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[QUOTE=wanglin;4254787]I have had 2 iron IV infusions (don't get confused with transfusion) and am set up to have my 3rd in about three weeks. This has been over a 3 year course. My Ferritin levels went from 165 last August to 32 a week ago, so my body is still not naturally absorbing iron even thought I take 1 Icar tablet each day. My white blood and red cells are below normal levels and my hemaglobin is low as well. I am still very frustrated about the hematologist not knowing why I can not absorb iron after every test inthe book(Bone Marrow, Pill cam, endoscopy, colonoscopy, smear tests). The PA last visit said, " I guess we'll just write it off to your cycle as the issue" and I immediately told her NO Way as my cycles are not heavy. I truly think it is a heriditary auto immune disease since my sister appears to be anemic as well without answers. I hope that maybe something will stand out in your blood work to give your doctor a direction to take.

On the first visit you can expect a great nap as they feed you benedryl in case your body reacts to the iron in a allergic way. I have not had an allergic reaction and feel pretty normal afterwards, just groggy fromt he benedryl. The only other thing to watch out for is bad headaches, and lower back pain or joint pain because your body is trying to absorb a large quantity of iron all at once. Cheers to IV Iron![/QUOTE]

Thanks for the response and for the correction about infusion rather than transfusion! Rookie mistake!! LOL! The info you gave me was REALLY helpful. I have a couple of questions, tho, other than the headaches and back/joint pain, did you notice that overall you felt better right away? Honestly, I don't feel ALL that bad. Tired, yes--but I think I've been this way for so long it doesn't really slow me down or stop me from doing what I've always done as far as chasing after my family. BUT once I get home, I see that I am TIRED and it's not a normal tired... I really, REALLY tired, but I don't sleep well, it is really strange. :confused: So there's not a ton of motivation to get out and exercise and that's what I'm hoping this iron will do for me. Help me to feel better all around that I WANT to exercise and feel better!

I am so sorry that they're not able to get to the bottom of your iron problems; that IS so frustrating. My gastro doc did the same thing--"it's because of your period" and "you're cold all the time because you're a woman, women are generally colder than men; it's not anemia related". Frustrating. I hope they can get it figured out for you. Do you by any chance take Nexium? I am really hoping that's the main cause of my anemia and this will just "go away" if I am able to stop taking it.

I hope to hear back from you :wave: and thanks again for taking the time to post an answer! You don't know how much I appreciate it!

**Jonnstar--I will look into this! Thanks for your responses, also! So helpful.

Well, I went back to the hematologist today and I can NOT believe how right on everyone that posts on this board is!! Well, actually I can, but I am REALLY IMPRESSED!! :) The doc ran tons of tests on my blood and along with my low hemoglobin, hematocrit, MCV, MCH and ferritin, I am also on the low end of B-12. There was also some inflammation in my system and since I'm not in a flare with my ulcerative colitis, she said there may be just enough inflammation somewhere in my intestines (possibly) that is causing some malabsorbtion problems. She also said one of the main reasons I MAY have iron deficiency anemia is because of the Nexium! I told her that I was on a message board that suggested that may be the reason already (you guys are good)!! LOL!! She switched me from Nexium to Zantac and I'm going to try that for a few months to see if my "iron" numbers start to rise. She also said a multi vitamin was also necessary (something I ALSO learned here from all of you that posted!). I am just so impressed with all the knowledge you all bring to these message boards, it felt so good to be able to talk to my doc and have her validate all the info you have all given me. I brought a whole list of info I learned here to talk to her about.

She didn't have my ferritin numbers today, but will have them by tomorrow and if they've dropped since my last visit, I WILL have to go in for more IV iron; she'll just try something different and hope I don't have a reaction (a different "brand", I guess, that instead of going in for a 4 hour treatment every few months, I would go in once a week for 5 weeks and it would be about an hour each time).

I now also have to start taking 1000 mg of B12 daily. I'll have to go read up on all the B12 posts. Don't know what to expect with this, if I'll have trouble with my stomach or not...

One quick question, tho, when you all take your multi vitamin, do you take it with food or without. I had so much info given me today, I can't remember what she said. If I remember correctly she said I could take it at bedtime. Does that sound right?? Maybe she said take the Zantac at night? I always take my Nexium in the morning, so I think that's when I'll take the Zantac, but any info anyone can give me will be much appreciated.

Again, I can't thank you all enough. You have been such a blessing to me as I go thru this journey. It really helps to have people respond and want to be helpful!! You are all awesome and I appreciate you so much!


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