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Re: B12?
Jun 11, 2009
so i went to the doc today..
she wouldnt dmit tht my ferretin ws low.. she said it ws nothing to worry about because im not aneamic and becasue the level fluctuates anyway. but she did agreee that it had dropped quite a lot since last year, so shes given me some b12 tablets and ferrous fumate to try for a few months, and agreeed to retest my levels. she also didnt retest my thyroid as she sid she would on the last blood test becsue it was normal last years and she said it rarely changes. but she has greed to test it again when i have my b12/ferretin rechecked, and i will be sure to get a copy of the results this time.
i asked her about absorption issues and she said my inflamed intestine could have affected the absorption of iron a bit, but said its normally due to periods, and mine have been getting heavier again lately but i dont know why.

so basically all i can do is take the pills for a few months to see if my levels go up and if theres any improvement in symptoms... if this doesnt work ill recheck my thyroid, but if thats normal then i really dont know whats causing my illness. Fingers crossed that this works. im also going to have to keep an eye on my periods... they used to be very heavy before i went on the pill, but they were a lot lighter and less painful for the past few years... in the past 6 months ive had spotting and theyve started to get heavier again... im still on the pill so the doc says my hormones should all be balanced so i dont know whats casuing the period problems... shes suggested an internal exam in the past...
Re: B12?
Jun 30, 2009
help wanted:(-- Hi there! :wave: I have a friend that was diagnosed with low B-12 and iron without a cause found. She also has very heavy periods but this doesn't effect the B-12. Her GYN told her to go on birth control until her ablation and she bleed like crazy from the pill and had to go off it. It also took her a while to have a some what normal cycle. Her ablation was not successful either. They want her to repeat it. That is usually the first step. In your case you are waaayy too young for this procedure which makes it even more difficult for you. Perhaps your thyroid will reveal something. This same friend was told that she didn't have a thyroid problem because her numbers were normal and I sent her to another doc for a trial dose of synthroid as a chance because her symptoms were the same as mine and she ended up having a goiter that her original doc missed. So you have to really know your symptoms and labs. First, you really need to get your B-12 up and see how you are feeling. Take care and do keep us posted. We are thinking of you! FLFG :)
Re: B12?
Oct 1, 2009
What you need to do is keep at it with the iron supplements. It's taken me over 3 years to get from 8 to 89 with quite a lot of set backs along the way. I can't afford to go a day without my iron supplements.

Secondly, are you on sublingual B12? That is the surest way to get your numbers up and i think FLFLOWERGIRL made that suggestion to you ages ago.

Thirdly, no, TSH is not a thyroid panel test and TSH is useless in most cases. My TSH was normal for 9 years and i had Hashimoto's the whole time.

For thyroid you must request this: TSH, Free T3, Free T4 and Thyroid Antibodies. You actually need to say that you want these specific test to your doctor. Dont just walk in and say you want a thyroid panel test or a thyroid test as all they ever do then is a TSH test and nothing else.

With your ferritin being up to 37 you should be feeling much better, but if there are other things which are low, such as your B12, or thyroid issues, that can be causing your recurring symptoms. B12 tablets or multi B tablets wont do the trick. You need sublingual B12 to get anywhere fast.

Have you checked your vitamin D levels? they are likely low too.

Have you had a gluten intolerance test as a lot of people appear to be intolerant to gluten and that also causes havoc with ferritin and other things.
Re: B12?
Apr 16, 2010
Hi everyone...
Sorry but im going to have to drag this thread up again as things have still not improved for me, infact, they are worse. My anxiety and depression is worse than ever becasue i cannot get answers for why i feel so ill. I am really on my last legs, if i dont get well soon, well... theres no point me being here.

Ive had all the basic tests - everything is always normal.
The only thing that shows up to me is that ferretin and b12 are always low normal. I took iron and b12 tablets and they levels went up a bit but i felt no different. My b12 seems to flutuate between mid 200s to low 300s wether im taking pills or not.

Tried every IBS med theyve thrown at me and nothing has worked. Had all sorts of xrays, ultrasounds, nothing was found.

My doctor keeps implying its in my head and basically just asks me what i think it is when i go in... wont even suggest any new avenues to try. she also tries to say i have health anxiety.

I have been on anti depressants for around 18 months now, and apart from taking the edge off the panic attacks, they havnt done anything. Surely if that doesnt prove my problems arnt DUE TO the anxiety or all in my mind then what will? There has to be something else casuing it. Doc has only done fairly basic tests and becasue these were 'normal' i apparently feel like hell for no reason? Whatever she says... i know this isnt right.

Im 22 years old i should be out having fun living life.. instead i spend everyday on this constant foogy dream depressed anxious state feeling so tired i could die.

Things im still considering from all my research...
- Thyroid - she still has only tested TSH (which is always normal) and says becasue this is fine my thyroid is fine... i know i need T3, T4 etc tested!!

- Auto immine diseases

- Dysautonomia

- CANDIDA (she refuses to ackowledge this exists)

- mitochondrial diease

- CFS - this seems to be what theyre leaning towards but when i saw the specialist she was wary of diagnosing it bcasue she thought it could be more of a digestive problem. im going back to see her soon.
- also need to consider viruses that could cause CFS such as epstein bar, hhv6 etc (as they dont really know what casues CFS yet or how it works) - it ould just be the symptoms of something else.

- Adrenal fatigue,lyme disease have been suggested to me.

- hormone imbalances (she wont test this as im on the pill so she says they should be balanced..rubbish!!)

- some other digestive problem they havnt found... maybe something to do with absorption.
...and i dont know how much the b12/ferretin is conributing to my problems.
Does anyone have any thoughts on that?
My latest b12 was 335 which is better (havnt taken pills for ages) and ferretin was 23 which still isnt great.

I have ruled out..
ceoliacs, whaeat and dairy intolerance, chrons, blood count, calcium, blood glucose and liver and kidney function is fine. Rheumatoid factor was normal.

Would love some support and suggestions from you guys.. i've got nowhere else to go.

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