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RickinTampa - hi and welcome to the boards. Firstly, i've never had infusions, only injections so i can't help with the infusions. I did want to say though that it might be better if you began a new thread for your post and give it a title in relation to the infusions and that way you can get all the people who have had infusions to help you out. You will get a lot more responses this way too.

As for your daughters anemia, has any doctor ever done thorough range of testing to see why your daughters ferritin keeps dropping?

Does she have any form of internal bleeding?

Has she had a blood test and even better still a biopsy of her small intestine to check for gluten intolerance/Celiacs?

Has she had very heavy menstrual cycles?

Is your daughter a strict vegetarian or have a diet lacking in protien, paritularly meats?

Anemia can also be linked to thyroid problems as this disrupts the digestive process and leads to malabsorption of nutrients. This is my problem and my pancreas doesn't produce sufficient enzymes to digest protein foods either. It wouldn't hurt for her to get a full thyroid panel tested eg: TSH, Free T3, Free T4 and Thyroid Antibodies.

If her ferritin is low, get her B12, folate, zinc and vitamin D tested. I bet some of those could be low too.

From what i've read on these boards, there are many forms of anemia. I'm not familiar with them all, but know certain ones are linked to low B12 levels or an intolerance to gluten.

I think if it were me, i'd want to know why am i anemic. I used to think at first that with anemia all i had to focus on was getting up the ferritin levels, but realise now that most often anemia is simply a symptom of something else which is going on.

Good luck with your daughter's health.
[QUOTE=Audrey-B;4112435]RickinTampa - hi and welcome to the boards. Firstly, i've never had infusions, only injections so i can't help with the infusions. I did want to say though that it might be better if you began a new thread for your post and give it a title in relation to the infusions and that way you can get all the people who have had infusions to help you out. You will get a lot more responses this way too.

As for your daughters anemia, has any doctor ever done thorough range of testing to see why your daughters ferritin keeps dropping?

Does she have any form of internal bleeding?

Has she had a blood test and even better still a biopsy of her small intestine to check for gluten intolerance/Celiacs?

Has she had very heavy menstrual cycles?

Is your daughter a strict vegetarian or have a diet lacking in protien, paritularly meats?

Anemia can also be linked to thyroid problems as this disrupts the digestive process and leads to malabsorption of nutrients. This is my problem and my pancreas doesn't produce sufficient enzymes to digest protein foods either. It wouldn't hurt for her to get a full thyroid panel tested eg: TSH, Free T3, Free T4 and Thyroid Antibodies.

If her ferritin is low, get her B12, folate, zinc and vitamin D tested. I bet some of those could be low too.

From what i've read on these boards, there are many forms of anemia. I'm not familiar with them all, but know certain ones are linked to low B12 levels or an intolerance to gluten.

I think if it were me, i'd want to know why am i anemic. I used to think at first that with anemia all i had to focus on was getting up the ferritin levels, but realise now that most often anemia is simply a symptom of something else which is going on.

Good luck with your daughter's health.[/QUOTE]

Thanks Audrey. Yes... I will start a new thread. Good idea.

As for the daughter... Yes. She's had tons of blood tests, cat scans, ultrasounds, upper GI, etc. and so on. We're still waiting on the results of the celiac test. Besides that, everything's come back normal. I don't know that they've done any thyroid tests though. That's something I'm going to look into. So thank you for that tip!





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