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So...I'm being treated by a hematologist. In May she was ready to start iron infusions b/c my ferritin was down to 5. Iron was 26, % sat was 6, RBC 3.95, hemoglobin 10.7 and hematocrit 32.1.

We did extensive GI rule-outs first and all was normal. She'd "prescribed" Flintstone vitamins w/iron in the meantime. I wasn't really clear on why she didn't go the heavy iron supplementation route-- though I think she mentioned it might be too hard on my stomach, as I'm having a lot of digestive issues already. That is, I'm having a lot of digestive symptoms, but all tests have come back normal. My husband thinks that the Flintstones were an experiment to see if I am now able to absorb iron, which it seems I am.

Repeat tests in July showed improvement: Ferritin 5.7, Iron 45, % sat 11, RBC 4.25, Hemoglobin 11.5 and Hematocrit 34.6. She concluded that I'd probably had a GI bleed, but that it had corrected itself. So, no iron infusions after all, as far as I know.

I will be seeing her again soon. If her theory about a self-corrected GI bleed is accurate, I'm assuming that my numbers will continue to improve. My question is--what about the ferritin? She did have me start taking 2 Flintstones rather than 1, but I don't see how the ferritin level is going to increase significantly this way. I keep reading on these boards about how people don't start to feel better until their ferritin levels are around 50 (though when I do other non-anecdotal research, I never see anything mentioned about low ferritin alone causing symptoms or even being of concern). I'm worried that my other numbers will be almost normal by my next appt, and that serious treatment will no longer seem indicated to her.

Should I push for the more standard iron supplementation? What would it mean if I were technically no longer anemic, but still had a single digit ferritin level? Any advice?
[QUOTE=Smargie;5217577]So...I'm being treated by a hematologist. In May she was ready to start iron infusions b/c my ferritin was down to 5. Iron was 26, % sat was 6, RBC 3.95, hemoglobin 10.7 and hematocrit 32.1.

We did extensive GI rule-outs first and all was normal. She'd "prescribed" Flintstone vitamins w/iron in the meantime. I wasn't really clear on why she didn't go the heavy iron supplementation route-- though I think she mentioned it might be too hard on my stomach, as I'm having a lot of digestive issues already. That is, I'm having a lot of digestive symptoms, but all tests have come back normal. My husband thinks that the Flintstones were an experiment to see if I am now able to absorb iron, which it seems I am.

Repeat tests in July showed improvement: Ferritin 5.7, Iron 45, % sat 11, RBC 4.25, Hemoglobin 11.5 and Hematocrit 34.6. She concluded that I'd probably had a GI bleed, but that it had corrected itself. So, no iron infusions after all, as far as I know.

I will be seeing her again soon. If her theory about a self-corrected GI bleed is accurate, I'm assuming that my numbers will continue to improve. My question is--what about the ferritin? She did have me start taking 2 Flintstones rather than 1, but I don't see how the ferritin level is going to increase significantly this way. I keep reading on these boards about how people don't start to feel better until their ferritin levels are around 50 (though when I do other non-anecdotal research, I never see anything mentioned about low ferritin alone causing symptoms or even being of concern). I'm worried that my other numbers will be almost normal by my next appt, and that serious treatment will no longer seem indicated to her.

Should I push for the more standard iron supplementation? What would it mean if I were technically no longer anemic, but still had a single digit ferritin level? Any advice?[/QUOTE]

my ferritin is also a 5 and my symptoms are terrible. I have loys of tummy troubles and have a hard time stomaching any iron pills. There is one by a company called garden of life, it is food based, I have no issues with that one.My doc didnt care much about how I feel. I just changed insurance company's and I am gonna see a new doc. If needed you need to switch doctors to get one that will listen! I hope you feel better!





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