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Hi all,

I posted here about a year ago thinking that I had one weird form of hemolytic anemia called CDA. However, after much testing, a bone marrow biopsy, and getting my genome sequences (pretty freaking cool), they've concluded that I don't have that. They don't know what I have exactly, so it's hard for me to listen to what they think I should do.
Everyone is telling me to get my spleen out. It gets enlarged and can cause aches and pains, as well as me feeling like I have to be extra careful of my abdomen all of the time. They don't know 100% that it will make my anemia better, or make me feel better, but they strongly suggest that it will. They say that I should get it out now while I'm young (23), as the strain of anemia will make my occasional chest pains and constant fatigue worse and worse as I grow older. I've already had my gallbladder removed and don't want to have another organ taken out if I'm not sure it will help.. What are your experiences with splenectomies? Positive? Not so much?
I'm also living in Colorado where the air is a lot more thin. I've definitely been feeling it in my fatigue levels. Is it safe for me to exercise like this? I went on a bike ride today and went up this huge hill and thought I was going to have an asthma attack or puke or something. It took me a while to get my heart beat to slow down, and then I felt EXHAUSTED. I want to stay in shape, I'm relatively young and should be ok for a little exercise, but I'm just not sure how careful I should be. I already hate having to hold myself back in some areas (firmly steering clear of anyone sick at work or school, not working as hard on manual labor, taking sick days when my levels are low) and not listening to the warning signs have landed me in the hospital before.. Anyone have any ideas? Thank you for your help.

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