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Hi, there are other drugs out there and I don't remember the names. The dr mentioned chemo.
Yes, my husband had jaundice. He also had rapid heart rate, extreme exhaustion and dizziness. His low cholestrial went sky high and his tummy is still bloated. His is aquired also. When he had his spleen removed, the doctors expected to find non-hodgkins and did biopsies and a bone marrow test. All negative. He is still checked every 4 months.
Prior to having his spleen removed he was hospitialized for another hip replacement. He was extremely jaundiced then, very low blood pressure but he still refused a blood transfusion. It took a month for him to feel semi-normal. Other than some dizziness he feels pretty good. Oh and he takes the B12 and folic acid and wears a medical alert wrist bracelet.

Curiously, what are the other options to having the spleen removed? Cortisone is something I would not consider but as I have yet to learn what treatment as there are more tests I'm having at present. It may be that mine is an acquired auto-immune haemolytic anemia as I also have CTCL [cutaneous t-cell lymphoma] which has been linked to this type of anemia.

Did you husband's earlier symptoms include jaundice, pale almost grey pallor as well loss of appetite, high cholesterol, fluid retention especially around stomach area, fatigue?
hi MEL52, thanks for letting my know the symptoms your husband had which has been diagnosed.

For myself, unless I have a firm diagnosis, it's just a maze of symptoms that could apply to any other condition [although the liver is suspected] and that's an irritating situation to be in as sometimes there's not sufficient testing carried out leaving one in limbo.

In fact, 6 years ago, after receiving many misdiagnosis' when my skin in certain areas came out in red/browny patches, I decided myself to research further and eventually found skin symptoms similar to what I had and coupled with an instinctive conclusion that it might be mycosis fungoides [cutaneous t-cell lymphoma] a non-hodgkins condition. I suggested this to my doctor who took it from there. That is not say that I blame the doctors for misdiagnosis, as CTCL is still quite rare so some dermatologists do not have that experience of this disease. Fortunately, I have been relatively clear of CTCL for 3 years. I suppose one could say the event of the internet has been a blessing in aiding others in their research.

All the best....
Diana


[QUOTE=Mel52;3965229]Hi, there are other drugs out there and I don't remember the names. The dr mentioned chemo.
Yes, my husband had jaundice. He also had rapid heart rate, extreme exhaustion and dizziness. His low cholestrial went sky high and his tummy is still bloated. His is aquired also. When he had his spleen removed, the doctors expected to find non-hodgkins and did biopsies and a bone marrow test. All negative. He is still checked every 4 months.
Prior to having his spleen removed he was hospitialized for another hip replacement. He was extremely jaundiced then, very low blood pressure but he still refused a blood transfusion. It took a month for him to feel semi-normal. Other than some dizziness he feels pretty good. Oh and he takes the B12 and folic acid and wears a medical alert wrist bracelet.

Curiously, what are the other options to having the spleen removed? Cortisone is something I would not consider but as I have yet to learn what treatment as there are more tests I'm having at present. It may be that mine is an acquired auto-immune haemolytic anemia as I also have CTCL [cutaneous t-cell lymphoma] which has been linked to this type of anemia.

Did you husband's earlier symptoms include jaundice, pale almost grey pallor as well loss of appetite, high cholesterol, fluid retention especially around stomach area, fatigue?[/QUOTE]





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