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I'm in Kentucky, so I can't help you with docs in NYC. Sorry! I hope someone shows up here who knows of good docs in your area. I am SO glad to hear you are referring yourself to a hematologist. I really do think that with a ferritin level of 3 (even if it was in the past) a hematologist will intervene.

From what I've read on these boards, ferritin goes first, then serum iron, then hemoglobin and hematocrit. I am no expert! I'm just quoting a member of this board who seems to have done a lot of homework. I've read that in other articles as well. So, even if your hemoglobin and hematocrit are just beginning to go below normal range, with yours stores of iron being so low, it seems like those levels would be likely to continue going down.

Looking through a lot of posts on this forum, I'm seeing over and over again that people's GPs ignore their anemia pretty often. I guess we're only hearing from people with ongoing problems--maybe those with more knowledgeable/proactive GPs don't end up here. I had a hysterectomy 9 years ago and found a support group (HysterSisters) online that was extremely helpful. I learned sooooo much from other women and their doctors! I guess what I'm trying to say is that you have to be your own advocate. You have to keep pushing when a doc (or 2) blow you off.

As I said before, my hematologist took the low ferritin very seriously. I asked her why my other doc would have ignored the anemia (which was getting progressively worse) and she said she didn't have any idea. She didn't exactly trash the other doc, but she did let me know that she was VERY surprised the GP ignored the anemia. You just never know! :rolleyes:

Also...I've learned that anemia (iron deficient anemia, anyway) is always a symptom of some other problem. You are most likely bleeding from somewhere OR having some sort of iron absorption problem. I obviously don't have periods anymore...do you? And, if so, are they heavy? I've had a colonoscopy, endoscopy, CT scan of the abdomen, small bowel follow through to look for blockages or any huge tumors or polyps....My next step is to swallow a pill camera, which will examine the insides of my small intestines. My GI and hematologist are working together to try to find the source of the blood loss or the reason I don't seem to be absorbing iron. That's a relief!

Keep pushing and let me know what happens. Best of luck to you...I know this really bites!





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