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Hi there, just to say that your symptoms are very similar to mine. My iron levels just over a couple of months ago were a bit low with a ferritin of 4. I have been on iron tablets 3 x daily going on 11 weeks with no improvement. I am due to see a neurologist. I experience pain throughout my body (muscles and skin) every day. Don't give up, it takes time to find the answer. Clare x
I feel for you. I guess everone describes things differently. I have perceptual 'distortions'. The easiest to describe is plain tinnitus. However, I also have visual disturbances, am sensitive to light, and virtually feel pain with fluorescent lights (not to mention way out of it). This could well be like the brain fog you describe, but I don't know.

And the cold! I live in a warm climate, although it's winter. I'm so cold all the time, especially in the extremities. This in itself makes me feel awful. Get warm. Get under a rug for a while. It can really help!

I was very anemic 8 years ago and had two iron infusions. I thought once my hemoglobin came into the normal range, things should be OK. That was not the case. It took me 4-5 months to feel better again.

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My ferritin levels were extremely low, and only came up to 30 after 4 months. The above explains why. I looked back at my records and now see that although my hemoglobin came up, the mean cell volume took a long time to come up and I continued to have microcytic anemia for quite some time.

Also, I think it is absolute nonsense to look at population ranges for blood parameters. My hemoglobin is normally about 15. It is now about 12.5. That is very low for me. It's a fallacy to think that just because Hb is within population normal range, it's OK. It's a form of ecological fallacy: basically, incorrectly reasoning that anywhere in a large range is 'normal' because people in the population are in that range, and therefore anywhere in this range is normal for a particular individual. Rubbish.

So my experience has been that it can take a long time to get back to genuinely normal *for me*. The ranges on lab tests don't tell any of us what is normal for us as individuals. I'm sure some people feel just fine with Hb of 12. I don't!!





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