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Hi

I have been reading through the posts and see that a lot of people with low ferritin levels also suffer dizziness and balance problems.

I have suffered these problems for years now and every time I catch a virus my problems escalate. (Maybe because my body is trying to dip into my iron reserves which are just not there?) My ferritin levels are 10 though I am not anaemic.

I also have a few of the other symptoms mentioned by many of you i.e. hair loss, palpitations, chest pain.

I have had many visits to the ENT over these last 4 years but nothing has been found regarding my ears. My doctor, however, insists that my problems are because of my ears, I was initially diagnosed with Labrynthitis then Vestibular Neuronitis. I am beginning to wonder if all my problems have been down to having low iron reserves due to all the stuff I am reading on this board.

I have been taking liquid iron for a couple of months now but do not feel any different. I know it takes a while to get into the system and I know I am probably not taking enough. I have been taking liquid iron, six 5ml spoons per day, each spoon has 7mg iron in it. I have changed this to taking one slow release capsule which has 24mg in it plus two spoons of the liquid stuff. Does this seem ok? I am taking a brand called Feroglobin and I am terrified to overdose on this stuff! Is it really ok to take more than the recommended dosage listed on the packet?

Also, those of you who have suffered dizziness, at what level was your ferritin when you stopped experiencing these symptoms? I live in hope!!!

Thank you.


Mac2
Hi

Thanks for your replies.

StephRabin, I also get the head pressure and palpitations. I was sent to a counsellor in the early days because my GP said it was all anxiety (which I knew it was not), and she dismissed me after 20 minutes and said I was definitely NOT suffering from anxiety!!! GPs are too quick to label people instead of just listening for once! When you say you feel better with your ferritin at 28, does your dizziness actually go at this stage? I can cope with all the other symptoms but this dizziness affects your life an awful lot! If I could just see the light at the end of the tunnel it would be so good!

FLFlowergirl, can you tell me exactly which Iron you take? And what is this 'elemental' iron that you all talk about? Sorry to seem so ignorant!

Rainbows End, that could be a good idea, as I do think that my problems may be solely down to not absorbing iron from my diet properly as I have eaten a very good diet for the last few years and should really be getting enough iron from the food I eat.

Could you enlighten me as to what this celiac is, thank you. Four years ago when I started with all this dizziness/balance problems I was quite ill with severe diahorrea, and lost two stone in weight over a few weeks. Since then (I have managed to pile all the weight back on!!!), but never have properly formed stools (sorry to be so graphic).

Take care

Mac2
[QUOTE=Mac2;3803973]Hi

I have been reading through the posts and see that a lot of people with low ferritin levels also suffer dizziness and balance problems.

I have suffered these problems for years now and every time I catch a virus my problems escalate. (Maybe because my body is trying to dip into my iron reserves which are just not there?) My ferritin levels are 10 though I am not anaemic.

I also have a few of the other symptoms mentioned by many of you i.e. hair loss, palpitations, chest pain.

I have had many visits to the ENT over these last 4 years but nothing has been found regarding my ears. My doctor, however, insists that my problems are because of my ears, I was initially diagnosed with Labrynthitis then Vestibular Neuronitis. I am beginning to wonder if all my problems have been down to having low iron reserves due to all the stuff I am reading on this board.

I have been taking liquid iron for a couple of months now but do not feel any different. I know it takes a while to get into the system and I know I am probably not taking enough. I have been taking liquid iron, six 5ml spoons per day, each spoon has 7mg iron in it. I have changed this to taking one slow release capsule which has 24mg in it plus two spoons of the liquid stuff. Does this seem ok? I am taking a brand called Feroglobin and I am terrified to overdose on this stuff! Is it really ok to take more than the recommended dosage listed on the packet?

Also, those of you who have suffered dizziness, at what level was your ferritin when you stopped experiencing these symptoms? I live in hope!!!

Thank you.


Mac2[/QUOTE]

You may also want to get your thyroid(TSH, Free T3, and Free T-3 and antibody tested). When I problems started about 4 years ago, it was due to anemia. I had heavy periods, bleeding ulcers and having 5 kids over the years ran my system down. No doctor ever tested me for anything until I was at death's door. I was finally dx with hypothyroidism, ulcers, and heavy period, and absorption problems which I do not absorb iron or vit at all.
It is a shame that you have to be almost dead for doctors take you seriously.
I also had sinus problems and finally had sinus surgery. I still have dizziness when I my sinus acts up. But my ENT told me that my eyes are not connecting signals to my brain. Also found out that I have herniated c spine disc which also causes dizziness. The only thing that works really well is half a Xanax for the dizziness. My ENT says it helps to calm the nerves in my head/ear.
Your ferritin should be at least 50 according to my hematologist. My hair stops falling around 70. The only way I can get enough iron is by infusion. You may want to get your basic test at your PCP but a hematologist can help you with your iron. They know more about ferritin levels than a PCP.
[QUOTE=Mac2;3903999]Hi Tibby2

I felt really off again this morning but better this afternoon. My symptoms are as follows

1. Dizziness
2. Balance problems where I feel I am going to fall over
3. Fatigue
4. Palpitations on and off
5. Brain fog
6. Headaches
7. Itchy skin
8. allergies - I don't know if this is connected
9. asthma worse



yes,Mac,.severely. but i think it started from the drug withdrawal.I was so bad I had to shuffle along the walls to get from one room to the other .couldn't go out some days etc.. I have the double whammy of that & the low iron.. these days I feel fine except for around & on my period,since I began the iron. I rarely get particularly dizzy now...but have noticed it slightly the last few days. because of rediculas bleeding. I know for sure its down to that .i get all your symptoms apart from the asma
even itchy scalp sometimes. I also go really pale on & around my period ,& breathless,anxious,bloating,& spaced out,oh also blood sgar issues... its a joy eh mac.! I am feling a bit better today...oh & don't know about you,but my body seems to respond to the iron better if I take it at the same times evey day & always with some form of vitality c....





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