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Mar 16, 2009
hi everyone...
ive been feeling ill for years now and have been visiting all sorts of doctors and specialists over the last year and still havnt found an answer.

severe digestive problems - very noisey/gurgly stomach/ bloating/ mucus in stool /always hungry /food cravings

always exhausted... no energy, feel like im going to fall asleep (worst; in the afteroon normally) cant walk up a flight of stairs without getting out of breath. cant get up in the mornings, sleep for hours and still wake up tired

anxiety/panic attacks and depression (caused by all of the health problems)
easliy embarrassed, difficulty talking to people/social anxiety

dizzyness/ my balance isnt so good/ feeling 'out of it' all the time... strange vision; like the contrast of light is turned up.

chronic post nasal drip

cold hands & feet... i get hot or cold very easliy, if its a little bit cold or a little bit hot. i sweat a lot and when i get a bit cold my hands and feet go white/purple like theyre draingin of blood.

used to have very heavy painful periods, which was solved by going on the pill a couple of years ago, but for the last 6 months ive been spotting in between periods... doctor wants to do an internal exam.

now... ive been diagnosed with 'functional bowel disorder' to explain my digestive problems... im doing a series of food eliminations and then there are several tablets i have to try to see if i can get rid of it... but i dont think its as simple of that.

my question really is what is casuing all the other symtoms.. in particular the fatigue. im just so tired all the time, it isnt right.

ive had sinus xrays, digestive ultrasound, stool tests, urine tests
full blood count, ferretin, b12, glucose, h pylori, ceoliacs, basic thyroid, liver function, and a blood test for something to do with muscle inflamtion.
they all came back normal.

the only one im concerned about is b12 as it was 272 (this was 6 months ago) which i think is too low from everything ive read. but seeing as its in the normal range that doctors give, my doctor is dismissing it and disagrees with eveything i say about it. she says that because my FBC was normal and i my red blood cells are the right size i cant have b12 deficiency. but my symptoms do fit it, and id like to have more b12 related tests.

id also like to get my hormone levels tested becasue of the period problems and becasue i have other symptoms pf hormon imbalance like excess hair and spots. but my doctor says my hormones will be balanced becasue im on the pill.

ive seen 2 doctors now and they just seem to think its all down to the depression and just give me more anti-depressants and treat it like a therapy sessions, rather than talking about more tests or my physical symptoms.

i dont know what to do now... could it be b12? should i push for more tests? is there anything else i should try and get tested?

i'm desperate fro some input, thanks.
Re: B12?
Jun 11, 2009
so i went to the doc today..
she wouldnt dmit tht my ferretin ws low.. she said it ws nothing to worry about because im not aneamic and becasue the level fluctuates anyway. but she did agreee that it had dropped quite a lot since last year, so shes given me some b12 tablets and ferrous fumate to try for a few months, and agreeed to retest my levels. she also didnt retest my thyroid as she sid she would on the last blood test becsue it was normal last years and she said it rarely changes. but she has greed to test it again when i have my b12/ferretin rechecked, and i will be sure to get a copy of the results this time.
i asked her about absorption issues and she said my inflamed intestine could have affected the absorption of iron a bit, but said its normally due to periods, and mine have been getting heavier again lately but i dont know why.

so basically all i can do is take the pills for a few months to see if my levels go up and if theres any improvement in symptoms... if this doesnt work ill recheck my thyroid, but if thats normal then i really dont know whats causing my illness. Fingers crossed that this works. im also going to have to keep an eye on my periods... they used to be very heavy before i went on the pill, but they were a lot lighter and less painful for the past few years... in the past 6 months ive had spotting and theyve started to get heavier again... im still on the pill so the doc says my hormones should all be balanced so i dont know whats casuing the period problems... shes suggested an internal exam in the past...
Re: B12?
Oct 1, 2009
Hi guys, me again!

time for an update as im still getting nowhere and am really sick of it now.

ok so my ferretin went from 67 last year to 20 this May. Doctor wasnt bothered as it was within the normal range. but i pursuaded her to prescribe me iron tablets which i took for a few months... and my latest test result (18th Sept) my ferretin had gone up to 37, still not great. as for the b12, it started off at 272, then 280 and has gone up to 301 (18th Sept) after a few months of b12 tablets . Someone mentioned earlier in the thread about my folate level... that was 6 in may and is now 4.3 ( range 2-20)

Ive also talked about the possiblity of thyroid problems with some of you. i dont know what my last test results were as i was just told they were normal, but i asked for a full thyroid panel at my last blood test, and all thats in the results is serum TSH which is 2.3 (range 0.10 - 5). So this is normal aswell.

I dont really know what to do now..
my b12 and ferretin levels still arnt at a high enough level for me to know if they are casuing my fatigue.
I dont know whats causing the levels to be low. The last time i went to the doc she said that everything was normal and asked me 'what else i thought it mite be'.. basically trying to convinve me theres nothing wrong.
Im still having period problems.. havnt been for an exam yet, but she doesnt seem very interested in investigating that.
Only benefit i got from the apendix removal is not having the odd day of diabling stomach pain that i used to get. but still get all the other digestive problems, fatigue, temperature sensitivity, vision disturbances etc. Ive been on anti depressents for several months now which help control my anxiety a bit, but im getting more and more depressed each month of not getting better.

HELP! what should i do now?
thanks guys x
Re: B12?
Oct 1, 2009
What you need to do is keep at it with the iron supplements. It's taken me over 3 years to get from 8 to 89 with quite a lot of set backs along the way. I can't afford to go a day without my iron supplements.

Secondly, are you on sublingual B12? That is the surest way to get your numbers up and i think FLFLOWERGIRL made that suggestion to you ages ago.

Thirdly, no, TSH is not a thyroid panel test and TSH is useless in most cases. My TSH was normal for 9 years and i had Hashimoto's the whole time.

For thyroid you must request this: TSH, Free T3, Free T4 and Thyroid Antibodies. You actually need to say that you want these specific test to your doctor. Dont just walk in and say you want a thyroid panel test or a thyroid test as all they ever do then is a TSH test and nothing else.

With your ferritin being up to 37 you should be feeling much better, but if there are other things which are low, such as your B12, or thyroid issues, that can be causing your recurring symptoms. B12 tablets or multi B tablets wont do the trick. You need sublingual B12 to get anywhere fast.

Have you checked your vitamin D levels? they are likely low too.

Have you had a gluten intolerance test as a lot of people appear to be intolerant to gluten and that also causes havoc with ferritin and other things.
Re: B12?
Apr 16, 2010
Hi everyone...
Sorry but im going to have to drag this thread up again as things have still not improved for me, infact, they are worse. My anxiety and depression is worse than ever becasue i cannot get answers for why i feel so ill. I am really on my last legs, if i dont get well soon, well... theres no point me being here.

Ive had all the basic tests - everything is always normal.
The only thing that shows up to me is that ferretin and b12 are always low normal. I took iron and b12 tablets and they levels went up a bit but i felt no different. My b12 seems to flutuate between mid 200s to low 300s wether im taking pills or not.

Tried every IBS med theyve thrown at me and nothing has worked. Had all sorts of xrays, ultrasounds, nothing was found.

My doctor keeps implying its in my head and basically just asks me what i think it is when i go in... wont even suggest any new avenues to try. she also tries to say i have health anxiety.

I have been on anti depressants for around 18 months now, and apart from taking the edge off the panic attacks, they havnt done anything. Surely if that doesnt prove my problems arnt DUE TO the anxiety or all in my mind then what will? There has to be something else casuing it. Doc has only done fairly basic tests and becasue these were 'normal' i apparently feel like hell for no reason? Whatever she says... i know this isnt right.

Im 22 years old i should be out having fun living life.. instead i spend everyday on this constant foogy dream depressed anxious state feeling so tired i could die.

Things im still considering from all my research...
- Thyroid - she still has only tested TSH (which is always normal) and says becasue this is fine my thyroid is fine... i know i need T3, T4 etc tested!!

- Auto immine diseases

- Dysautonomia

- CANDIDA (she refuses to ackowledge this exists)

- mitochondrial diease

- CFS - this seems to be what theyre leaning towards but when i saw the specialist she was wary of diagnosing it bcasue she thought it could be more of a digestive problem. im going back to see her soon.
- also need to consider viruses that could cause CFS such as epstein bar, hhv6 etc (as they dont really know what casues CFS yet or how it works) - it ould just be the symptoms of something else.

- Adrenal fatigue,lyme disease have been suggested to me.

- hormone imbalances (she wont test this as im on the pill so she says they should be balanced..rubbish!!)

- some other digestive problem they havnt found... maybe something to do with absorption.
...and i dont know how much the b12/ferretin is conributing to my problems.
Does anyone have any thoughts on that?
My latest b12 was 335 which is better (havnt taken pills for ages) and ferretin was 23 which still isnt great.

I have ruled out..
ceoliacs, whaeat and dairy intolerance, chrons, blood count, calcium, blood glucose and liver and kidney function is fine. Rheumatoid factor was normal.

Would love some support and suggestions from you guys.. i've got nowhere else to go.

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