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hello "e"

I feel like I can relate to you.I'm in menopause so I know it seems to have brought on most of my symptoms and health related problems.

I get monthly B12 injections...it really does help.If I don't get them I get "whacky".Do you give yourself a B12 shot every month?Mine wears off after 10 days it seems.My diet isn't that great either.but I noticed that since I've been having a lot of cereal(Special K) with skim milk(I have asthma and I can't tolerate whole milk)I seem to feel a lot better.Did you know that the change in your levels of estrogen does deplete your B12?I don'ttake any HRT,but it doesn't matter....the fluctuations in estrogen that happen in menopause really takes a toll on your B12...and so many other things.

So you have GERD?You probably don't have esophageal cancer....but I know how easy it is to think we have what other relatives in our family have/had.My dad died from lung cancer(he was 64)and my gram died from stomach cancer(she was 83)...so I understand how you feel.

Don't worry too much about what your dr. found...if it was "life threatening" would think the dr. would've had you come in immediately.It's so hard when we have to wait on test results.....I hate waiting.....makes my imagination kick-in thinking about what the tests might show..............even when something shows it seems the drs. second guess their own ability to prescribe the right medication/therapy/treatment........so confusing...and nobody wants to be a guinea pig!

Well your symptoms do seem to point to anemia or low B12 or both.That's probaly what your dr. found on your tests.

I have had swollen glands in my neck for 3 weeks now...so I'm going to the dr. this week...I get acid reflux only once in a great while...I feel like my throat is having spasms...so I hope my dr. can figure this one out.....haha.

Did your dr. check your B12 level and your MMA?Well I guess you'll know what is going on after your dr. visit...I wish you well....nice to meet you~please post back

Scout~
Hi ebrena!

I know all about what low B12 does to the body...and the mind...haha...it's not a pretty picture.Be carful with drinking soda....soda will stop your body from absorbing iron....and potassium(like in cranberry juices)will keep your body from absorbing B12.It was very interestin,but I remember telling my dr. that when I drank cranberry juice I would get extremely weak...of course he didn't have an answer to that.I just came across that info not that long ago...I'll have to "educate" the good doc about potassium.Funny,but my legs would get numb when I ate baked potatoes(I think they have lots of potassium in them too!).but now I can eat them and not get numbness...so weird,isn't that?haha.

How are you doing today?Don't worry you know thursday will be here before you know it.I'm seeing my dr. on thursday too.....he was booked,but they fit me in so I'm thankful for that.It must be because I'm so special(just kidding!).

It's not easy stopping the supplements when youknow you need them,but like you said you don't want them to give a false reading on your blood labs........I feel so badly for you!The fatigue with B12 is so bad...I used to get tired just after brushing my hair or taking a shower....washing the dishes was hard...I'd have to do some and take a break every few minutes.....everything was exhausting...I fet "lazy",but I knew something was wrong,because who can wake up in the morning and feel like you're still tired after sleeping sound all night?I had all the symptoms so I know how it feels.The sore tongue and trouble swallowing and talking,fatigue,pins 'n needles in hands/feet,muscle weakness,confusion,loss of appetite,loss of fine touch,trouble walking,ringing in my ears,asthma,Lhermittes's sign,positive Romberg's sign,urinary incontinence,impaired vibration and position sense,sensory disturbance....I think that's all of them.....such a long list,but I had them all!

So how did your dr. dx you with fibromyalgia?I've read about it,but it seems so similar to so many other health problems.Is the pain very bad from that?

Oh yes the burning tongue...that is definately a low B12 symptoms...mine was very glossy,red and sore....soda made mine burn and even eatting cookies felt like little nails!

Your easy bruising could be from low platelets...low B12 tends to mess with other things like platelets,WBC,RBC...I had a count of 2 on my WBC and platelets were down to 120 and some other things were off range too.Thankfully B12 injections reverses most if not all of the neurological damage that low B12 causes.

MMA is methylmalonic acid...it's a test that shows your MMA level...whenit's high then the dr. knows you have a B12 deficiency at the tissue level.Drs. use that test when you have a low to low normal B12 level which is what I had and they call it a hidden B12 deficiency.Oh yeah my spine hurt soooo bably too...and the dr. said I had sub acute degeneration of the spinal cord which was reversed with the B12 therapy....so much fun,huh?ugh!!!!

Well you must let me know how it goes at your dr. visit thursday...I will be going to my dr. too...so I'll keep you posted on my dr. visit too.

Well take care and just rest as much as you need to.....have a good night~

Scout
Hi Scout, I ended up going to the clinic DR because I needed to know the blood test results-I wanted to give myself my B12 but didn't know if I should. So didn't see my own Dr but did get results and he said my B12 was high which didn't surprise me as it had only been a week since my last injection. My iron is on the low side-not terribly low but enough to make me fatigued plus I have some virus that is going around, they never say the flu - it's a virus. Well it feels like the flu! Any way he didn't give me any counts because he wanted to leave that up to my Dr, I started up my ferrous gluconate iron on my own and cancelled my appt for today with my GP- we are snowed in here so I see him on Christmas Eve day- his receptionist insists on a follow-up with my own Dr, they track me down for these feaking appts that I hate. Every time I go to that clinic I get sicker like I did last time. So between virus and low iron and my thyroid may even be low I haven't had that checked in a long time. I feel I spend my life at the Dr's office and I hate it. I take so much medication for everything it's no wonder I have gerd. I have type 2 diabetes and take 2 metformin twice a day for that, lipitor for high tryglicerides,pantaloc for gerd, altace for high BP, wellbutrin xl and Prozac for depression, 3 inhalers for COPD, fluid pill for BP and HRT to keep my head together and now supplements too. But because of the meds all of it is under control with good levels, without the meds I probably wouldn't be here I'd crash into a coma! ha!

I got diagnosed with fibromyalgia a few months ago although I know I have had it for years. I hate the stigma of fibromyalgia so I say I have a muscle and soft tissue pain but I know my joints are also involved so I think it is arthritis with muscle and tissue pain around the joints. I went to a reumatory specialist to get the diagnoses but I think they like to catagorize women into the "if you don't know call it fibromyalgia" I do believe there is fibro but I hate saying the word because people think it's a hypochondria name. It's very very real and very painful so something is going on.

I have no idea how long the iron will take to make me feel better and I will continue with the B12 shots because I know when my legs ache and my head is foggy and I'm tired it's time but maybe just every month instead of bi-weekly. You are so right about menopause affecting B12 and lots of other things. I keep reminding my husband I am in menopause and he says "so am I" ha! Because he is going through it because of me, I don't notice I am any different but he does.

Have a good day Scout
hi ebrena!

Well I just giot back from my "lovely" drs. visit.....he is an idiot fr sure.I didn't get my B12 shot,because he diudn';t put it into the darn computer..so now I have to wait 'til Dec.29th.Plus I have a sinus infection(that's why my glands are swollen and my throat is beet red!!!!).So now I have to take an antibiotic(erythromycin..which depletes B12....Great,Huh?)and I'm sure I'll be half dead from that.I just want to cry me a river....I'm looking for a new dr....I can't take this crap anymore....it's like the dr. Knows I need B12 and just flat out Forgets to put my B12 shot in the computer and the idiotic nurse says "she can't disturb him while he's with another patient!)....So Much Fo Caring.

Thanks for letting me Vent~

Did you know metformin depletes B12 too?So that's good you take B12.You have a lot of health issues...I know how you feel!!!!My husband has to "put up with me" too,but I told him I'd gladly trade places with him...he can have the hot sweating and mood swings and all my neurological problems...that will be the day...ha!

Well I'm just going to Forget about that dr. visit or I'll stress myself out.....and it's not worth it.

I know what you mean about taking all the meds to just feel "normal".My problem is I'm Allergic to almost Everything!!!!!The dr. also forgot to order me my inhaler...so now I have to call them back.....I'll make sure I tell them to Have A Nice Day!

We are in for 12 to 14 inches of snow tonight....YUCK!We went to the store after the drs. so we have enough food and everything if we get snowed in.

I know what I want for Christmas....A New Doctor!!!!!!!!!! I'm Serious!

Do you get muscle fasiculation with the fibromyalgia?Just wondering,because I get them in my ankles and feet and sometimesmy calves.Then I get a deep,penetrating,dull pain sometimes in the top of my right foot or in an area of my shins....but my dr. knows Absolutely Nothing About Nothing!!!!

My tongue is so sore...I know it's from my low B12,but now I have to wait another 8 days for a B12 shot.I think I'll just go buy some sub~lingual B12......or I'll be in a coma too!!!!

I hate going to the drs. too and I know why,because mine doesn't care about me.

Well at least you got your B12 results,but sometimes what the blood level shows isn't a good source for what's at the tissue level...that's why the MMA test is way better.Anyways thanks for posting your news~~~~sorry I am such a big crab today,but I really am glad you posted...makes me feel like I'm not the only one tired of not feeling well and having to put up with drs.

Take care ebrena~
Scout
Hello Flowergirl thanks for responding to my post-I actually do have Hashimotos Thyroid I have had it for about 20 years right now I am taking 100mcg synthroid daily. However this exhausted feeling is very similar to thyroid tired as well. My aunt is also Hashimoto Thyroid and she was getting so tired, one day after work she was putting her running shoes on to force herself to go for her walk- she woke up an hour later on the carpet-one shoe on and one shoe in her hand! That's a tired thyroid!! I can actually fall asleep listening to my husband talk-wake up later and my lights on, my glasses are on and hubby is sleeping in his reclyner by then! I am going to mention to my Dr when I go back to recheck my thyroid it has bee a while as my blood sugars. Oh yippee

Hi Scout, it's good to vent so vent all you want. In Canada I can by my B12 injectable from behind the drug store counter and I give it to myself in my hip. Sounds awful however to me it is better than in the thigh like I was orignally shown at least in my hip I can't see whats going on and it doesn't really bother me. Can you buy it behind the counter in the US? I will continue the B12 because a lot of the meds I take affect B12 and it may have been high on the test but I had only just give myself 2500ml a week before so it would still be in there.

I just came off of 5 days of erythromycin for a sinus/chest infection however I think it is a viral because I still have sinus and a cough-oh I do get so tired of being a slug due to my health. I know I am in good health compared to other people that's for sure- I guess I just miss the energy and enthusiasm I no longer have. There are a few meds I take that deplete B12 so I will continue with it; I'm not sure what muscle fisculation means but if it means spasms- not really-I just have constant muscle pain mostly on my upper chest, back, shoulders, head, arms and hips-it will usually affect one side only and it is a roaming pain-like it could be my neck today and my hip tomorrow. I did go for nerve conduction tests to see if it could be neurapathy from diabetes but it only showed a minor amount in my legs to my feet. When I went to the rheumy specialist he poked at some of the "tender point's" and I think if you have 18 or more tender points they class you as fibromyalgia. Look up Fibromyalgia and see if you can find a diagram of the body that shows the tender points for fibromyalgia-it can limit you very much if you go into a flare like sometimes up the back of my head will be so tight and sore I can't turn my head and it hurts constantly till it goes somewhere else. I was given 2 different prescriptions that I didn't like because they made me so tired and also made my head more foggy than it already is. So I take Celebrex with noraflex or I'll take Tylenol 3's alternatively because I don't like taking NSAIDS all the time. If I am not sore I don't take anything, where as the meds for fibro need to be taken daily up to 3 times a day-I don't like that.

You are cranky Scout because you don't feel well and you can't even get to see your Dr. Have you had your thyroid checked? It is so common in woman our age-men do get it but more often it's women who suffer all the silly ailments forever and the men just get it over with quick. Most men don't go to DR's I know my husband doesn't. He is so patient with me though I have to say that, he can tell when I am not well. I early ritired from my longterm government service 3 years ago to lok after my sick mom besides I was so done in with the job it was time. Now I think I would like to go to work, but if I think too much I have to go lie down!

As for the lack of good Dr's and awful medical system it's scary! I seem to get a different Dr everytime I go I don't know who my Dr is.
ebrena--Oh yes, I think that it's time for you to see a specialist. At least get all of the thyroid issues in order, otherwise you will not be so successful with all the other things whether they are related to thyroid or not as a cause. I have read that if your iron is out of balance that so is your thyroid. When I was going to doctors they all said make sure that your thyroid is checked, but we were checking it all the time. My doctor was leaving my TSH too high and I thought that it was okay. If you have Hashi's your TSH should be a 1. I am at 4 something. Now, I have muscle aches and joint pains, have already seen another specialist for that and he said, I don't have those things as RA and such. I also had a Dexa scan and all is normal. So, I think that it is thyroid related. You really ~need~ to check out the book The Thyroid Solution by Dr. Arem. Cytomel a T-3 medication along with a combo of Synthroid is what this doctor uses. Many people on the Thyroid board take this form of therapy. I am finding out that some doctors do not agree with this practice and you have to find one that does. Nothing is easy is it? I take 75 Synthroid and have had Hashi's for 5 years now. I can't imagine how I would feel if I had it for 20 years like you. They say the longer that you are Hypo the symptoms become much worse. Never once had a problem other than a little more tired than a normal person (liked to sleep), a little hair fell out, nothing I couldn't live with. Now, since my anemia, I hurt and feel old when I use my muscles. The crazy thing is my doctor keeps telling me no thyroid is not the cause but ALL of my books tell me different and Fibro IS related to Hypo-T, infact, they say that it actually is secondary to Hypo. So you see, someone is incorrect here. I would suggest that you pop over to the thyroid board plus use the search box for Cytomel and read what is being said. You may even want to post for a doctor where you live that may use this form of meds. I'm in the same boat as you so keep on going. Anemia and low ferritin is just a symptom ~OF SOMETHING ELSE~ not a condition or disease in and of itself. FLFLOWERGIRL:)





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