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Anemia Message Board

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I was diagnosed with anemia in 2008 and received a series of iron transfusion of 8 within a few months. My hemoglobin was 9.4 and reached up to 11. My hemotologist has run every test that can be done to find why I go up and down with RBC,WBC, and Platlet count. I become short of breath, chest pain, weakness,leg cramps, hair loss, confusion,short term memory loss, ached all over,headache,urinary tract infection and yeast infection back to back, irritable, fall asleep sitting up and at times was feeling so bad had to lie down.In Sept 2009 got a call from Family Physician after an office visit and reporting these symptoms to her and was told my Hemoglobin was 8,1 and one week later had got down to 7.1. I went to my hemotologist and he ordered 3 units of blood and I received them on October 1, 2009. I underwent a bone marrow biopsy and it showed not a thing. He then said I am just not absorbing iron from diet and there are no medications I am taking causing this. I was eating 12 to 16 cups of ice a day. It seems I had developed another symtom of anemia. It is called Pica. After the blood transfusions it went away and I got all the way up to 10.4. My hemoglobin went down in December 2009 to 9.3 and in 4 days dropped to 8.1. I was given 2 units of blood on December 16,2009. It helped andI got back up to 10.6. I started feeling tired again and some of the symtoms were returning but not as severe s back to the hemotologst and I am 9.4 again. He at that time gave me an injection of aransp to help rebuild red blood cells and I feel some better. I hav had complete Cardiac testing, GI endoscopy and even swallowed a video capsule to take over 300 pictures of GI tract.I had CT scan from my neck down to pelvic area and nothing. I have ,IBS Gastritis ,GERD and 6 positive hemocults of stool in a perod of 10 days. I have Intersitial Cystitis of the Bladder and arthritis in back, hands ,knees,neck and fingers. My platelet count has dropped down to 101, hem. 9.4 and WBC 3.4. Still we have no answers. I am so depressed because the treatment options come with alot of side effects and risk. My Dr. has left no stone unturned. Anyone else going through this? I am 60 yrs old and ready to quit any treatment. Iron overload is a concern as well as the injections of aranesp and the FDA warning of this drug.

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