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Ladybug;

Please keep us posted on this topic. I am undergoing a similar issue, and I am very curious to hear your diagnosis. I was perfectly healthy about three weeks ago (running almost daily, feeling pretty good). The next thing I know I was dizzy all the time/fainted, etc.

The first time I went to the hospital I was admited with a 6.5 Hemoglobin level and had two transfusions. I left the hospital with a 10.9 and in four days dropped again to 7.7 (where I was again admitted and had another transfusion and an IV Iron Transfusion).

The doctors believe it to be Iron deficiency anemia (my hemotocrit levels have been between 20 - 30), but they can't find any bleeding anywhere (2 endoscopies, 1 colonoscopy), my stools have mostly been negative. My initial bone marrow test so far has shown no indications as to why I have no red blood/iron.

I am getting the results of my capsule test for the small intestine next week and going back to the hematologist for the full bone marrow results. If it isn't internal bleeding or a bone marrow issue I don't know what to do next-- the docs are clueless on what it could be (celiacs was ruled out too).. I just can't move on with my life like this (so tired), so its very frustrating.

Anyway - all the best to you, but please keep us posted -- your levels seem really low, so please take care.

I hate anemia too!
[QUOTE=joawhite;4694247]Ladybug;

Please keep us posted on this topic. I am undergoing a similar issue, and I am very curious to hear your diagnosis. I was perfectly healthy about three weeks ago (running almost daily, feeling pretty good). The next thing I know I was dizzy all the time/fainted, etc.

The first time I went to the hospital I was admited with a 6.5 Hemoglobin level and had two transfusions. I left the hospital with a 10.9 and in four days dropped again to 7.7 (where I was again admitted and had another transfusion and an IV Iron Transfusion).

The doctors believe it to be Iron deficiency anemia (my hemotocrit levels have been between 20 - 30), but they can't find any bleeding anywhere (2 endoscopies, 1 colonoscopy), my stools have mostly been negative. My initial bone marrow test so far has shown no indications as to why I have no red blood/iron.

I am getting the results of my capsule test for the small intestine next week and going back to the hematologist for the full bone marrow results. If it isn't internal bleeding or a bone marrow issue I don't know what to do next-- the docs are clueless on what it could be (celiacs was ruled out too).. I just can't move on with my life like this (so tired), so its very frustrating.

Anyway - all the best to you, but please keep us posted -- your levels seem really low, so please take care.

I hate anemia too![/QUOTE]

I will be sure to kee you updated! Im sorry you're experiencing the same thing :(

I was also negative for celiac and I'm waiting on bone marrow results to come back - I should find out about those Thursday when I have my next CBC. I'm praying my iron has held its own but I have a horrible feeling its low again..just by the way I feel...and last night my stomach was hurting really bad, noticed blood in my stool later that evening. I notified GI of this and hes considering another colonoscopy if it happens again. I really dread that!

Its hard to think I have to live like this, quite depressing actually! I am absolutely miserable and I feel like nobody in my family understands just how bad I feel. Just because I dont look "sick" doesnt mean I dont feel bad! At the hospital I was sitting in my chair and a nurse came in and looked at me strange, asked where the patient was then proceeded to ask me to raise my arm so she could see my wrist band. I guess I didn't look sick enough to be there! Haha.

I hope we both get answers soon!! I hope you feel better!
Ladybug -- please keep us posted, fluid near the brain is quite a scary diagnosis. Yikes !

5.4 HGL, I think is very low -- I was very surprised you were not in the hospital with that level !!

I had my attack when I was at 6.5 (I feel to floor and couldn't get up, w/my heart pumping like mad). I called the ambulance to pick me up and in the ER they wanted me to get a blood transfusion as soon as possible. When HGL gets too low you are at risk for Organ failure and possibly a stroke b/c your blood is not pumping through your body properly (my sis-in-law is a nurse practitioner and that is what she said, but I am in no way a Dr !). I know I kept having fainting/dizzy spells when I was in the 7-8 range.

I am sorry you are going through this -- its so frustrating and scary ! Luckily my numbers seem to be on the upswing, so I will hope that this continues not just for me, but that the same happens for yourself and others on this board !!
[QUOTE=joawhite;4697329]Ladybug -- please keep us posted, fluid near the brain is quite a scary diagnosis. Yikes !

5.4 HGL, I think is very low -- I was very surprised you were not in the hospital with that level !!

I had my attack when I was at 6.5 (I feel to floor and couldn't get up, w/my heart pumping like mad). I called the ambulance to pick me up and in the ER they wanted me to get a blood transfusion as soon as possible. When HGL gets too low you are at risk for Organ failure and possibly a stroke b/c your blood is not pumping through your body properly (my sis-in-law is a nurse practitioner and that is what she said, but I am in no way a Dr !). I know I kept having fainting/dizzy spells when I was in the 7-8 range.

I am sorry you are going through this -- its so frustrating and scary ! Luckily my numbers seem to be on the upswing, so I will hope that this continues not just for me, but that the same happens for yourself and others on this board !![/QUOTE]

I am very scared, to say the least! :( I just want some answers and I hope Im on the road to finding the problem...

I was admitted to the hospital just a few hours after my pre-op blood work in December when they discovered it was 5.5; they gave me 4 units of blood right away..when I was released it was FINALLY at an 8 but since then it slowly dropped to 5.4 as of 2/18 - dr sent me to er for a blood transfusion and they admitted me again, I just got out last week. I've had 7 units of blood, 2 units of iron since December. I was having a really hard time breathing in december but couldnt figure out why til my blood work came back! I was out of breath just standing or sitting still!

I go to the doctor today for lab work and praying for high numbers or at least the same as they were when I was released.

I hope your numbers keep increasing! :)





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