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Re: New here...
Oct 9, 2013
Wish I had some good news to give you rather than just another story.
About 2 months ago I felt similar symptons and went to the emergency room. After some initial tests, including a CBC they told me my hemoglobin was 5.9.. After 6 days in the hospital, 4 blood transfusions, 2 iron infusions and numerous tests, they could not find any specific cause. They sent me home with a hemoglobin count of 9.2 and told me to follow up with my physician.
About 2 weeks later, I had similar symptons again and went to my hemotologist. My hemoglobin was 5.4 and was told to get to the hospital immediately. Upon admittance my hemoglobin was 5.2. After 9 days, 4 transfusions, 3 infusions, 2 procrit injections and more tests than I can count, I was sent home with a hemoglobin count of 8.2, and no definative cause for the anemia.
Since than it has been weekly monitoring and infusions and injections, but still no known cause. 3 doctors and my own research has told me that in about 10% of the cases this is the only result.
So the best I can say is good luck and please let me know if you find anything out that would be helpful to either of us.


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