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Daisy, please help me if you have found a way with out going thru the blood transfusion... I am so sick and tired of this circle and turning around every 4 months for transfusion.. I cannot live like this! I have had 8 blood transfusions in 2 years, I have fainted 2 times at work! I am 51 and cannot get from the parking lot to the Wal-mart or mall entrance with out stopping to catch my breath.....I take Integra and folic acid. We are about to go thru summer heat (where we get record breaking heat temps., and that makes it really hard to breath!) please email me and give me an example of the reactions you are talking about. I am scared and I need answers. I see a Hematologists... what in the world is the problem they a go thru numerous colonoscopies, and endo's and they cannot for goodness sakes tell me what is going on with my blood? I am not the only person in this world that has they stupid blood-disorder! I pray ALOTand the boat is sinking fast, but I still have to row for shore and pray that there has to be a Life out there Without blood Transfusions! Eight blood transfusions at 4 pints each, I literally have 32 peep's blood running thru my veins!!!! Pretty scurry thought huh?

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