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Hi,

her diet is varied, she is not a massive eater but doesn't do to badly. I even tried her with some steak on saturday and she enjoyed it! I have been giving her green vegetables and an iron supplement added to fresh orange juice as i have been told vitamin c helps the body absorb iron :)

i have been advised to get the hosp to check her B12 levels too

I believe the periodic fever syndrome is playing a part in this issue, her consultant is great and I cant fault him, as soon as i emailed his secretary her blood results he had her email me back saying he wanted her in this tuesday for further investigations, i think they want to get to the bottom of the reason for the anemia as it has happened in the past but i dont think her ferritin got that low last time, i need to double check with her last blood results

She has been poorly now for 2 years with this periodic fever syndrome and its just so upsetting seeing her so run down, my other 3 kids will be outside playing and she will be just laid on the sofa with her blanket and fav teddy :(

Thanks for your help and kind words:)
Hi,

her diet is varied, she is not a massive eater but doesn't do to badly. I even tried her with some steak on saturday and she enjoyed it! I have been giving her green vegetables and an iron supplement added to fresh orange juice as i have been told vitamin c helps the body absorb iron :)

i have been advised to get the hosp to check her B12 levels too

I believe the periodic fever syndrome is playing a part in this issue, her consultant is great and I cant fault him, as soon as i emailed his secretary her blood results he had her email me back saying he wanted her in this tuesday for further investigations, i think they want to get to the bottom of the reason for the anemia as it has happened in the past but i dont think her ferritin got that low last time, i need to double check with her last blood results

She has been poorly now for 2 years with this periodic fever syndrome and its just so upsetting seeing her so run down, my other 3 kids will be outside playing and she will be just laid on the sofa with her blanket and fav teddy :(

Thanks for your help and kind words:)





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