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[QUOTE=AmyD26;4267449]I have been extremely anemic my entire life. Multiple doctors have not found the reason for it.

My current lab results are:

Ferritin: 2
Hemoglobin: 8.2 (this is the highest it's been in a long time!)



My new hematologist wants to do venofer infusions. However, I had this 2 years ago, and after finishing the treatments, my levels only went up slighty (and I was still considered anemic). I had a few side effects last time, and frankly, I do not want to go through it again. He says this is my ONLY option.

I do not know where to go next. No one can find the reason for the anemia, and I feel that he venofer is going to be a waste of time (and money!). Physically, I feel fine. (I can't run a marathon, but I can do a mile a day plus chase after 3 kids without getting fatigued). The dr. says that with my numbers so low just walking should have me out of breath. So I seem to be doing ok.[/QUOTE]



Hi Amy, I can relate to you. I too have low levels of blood. My hemoglobin a 7.3 and my ferritin 3. I've been through the IV infusions. Started with Venefor and reacted to it so he stopped it immediately. Then I continued my infusions with Ferrecit for about 3 months. Stopped because I started to react negatively as well with back and shoulder pains. I just refuse to go through it again. I stopped seeing my doctor for a good 2 months and I'll be going back next week to hear about other options. I'm feeling tired again and my doctor is afraid of a heart attack because with levels so low, there's not enough oxygen supply to the major organs. However, my thing is if I've survived this long and never dropped then I can't stop now. I've always been on the go my whole life. I don't know what other options can possibly be, but I will share it with you when I find out since your doctor says there are no other options. : )





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