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My Ferritin was 3 and total iron was also 3 --- the doc told me Ferritin is important - some of the iron numbers aren't as useful to the doc I guess. Took oral supplements and it went up to 16 but the doc still said that could cause my joint pain... started IV iron infusions Venofer because I couldn't tolerate the oral ones. After 3 rounds it went up to 87 --- but I still feel crappy, tired, --- joints were still hurting. Rheumatologist dx'd me with Fibromyalgia and CFS because the Ferritin is up and my joints still hurt. He thinks it's unrelated. So he put me on Effexor and Tramadol for the FM - which has completely helped my pain... but the exhaustion continues. Had my 7th round of Venofer today and asked the NP if I should be feeling better - she said yes, most people feel better after round 5. GRRR. I'm not that hopeful now that this is working. My Hcg was 9.2 and my HCt was 31 even though my iron was up to 87 - so it did not effect my other numbers and my platelets continue to climb - they were in range in June, Nov was 418 and Feb 482 --- over 400 is high.
I don't know what to think about anything. Have to wait for 10th round to be completed. She keeps talking about Myelodysplastic Syndrome. Do you know anything about this?





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