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Gosh, I haven't been on HealthBoard in so long, I forgot my password!
:wave: Hi everyone! Ok, I was born with a genetic disorder of a musculoskeletal/connective tissue nature called Nail Patella Syndrome. I think I've become a bit of an expert on that one as myself and 3 of my 4 children have it as well, and it can cause kidney issues and I'm currently Stage 3 chronic kidney disease. I was also diagnosed with Fibromyalgia in 2009.

Anyway, I have been feeling more exhausted, lethargic and antisocial than I've ever been in my life for the last few months. I went in to see my Nephrologist as my GP couldn't seem to figure out what was wrong with me and just told me it was depression and/or anxiety. I know I have those problems, and I do take medication for it, but it's different than that. It's PHYSICAL not MENTAL. I just don't feel good. So my Nephrologist decided to do some blood work including Ferritin levels, which I haven't even ever HEARD of until last Friday! So I get a call on SATURDAY directly from the Nephrologist (who's specialists call them on a Saturday?? Unless it's bad news, right? Freaked me out anyway) and he wanted me to schedule an appointment with the chemotherapy unit of my local hospital (I live in "Nowhere'sville" Nebraska) as soon as I possibly could to get Venofer, an IV iron infusion once a week for 4 weeks and set me up another appointment to see him in a month and get rechecked. He said that my ferritin level was 4 and my hemoglobin was 9, and as a 31 year old non menstruating female (I had a hysterectomy in 2009 because of endometriosis), it should be between 60 and 120 and he claimed to have first considered a blood transfusion before deciding to do the Venofer. He didn't stay on the phone long, and I was so surprised that my brain left my head for a few minutes there, and I didn't really get a chance to discuss this further with him. So, my questions are for anyone who can answer them for me.... How low is too low and is a ferritin level of 4 dangerous? I had my first infusion yesterday and have a few mild side effects, how long will they last? How many infusions will it take to get it to "normal" or "healthy" levels?? Any input will help me tremendously, because I'm one of those weird people that need to know, and has a horrible fear of the unknown. Even if it's bad, I'd rather know what I'm up against, than be left in the dark letting my imagination go wild! I've done some internet searching (that's how I found this board and remembered I had an account), but it doesn't seem there are a ton of answers on here for what I'm asking, or maybe I'm just looking in the wrong place? Thanks for any and all responses!
First of all welcome back to the boards. Second yay that you have a Dr. that is doing his/her job! Is having anemia dangerous? If left untreated yes, but it sounds like you are on the right track to taking care of your problems. My ferritin was a 2 and some people here don't even have numbers that register. I would say within a few infusions you should be back to normal levels but that all just depends on you and how well the iron is taking. You are very lucky to be getting infusions they are the fastest way to build iron back up. I have never had an infusion but I read a lot here and most ladies seem to report feeling better within a weekish, but again that just depends on you. The iron is going right into your blood, right where it needs to be.

Anemia and low iron is a symptom of a larger problem but it could be a simple fix, where your not bleeding that can be ruled out but there are a few others you may want to have them looking into. B12 levels, need to be checked having low b12 can cause anemia. Celiac's disease, which is gluten intolerance and nutritional caused anemia, easy fix as well and all in a diet change. Anemia can cause an array of symptoms including anxiety/depression so I am glad you have something to take care of that. Hang in there and be glad that you have a great Dr. in your court. A lot of ladies here have Dr's who just brush this off as not a big deal.

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