Hi, Im new to this board but Im wondering if I could get some help or some advice about my daughter. She has been tested twice for her iron because she has sleeping issues (central sleep apnea and sleep phase disorder) In April they found she had lowironsaturation. It was 18 which is not too low so we started her on some liquid iron drops. She has a lot of medical problems and special needs and one of which is eating issues so she has a Gtube for all meds and the majority of her calories. She just this Monday had some repeat blood work done and now we have found out that her Iron level has dropped to 29 and her saturation is now at 9. Im not sure what is going on but I was told it could be something called Anemia of chronic disease. She has a long list of medical issues and Im wondering if this iron issue is part of her muscle problems. The problem is is that all her other labs were fine and the dr says she is not anemic. Her ferritin is fine, and all her other blood counts are fine but these other numbers seem to keep falling. We cannot give her the iron drops because her intestines were not absorbing them, even in very small amounts and her diet is so spotty that we cannot solely rely on diet changes to help either. Im not sure where we should go from here? Any tips or help would be so appreciated.
