I know for sure its down to that .i get all your symptoms apart from the asma
even itchy scalp sometimes. I also go really pale on & around my period ,& breathless,anxious,bloating,& spaced out,oh also blood sgar issues... its a joy eh mac.! I am feling a bit better today...oh & don't know about you,but my body seems to respond to the iron better if I take it at the same times evey day & always with some form of vitality c....
Hi there, and welcome.

Sorry to hear that you are feeling so tired. Having low ferritin will give symptoms of fatigue amongst other things and if yours is low then this is probably the problem. Many doctors do not even bother that you are low but if you look on these boards many of the girls here do not feel better till they get their levels right up. Can you get in touch with your doctor and ask what your ferritin level was? They will have the actual figure and it would help you to see where you stand. Mine was at 22 last time I was tested and my GPs seem to think that this is ok - I think otherwise and have told them I want my levels up to at least 60 or higher. They haven't got a clue!!

Obviously if you have had B12 shots in the past, they all go hand in hand, so if you are not keeping your iron levels etc up on a regular basis, and by that I mean maintenance dose after taking iron supplements for a while, then you will probably dip back down again and your symptoms will be ongoing. Do you include iron rich foods in your diet?

I don't know if there are any specialists as such for this but I think it is largely commonsense and self treatment which get us all by!

Take care

Mac2 x





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