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[QUOTE=jonnstar;4688739]Try taking your iron (the 65mg tabs) with a 500mg tab of vitamin c - usualy one of each, on an empty stomach, twice a day. A daily Centrum with dinner will help supply all the other bits and pieces the body needs to make blood

Ask for a feacal occult blood test (to make sure you arnt bleeding into your gut)

Given that your heam dropped so fast, it would be prudent to check that this IS just simple iron deficiency anemia, that there isnt some underlying cause.

Very best of luck![/QUOTE]

I had positive occult tests in december, they were negative this weekend. They got my hemoglobin up to 9.1 after three units of blood, 2 units of iron and 975mg of iron pills this weekend...this mornings labwork showed that it dropped back down to 7. They are doing numerous tests but nothing else seems odd, dr still says iron deficiency anemia. I am still in the hospital :(

So frustrating.
[QUOTE=japlopper;4692602]First thing you need to know is that with a B12 level of 347, many drs will say that's fine, BUT in truth, most people need B12 levels 800 or above.

My B12 level was in the 300's when I was having all the terrible symptoms. Luckily my hematologist knew that many patients have trouble when their levels fall below 500. So make sure to push for treatment there.

You didn't list your MCV value. Is that on your sheet?

Your hemoglobin value is very low. I sympathize with you. Get as much rest as you can. Your hema will likely run a bunch of tests to find the reason you're so anemic -- and the waiting is hard, because until they find the problem, you continue to feel bad. I remember that stage. Hang in there.

I hope you get some answers soon.[/QUOTE]



Here are a few more numbers:

MCV 70.7
MCHC 30.8
RDW 18.9
Ok, yeah, so that low MCV number points to iron deficiency. I just browsed through my old test results and when my hemoglobin hit 7.7, RBC 2.78 and my MCV was 85.9 (But the mcv was probably inflated by my B12 and folic acid deficiency).

Anyway, they transfused me at 7.7, because I really couldn't function. Immediatly my hemoglobin went up to 10.8, but it slowly sank back down to 9.

I track all my blood test results in a spreadsheet, because I like to know everything. Sometimes the dr will say something is fine, but I want to know how fine. I want to know if a decrease is a trend, even if it's still in the ok range.

But having had about 8 different hematologists over the last 20 years, I have learned to take control of my condition and I have no problem asking questions. This is the best advice I can give you. They never hassle me about getting copies of my labs. It helps.
[QUOTE=japlopper;4692616]Ok, yeah, so that low MCV number points to iron deficiency. I just browsed through my old test results and when my hemoglobin hit 7.7, RBC 2.78 and my MCV was 85.9 (But the mcv was probably inflated by my B12 and folic acid deficiency).

Anyway, they transfused me at 7.7, because I really couldn't function. Immediatly my hemoglobin went up to 10.8, but it slowly sank back down to 9.

I track all my blood test results in a spreadsheet, because I like to know everything. Sometimes the dr will say something is fine, but I want to know how fine. I want to know if a decrease is a trend, even if it's still in the ok range.

But having had about 8 different hematologists over the last 20 years, I have learned to take control of my condition and I have no problem asking questions. This is the best advice I can give you. They never hassle me about getting copies of my labs. It helps.[/QUOTE]

Thank you for your advice, I really appreciate it! That goes for everyone who has replied.

My arms are so sore and I have knots in my arms from having so much blood work done...it hurts to move my arms :(

Im anxious to meet with the hematologist next week, I am SO ready for some answers!
Ladybug;

Please keep us posted on this topic. I am undergoing a similar issue, and I am very curious to hear your diagnosis. I was perfectly healthy about three weeks ago (running almost daily, feeling pretty good). The next thing I know I was dizzy all the time/fainted, etc.

The first time I went to the hospital I was admited with a 6.5 Hemoglobin level and had two transfusions. I left the hospital with a 10.9 and in four days dropped again to 7.7 (where I was again admitted and had another transfusion and an IV Iron Transfusion).

The doctors believe it to be Iron deficiency anemia (my hemotocrit levels have been between 20 - 30), but they can't find any bleeding anywhere (2 endoscopies, 1 colonoscopy), my stools have mostly been negative. My initial bone marrow test so far has shown no indications as to why I have no red blood/iron.

I am getting the results of my capsule test for the small intestine next week and going back to the hematologist for the full bone marrow results. If it isn't internal bleeding or a bone marrow issue I don't know what to do next-- the docs are clueless on what it could be (celiacs was ruled out too).. I just can't move on with my life like this (so tired), so its very frustrating.

Anyway - all the best to you, but please keep us posted -- your levels seem really low, so please take care.

I hate anemia too!
[QUOTE=joawhite;4694247]Ladybug;

Please keep us posted on this topic. I am undergoing a similar issue, and I am very curious to hear your diagnosis. I was perfectly healthy about three weeks ago (running almost daily, feeling pretty good). The next thing I know I was dizzy all the time/fainted, etc.

The first time I went to the hospital I was admited with a 6.5 Hemoglobin level and had two transfusions. I left the hospital with a 10.9 and in four days dropped again to 7.7 (where I was again admitted and had another transfusion and an IV Iron Transfusion).

The doctors believe it to be Iron deficiency anemia (my hemotocrit levels have been between 20 - 30), but they can't find any bleeding anywhere (2 endoscopies, 1 colonoscopy), my stools have mostly been negative. My initial bone marrow test so far has shown no indications as to why I have no red blood/iron.

I am getting the results of my capsule test for the small intestine next week and going back to the hematologist for the full bone marrow results. If it isn't internal bleeding or a bone marrow issue I don't know what to do next-- the docs are clueless on what it could be (celiacs was ruled out too).. I just can't move on with my life like this (so tired), so its very frustrating.

Anyway - all the best to you, but please keep us posted -- your levels seem really low, so please take care.

I hate anemia too![/QUOTE]

I will be sure to kee you updated! Im sorry you're experiencing the same thing :(

I was also negative for celiac and I'm waiting on bone marrow results to come back - I should find out about those Thursday when I have my next CBC. I'm praying my iron has held its own but I have a horrible feeling its low again..just by the way I feel...and last night my stomach was hurting really bad, noticed blood in my stool later that evening. I notified GI of this and hes considering another colonoscopy if it happens again. I really dread that!

Its hard to think I have to live like this, quite depressing actually! I am absolutely miserable and I feel like nobody in my family understands just how bad I feel. Just because I dont look "sick" doesnt mean I dont feel bad! At the hospital I was sitting in my chair and a nurse came in and looked at me strange, asked where the patient was then proceeded to ask me to raise my arm so she could see my wrist band. I guess I didn't look sick enough to be there! Haha.

I hope we both get answers soon!! I hope you feel better!
I just wanted to update since going to my hematologist...

Dr found nothing to be concerned with and told me to keep taking my iron 3 times a day at 325mg each. I am continuing this and I feel pretty good right now!

If you've followed my recent history, I had a lumbar puncture done for psuedotumor cerebri. I developed a spinal headache and ended up getting a blood patch done two days later. I went to the ER one night because my headache was so terrible and I couldnt get in contact with any of my doctors. A CBC they can two days ago showed my hemoglobin at 10! It was a 9.7 not that long ago. I am so thrilled!!

I hope everyone elses numbers continue to rise as well!





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