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I went last week for my Ferrlecit last Thursday. When I got there the nurse kept staring at me while she accessed my port. She said she wanted to draw blood because I didn't look right and I was breathing to hard. I was planning on asking her about it but I was waiting until I caught my breath. Anyway, my HGB was back down to 6.9. So, my hematologists PA came in to talk to me, she told me I had to go for a transfusion, which I knew. She also wanted to talk to me about seeing a OB about a hysterectomy. I don't want to do that. I wanted to have another child but I am not sure if I can or should. Have any of you had a child while severely anemic? How difficult is that? I don't know what to think about this.

Next issue, I went in for the blood transfusion on Friday. I had been feeling like crap for so long now that I hardly notice anymore but for the past couple of weeks it has been worse. The "normal" stuff, SOB, fatigue, fast heart rate, palpitations, dizziness and the like has been more troublesome. I felt bad all through the transfusion and the nurse said several times that she didn't like my vitals. My pulse ox was hanging around 92 my BP was 93/62 and heart rate was 112. Then there was the fact that even after lasix between units of blood, I still didn't have to go to the rest room. They did let me go after the transfusion but told me to call my hematologist on Monday morning.

I made it out to the lobby of the hospital and sat down and waited for my mom to get the car. Then it started. I got so dizzy I couldn't see anything and it was like tunnel vision, like right before you pass out completely, dark around the edges and spinning in the middle. I got sweaty and my heart was racing and I couldn't breathe well at all. My mom came in and went for help. Half way to the ER I started freezing. Thank God they didn't make me wait, one nurse said to wait but the one that brought me down said she didn't think I should. They hooked everything up and took vitals. My heart rate was 188, BP 62/44 and pulse ox 72. It was a mess and I felt so bad I didn't care about anything, and couldn't think at all. After several tests it was discovered that my white count was over 150 thousand. They did blood cultures and x rays and all that. So, now I know that I am, once again, septic. This is the third time since April. I don't understand how this keeps happening.

The good news is that the spot they found on my lung is connected to this latest bought with sepsis. However, now my hematologist is nearly certain that I have leukemia. I had the bone marrow biopsy on Wednesday. It's better than lung cancer though.

Now, my hematologist has given me this list of things that I cannot do or be exposed to. No going out in public, no being around animals, no dusting, no laundry, no construction sites or anything that might have germs or bacteria. I am supposed to use lots of Lysol and hand sanitizers. He seems scared to death that I am going to get sick again. He says he's worried because I am still getting over sepsis and anemic and I have a high WBC and my vitals are still not right and I ended up coming home from the hospital with a cold. Oh, and my kidneys are not working well because of the sepsis and possible damage from long term anemia.

I am 38 years old. I don't think I can do this forever. I hope I don't have to but it is starting to look that way. Has anyone else had to deal with anything like this stuff? I hope not.

Thanks,
*~D





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