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Ugh, I feel for you! Its so disheartening when they keep finding nothing...and especially when they do find something, like your possible low iron and tell you its not that. So you are back to square one! So sorry you are going though this! I am too! you are in good company!

I got sick about 5 times last fall (probably bc I was iron deficient) and the last illness was strep and bronchitis with a mild ear infection. Took antibiotics, but never felt the same since. kinda rebounded but then started feeling tired and have been sliding downhill ever since. Fatigue, foggy brain, dizziness, light headed (near passing out), headaches, neck and muscle pain, nerve pain, tingling (comes and goes). I have been to literally every specialty of doc there is, and after tubes and tubes of blood and scan after scan, I have no answers. Sometimes I feel like I must have some serious disease that is killing me slowly. That is how bad I feel. Going to sleep at night is now my fav time of day, because I look forward to maybe, just maybe waking up feeling better the next day. Hasn't happened yet, but hoping!

My neuro thought my mono/ebv was high, but other docs dispute it bc once you get mono, your ebv numbers can stay high even though you are healthy. And you can't tell when you have had it in the past, only that you have had it. My infectious disease doc said you can't treat it anyway, so she ruled it out as a dx. I thought that was ridiculous. Do you rule out terminal cancer as a dx bc you can't treat it? Anyhow, make sure you ask for an EBV panel and not the mono screen test, which can be very inaccurate.

Some of my docs think my low ferritin is partially to blame. It was at 15 which is borderline, but my blood counts showed mild anemia, so I started supplementing. In june after 1 month of supplements it was at 26. I had a lot of blood taken and a heavy period in July, so I am suspecting it may have gone down. I am still not feeling better and hoping maybe getting it up into the 50s will help. My neuro says it should be above 50. Its a slow road. Hoping and Praying.

Good luck to you! If you find answers or feel better, let us know your secret! Thanks for sharing!





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