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[QUOTE=jmartinisu;5105873]Thanks for the reply! I thought that maybe I was getting some bad advice. We have no idea what is causing it. I have normal periods on birth control and no period when not on it. I had an endoscopy and colonoscopy and swallowed a camera capsule, all showed no signs of blood loss. The latest is that I need to have my gallbladder removed. I don't know if that is a cause or not (I'm guessing not). It all seems so odd, but I really have no signs of internal bleeding. And we never would have caught this except I had to have surgery earlier this year and the pre-op physical bloodwork caught the numbers.

I wish I could figure it out, but my doctor said she is ok to just keep monitoring it until my hemoglobin drops again. Maybe I should get a second opinion?[/QUOTE]

Have you been checked for Gluten Intolerance? I know it's a huge guess but sometimes can be the cause when no other reason can be found. Might be worth looking into. With a ferritin of 6 you can't really afford to sit around and wait for things to continue to drop. Having a low ferritin can cause so many issues and problems. I know exactly what you are going through, it's horrible! You are lucky to have gotten infusions, it's a very fast route rather then taking oral and ferritin takes forever to build back up. I have been taking iron for 8 months. Started with a ferritin of 2 and finally am up to a 33. It's not gonna just shoot right back up. I would just ask her to reevaluate your situation and if she won't budge maybe do seek a second opinion, through a hematologist...or someone that seems to have more knowledge. Dr's seem to either really want to help or just brush this off as minor. Really easy to do when they aren't the ones feeling bad. If you are feeling horrible, you need to trust your body and you know something isn't right. Here are a few symptoms of low ferritin:

Minor aches
Fatigue
Weakness
Heart palpitations
Increased pulse
Loss of energy
Loss of libido
Confusion
Irritability

these are just a few....you can look them up. Also have you had your vitamin B levels checked? Sometimes anemia and low b12 go hand in hand and this is a vitamin that you don't want to be running low on.





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