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... Thanks so much for posting this. It scared me to read how you felt afterwards but Id rather be informed and a little scared than oblivious and terrified. I will make sure I have a bottle of water with me, to wear loose and comfy clothing and shoes that slip on and off and dont bind. They told me that they are going to sedate me and wont let me leave unless I have a... (63 replies)
... I had my second infusion today. First one was a "test infusion" of a smallish dose of about 60 something units about two weeks ago and I handled it just fine. My iron level was so low (a 3 out of 200) that my doctor wanted me to come back every day for five days for treatment, but my crappy insurance wouldn't allow that, so I went back today. The infusion went fine, but... (63 replies)
... I went back to my hematologist on Monday and got half the normal iv iron dose. So far it's been ok but I have had some side effects, pain in my joints arms, knees hips and spine but I have found that the pain is a lot better if I keep myself moving. ... (14 replies)





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