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My hematologist called me today and my ferritin and iron levels and Saturation % were all up.

Here's the comparision from July 08 when I was told I had a problem to now after being on 300 mg poly iron since November 18.

Ferritin: July = 5, April = 40
Iron: (35- 170) July = 25, April = 55
%Saturation (20 - 55) July 5, April 16 (this is up but still not normal)

She said my B12 level was good as well as all others and will mail me a copy of the report. It was a quick conversation without time for any discussion other than she said reiterated what she said at the office vists yesterday that it was okay to stop the iron and see her in 6 months unless I have a problem.

I'm a bit confused and disappointed. From what I 've read here from you guys a 40 ferritin is not that great but she seems to think it is. I do have to admit that I've been feeling better than I did last winter and spring but what is to prevent my levels to fall again since we do not know what caused the drop in the first place? I had a colonoscopy and capsule endoscopy which were all clear and I am postmenopausal with no bleeding since my last period in May 2006. Celiac blood tests were negative. I do take 40 mg of Nexium twice a day to control my GERD and prevent erosive esophagitis from returning so maybe they are the problem.

Hematologist did suggest that perhaps I should ask my GI to do another upper endoscopy since I still experience reflux. She also expressed suprised that my GI also prescribed prescription Pepcid. She said why are you taking 2 of the same medicines? I said isn't one a PPI and the other an H2 blocker which from what I read are two different categories of drugs to treat upper digestive issues. She kind of agreed but I felt like she didn't really. (Duh? who went to med school?) :rolleyes:

I have not see my GI for an office visit since August when I was squeezed in to see her because of the low blood levels. I had a regular follow-up visit originally scheduled for the day before my c'scope but she cancelled it when I saw her in August. I then saw her in October for the c'scope and got a form letter with the results and got my capsule endoscopy results over the phone from the NP. I know it is my fault and I should have made an appointment because she's certainly not going to call me up and say "hey how are you doing Susie?" Wouldn't that be a hoot? :eek: Then I would be the one "looking like a deer in the headlights"!!! I needed a refill for my Nexium in January and called the office and it was done - I thought that might cause a phone call that I needed to come in and see the doctor but it didn't. So I guess I should call tomorrow although she probably won't have anything available for 3 months but I do want and need to see her. I'd like to have another upper endoscopy to check on the polyps in my stomach and intenstinal metaplasia seen on my Sept 07 scope which she said was nothing to worry about. I may have to tell a little white lie and exaggerate my symptoms to convince her however. :p

Oh well I do have a previously scheduled follow-up with my GP on April 29 so I guess I'll discuss the situation with him but he will probably defer to what the hematologist says.

Well, I am really whining now and I'm beginning to get bored re-reading my own comments so I will sign off for now before I bore you to tears.

I do appreciate your listening and suggestions. Thanks so much!





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