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[B][FONT="Comic Sans MS"][COLOR="DarkSlateBlue"]Hi, my name is Lisa and I am new to the boards. I was diagnosed with iron deficency anemia (my ferritin was at a 5) in August. I have been working very hard with a nutritionist to get my levels up through iron rich foods and iron supplements to no avail. It was finally decided that I either had an absorption issue or I was unable to hold the iron and I needed to see a hematologist and consider IV iron infusions. I had my first IV infusion last Friday (Venofer). I did really well the day of the infusion, but the next day I was experiencing severe pain in my kidney area on my right side. I was wondering if anyone else has experienced this pain, if I should be concerned and notify the doctors about it or if it is just par for the course. I appreciate any feedback you might have. Thank you! :) [/COLOR][/FONT][/B]
After my first infusion, I slept about 20 out of 24 hours the next day. So be prepared that you might need to sleep a lot.

My second infusion was a no go. When the doctor got news of my brown urine and kidney pain, he didn't want to take any chances. He ordered some tests instead. They all came back in the normal range, though. So, I pick back up with the infusions next Friday.
That means another Friday off from work! Ugh!
[QUOTE=angelwhispers07;5162523][B][FONT="Comic Sans MS"][COLOR="DarkSlateBlue"]Hi, my name is Lisa and I am new to the boards. I was diagnosed with iron deficency anemia (my ferritin was at a 5) in August. I have been working very hard with a nutritionist to get my levels up through iron rich foods and iron supplements to no avail. It was finally decided that I either had an absorption issue or I was unable to hold the iron and I needed to see a hematologist and consider IV iron infusions. I had my first IV infusion last Friday (Venofer). I did really well the day of the infusion, but the next day I was experiencing severe pain in my kidney area on my right side. I was wondering if anyone else has experienced this pain, if I should be concerned and notify the doctors about it or if it is just par for the course. I appreciate any feedback you might have. Thank you! :) [/COLOR][/FONT][/B][/QUOTE]

I know what you mean, I too have this pain but mine is not very severe and it's gone now. I've had gallbladder issues before so I am attributing this pain to the gallbladder. A surgeon told me that because the gallbladder is not directly attached to pain receptors, you get pain in the darnest places like in your back. If you are concerned just call up the nurse and double check. It doesn't hurt to give them a quick call. I had my infusion yesterday and I feel better but I am not about to start running marathons yet. I am waiting for my surge of energy and I hope the infusion works. My hemoglobin was 8.9 before the infusion and I know it takes about 21 days for hemoglobin to regenerate. I was sleeping 3 days at a time before the infusion. It seems now I have more of a choice to lay down or not. My son said asked my husband yesterday why is she (me) so sick all the time? (Because I am sleeping a ton) My husband said she is not sick, just tired. I feel kinda guilty but on the other hand I am not having much of a choice on how I feel. I really need to sit down with my son and explain to him why is mama so tired.
Hi Angelwhispers ... any pain in your belly region should be reported to your doctor. Our belly is where a lot of vital organs reside and like the cliche, better safe than sorry.

My infusion experience:
Day of (Day 1): headache that is equal to level of a migraine
Day After (Day 2): body aches whole body (myalgia) ... like flu kind of aches
Day 3: fatigue fatigue fatigue
Day 4: fatigue fatigue fatigue
Day 5: continued major fatigue, tried to go to work only to go home needing a ride - LOL
Day 6: fatigue slightly improved from previous days
Day 7: "normal" - the new normal, felt like I did prior to infusion (not like baseline before the anemia)

My doctor was surprised and hypothesized that the work of my bone marrow on days 3 thru 6 may have caused me to be so tired. I did not expect fatigue greater than fatigue from anemia. I looked everywhere for normalization. I co-worker (a pharmacist) told me that his father in law is "wiped out" for 5 days after infusion. That was the first account that was similar to mine that validated my experience.

Anemia is tricky. With 400 types and so many variables from our biochemistry, environment, and lifestyle, every person is different in what they experience. It's like a snowflake experience

I think that is why I continuously hear "Listen to your body" as advice. That said, I suggest listening to your body, don't reason or rationalize the symptoms as just eating bad chinese ... tell your doctor. These boards are great for comparing experiences and getting tips and ideas for what to tell your doctor.

A major part of treating any health issues is communication. Patients sometimes lack the fancy vocab or "doctor speak". Articulate your symptoms as clearly as possible so that it cues the doctor to ask the right diagnostic questions and order the right diagnostic tests.

So for kidney pain ... precisely where? what type of pain ... continuous, sharp, dull, come-and-go, pulsating,? when did it start ... after treatment, during treatment, day after, after eating only, etc....? Any history of previous similar pain? yadayadayada Hope this helps!





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