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Ferritin going up
Dec 30, 2008
flowergirl,ferritin has gone up to 58 from 37 sinse august, like you i still feel tired but dont drag myself around like i did when ferritin was 12, they diddnt check b12,so i dont know if that has gone down, we will have to see who can get to 70 first as we are both at 58 LOL,al the best shirley.
floewrgirl it took me two years to get ferritin to 58.my periods are not so heavey these last few months even though gyn said UFE diddnt work,as fibroid is stiill the same size and should be dead,i have an appointment on the 21st jan to see about hys,my friends laugh at me saying im going to be top and tailed as i see the nuero on the 6 jan,if i dont have any luck with neuro i will purchace b12 from the net,for people with low b12 do you have problems with slow digestion it takes about 8 hours for my food to digets its been like this for a coulpe of years,i get that i dont want to eat becouse of this,my gp has given me some tabs,but said try not to take them all of the time,just another symptom to add to many,all the best shirley:wave:
moommin - firstly congratulations on getting to 58 ....... fires the starting gun for the moommin and FLFLOWERGIRL ferretin race to reach 70 :bouncing:

Like you ladies, my ferretin took forever to rise and like you moommin my digestion was woeful. My doctor did a stool analysis where they check to see what you are not digesting eg: protein, carbs or fats. I wasn't digesting protein correctly due to insufficient digestive enzymes provided by my pancreas. Looking back, i think my ferretin began climbing faster once my digestive enzymes took effect. My enzymes are prescription only. Years ago i had tried over the counter enzymes but they weren't too effective. I think they are more for people with minor problems.

Also like you moommin, even when my ferretin had rise i was tired all the time. Actually i got even more tired than when i was anemic!! It was at the start of this year i was diagnosed with a thyroid condition and poor adrenal function. So my tiredness stems from those issues.

It's a good idea as FLFLOWERGIRL said to keep an eye on your B12 too. Also have you had a gluten intolerance test done? gluten can cause all kinds of symptoms or no symptoms at all. Being gluten inolerant or full blown Celiac has in a lot of people stopped their ferretin from rising and some have ended up being anemic. Once they eliminated gluten from their diet they almost didn't even need to supplement with iron as their iron moved up of its own accord.

While you are at it, get your Vitamin D levels checked out. So many people are low in that and it's important for healthy bones among other things.

Happy New Year ladies and looking forward to another interesting year on the Anemia board :)
dublin,im still having trouble posting,i think most of us on this board has had anxiety its convinsing doc that you have a reason for it,irisheyes,i was reading some of your posts,apart from the ms are symptoms sound the same,i had low iron due to fibroids migrains after periods,body numbness and twiching short of breath and palps memory promlems,fatiege,and so on,my b12 was 227 5 months ago,dont know what it is now couse doc wouldnt do another,said it was good ? i am going to see a neurolagist today to see if he can help me ,i have got a list of symptoms,im scared becouse if he dont help me im back to squar one,i would like my life back shirley:)
My neurologist explained that B12 deficiency works on your nerves more than iron deficiency anemia does. B12 is necessary for brain function, if you don't have it you've got problems. I would demand that my physician give me B12 shots if I were you. If he won't, then find one who will or take them yourself.
As for the nerves problem, B12 deficiency can literally cause something called megoblastic psychosis, I think that is correct, that is a mental illness caused by the deficiency. My neuro said anything under 600 was too low for someone with my symptoms. I am so convinced that B12 changed me I have applied for full time jobs and told Soc Sec Disability that I won't be needing it any longer. Please convince whoever you have to that these symptoms are not in your head and it's not necessarily depression. I was told that too. Took Zoloft for years till it made me fat and sicker. Finally I was told I was not depressed but defiecient.
[QUOTE=irisheyes39;3840557]My neurologist explained that B12 deficiency works on your nerves more than iron deficiency anemia does. B12 is necessary for brain function, if you don't have it you've got problems. I would demand that my physician give me B12 shots if I were you. If he won't, then find one who will or take them yourself.
As for the nerves problem, B12 deficiency can literally cause something called megoblastic psychosis, I think that is correct, that is a mental illness caused by the deficiency. My neuro said anything under 600 was too low for someone with my symptoms. I am so convinced that B12 changed me I have applied for full time jobs and told Soc Sec Disability that I won't be needing it any longer. Please convince whoever you have to that these symptoms are not in your head and it's not necessarily depression. I was told that too. Took Zoloft for years till it made me fat and sicker. Finally I was told I was not depressed but defiecient.[/QUOTE]
hi can only do short posts,as im not being re directed,went to euro she was great did all tests,said i diddnt have ms,told all my symptoms said they could be from a few things but some from migrain and carpol tunnel did blood tests for graves and b12,i told a lie about b12 and said my sisster had deficency,also did other tests,flowergirl if you are around can you help,they are U;E LFT ,ANA, ANCA,DSDNA, ENA,PS DOC SAID B12 SHOULD ALWAYS BE CHECKED i diddnt tell her thst my doctors have checked mine and said they wrer fine,lets hope she thinks differently keep your fingers crossed shirley:)
Hello,my b12 reading was 584.0. It was not flagged in my results only my ferrition levels was so i presumed my b12 was ok. Does anyone know what levels are correct for b12? My ferrion levels was 19 about 1 month ago and since taking ferrous sulphate 200mg 3 times a day the only noticable diferencs is i have slightly more energy some days and my hair has stop falling out so much,depression,anxiety,weird thoughts,panice takes,vision problems etc (could go on forever) are still quite bad? Im going back to docs on friday to another doctor so fingers crossed he can sort this out. x
hi,different labs have different ranges,mine was 180. 900.hear in the uk some doctors wont treat you until you go under range,thats if they can be bothered to do b12 blood test,i have read on this board that people have been treated if thire b12 is under 400,it depends where you live,and if you have agood doctor,your b12 dont look to bad, ,keep taking your iorn,it could take months for you to feel better,when i first started taking iron my friend came to see me after a week and said i thought you would look and feel much better you have been taking iron for a week,but i was still having heavey periods so the iron i was taking was goi,ng down the toilet,i have learned the hard way,its not a thing you can rush,shirley:):)
Charli - you mentioned in an earlier post that you were diagnosed as hyperthyroid? With your eye issues, are you sure you might not have or be at the start of Graves? Usually the people who have Graves have more of a tendancy to have the eye issues.

I'm hypothyroid and have Hashimoto's. Before medicating me, my doctor double checked that i didn't have Graves too, as some people are unfortunate to have both Hashimoto's and Graves. Talk about bad luck!!

No matter what thyroid problem you have, most of us share a lot of similarities, such as the low ferretin, low vitamin D, gluten intolerance, lower B12 and also either low/high iodine levels.

It's normal to feel depressed or down when you are having more than likely multiple health issues or being low when it comes to certain vitamins/minerals. Also if your T4 for your thyroid is lower than it ought to be, that alone can bring on depression and antidepressant meds wont be of any value.

The other thing to look into is adrenal fatigue. I used to think it was only my ferretin i had to worry about, but once it began rising and i was still tired, i found out later that i had adrenal fatigue and my adrenals were not making sufficient of the hormone Cortisol. Some people's adrenals make too much Cortisol and this is bad too.

I was speaking to a doctor at my local medical centre and he said people with underactive thyroid have a tendancy for higher cholesterol, while those who are overactive have more of a tendancy for high blood pressure.

At the end of the day there aren't distinct symptoms for one particular illness and as you likely are aware, so many illnesses share similar symptoms. With your ferretin, i believe waiting one year to get restest is WAYYYYYY too long. My previous doctor was testing me every 3 months. My new thyroid doctor retests my ferretin every 6 weeks when he retests my full thyroid panel as he's still tweaking my thyroid meds.

With the B12 it's better to be at the higher end of the scale. My dad was only 21 off of rock bottom and his gp told him he was fine. I ended up buying some sublingual B12 tablets for him to take each day. A lot of doctors don't care and you are just a number to them. This is why boards like this are terrific and you can learn so much from other people's experiences.

All the best and hope you feel better soon :)





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