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Hi .. this is my first time posting ..
My ferritin level is also at 4
my hemo is 9.3
tired doesnt begin to describe the symptoms that suddenly
came apon me .. i felt like i was going to faint and never wake up ..
i had vaginal pain, bladder pain
overwhelming weakness and fatigue
shaky, pressure in my head
tightness in my shoulders,
mouth/gum pain
eye pain /dryness
dizziness -
overwhelming fear/anxiety
my abdomen/intestines began to swell,
elevated fever
back pains / leg pains

went to er room/was given a rosefin shot
put on flagyl / levaquin .. all thinking i was
having a bout of stomach infection ..
I even had a cat scan ..
urine bacteria checked ..
all negative ..

but it wasnt until my internist told me i was anemic
and i started to read this board
did things start to make sense

i wasnt until i was told to increase my tandem plus 4x daily
and b12 injection once per week
by my hemotologist that i began feeling slightly better ..

im scheduled for an infusion this wednesday ..
i think i can make it there ..
right now, i still get very tired
but it is NOTHING like it was before ..
at least now i can do things without
thinking im not going to make it ..

i felt more tired with a 9.3 hemo then I did with
i was 6.0 .. 2 years ago .. maybe its because my
ferritin was higher then, not sure ..

i had gastric bypass in 2000 .. i never ate well
never had dumping syndrome so i never stopped my bad
eating habits .. BUT NOW .. i will ..
no more coffee and apple crisp all day ..

i never want to go through that experience again ..
It frightened me .. my body was breaking down ..
i looked gaunt in the face and my eyes look like
cows eyes .. every fibre in my body ached terribly ..

now i eat right, i even take black strap molasses ..
i am conscious of heme and non heme eating
and i eat iron enhancers not inhibitors ..
i have to take miralax to handle the 4 tandem iron tabs
but its okay ..
my gi pain from the iron isnt really that bad ..

all of this transpired within the last 2/3 weeks ..
i did a complete 180
i want to regain my life ..
even though i have a pile of medical bills coming ..

i have kids i want to enjoy ..
if anyone is interested .. ill keep you posted
in the infusion after effects ..
i expect pain after the infusion, i had it before ..
but i want my energy back ..
prayerfully its coming ..

im glad this is an arena for me to express my fears
and feelings about my anemia ..
its been horrible the last few days ..
ill get better, im determined ..
bye guys ..
Hi Guys ..
I had my infusion this past Wednesday ..
though im not completely back to normal
i am significantly better ..
it took a total of 6 hours ..

i can drive and not feel exhausted ..
i can spend the day outside and not feel exhausted ..
im tired yes, but it isnt remotely close to what it was ..
everyday i feel my strength increasing ..
but i can tell it is still an uphill battle ..

i will still take my oral iron ..
i never want my numbers to drop off so significantly ..
especially since i have iron absorb issues ..
im trying to juggle the miralax and the calcium
both which inhibit iron absorb is still a slight issue for me ..

still feeling vaginal pain ..
since all tests cat scans, ultra sounds, etc were negative
we are leaning toward vaginal dryness due to natural
estrogen decreasing ..
the constant pain is sooo irritating ..

i refuse to use estrogen creme ..
i dont want to risk the side effects ..
i want to try the natural route ..
but so far nightly iv had to take pain meds because the
irritation is wayy to unbearable ..

sadly at times you trade one level of discomfort for the other ..
thank u for letting me share and vent ..
PlasticPetals ..

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