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bay7000,

How are you feeling? I am feeling "ok" today after having a couple of really bad days. I better enjoy the day with my kids because it is just a matter of time before I start feeling sick again.

I went to my appointments with the neurologist and my internal medicine doctor. My neurologist said that he highly recomends for my primary care doctor to refer me to the local medical university or the Mayo clinic because there is obviously something wrong with me and it is not anxiety.

My internist said that she would like for me to go and see a gastroenterologist before she gives me a referal to the medical university. If the gastro and the medical university don't find anything wrong then she will be sending me to the Mayo clinic.

It is looking more like I have an infectious disease that is just progressing now into something more severe or I have some kind of hormone producing tumor that is just dumping adrenaline or some other hormone into my system non-stop. I am really thinking that it could be the tumor because I have all the symptoms and the only test that came back abnormal was my cortisol which came back really high. The only thing that doesn't make sense is that I am loosing a lot of weight and high cortisol makes you gain. I will keep you posted. I hope you are feeling better.
[QUOTE=bay7000;4972445]Mojo37
Iím doing so-so. Iím just trying to hang in there with the symptoms and discomfort. And I still get aches, and heavy feelings.

My other doc that Iíve seen thinks there some issues going on with my stomach. so i have to follow up with him and maybe run another test.

Mayo Clinic will probably find out what kind of disease/ illness you have. You might have a tumor. Hopefully they will find something. Hang in there and get well.

Boobootwo
That might be a good idea to see a rheumy. I havenít seen one yet. But Iím going to follow up with my doc w/my symptoms and see if i should see one. He also thinks i have some stomach issues going on.

Beatles 1984:
I saw the post about relaxation exercises, I tried it a few times. But I guess it takes time and patience and practice for it to be effective.

TLORS
are your symptoms improving? Did you find anything new with the doctors?
I tried taking PPI before, but I could not notice any difference so I stopped taking them. I think they prevented the absorption of some nutrients from some of the food I was eating.

What does the glucosamine help with? Iím taking magnesium, vitamin d, fish oils, and calcium.

I notice that itís hard for me to put on pounds ever since I lost weight. Iím trying to gain back some muscle mass and it seems like Iím making very small gains. Iíve been working out 3x a week, but also still get the shortness of breath feeling during and afterwards. Iím going to try to see if I can push myself with more cardio exercise despite having sob.

How are you enjoying your time in Japan ? Anything cool you see? I'm sure a lot.[/QUOTE]

Nothing has really changed for me, outside of maybe wearing thin the patience of my doctor. I have okay days where the symptoms are only an annoyance that slows me down a bit, and some days where it brings everything to a halt and I can't really do much. The worst are nights when I can't sleep, where I'm constantly falling asleep and then waking up in sudden jolts and palpitations for no apparent reason. I'm not good for much on the days that follow those evenings.

I've noticed that I get more upset stomachs while using the PPI (omeprazole), but have decided to try and take them all, per the instructions of my doctor. He scolded me recently for not sticking with the PPI for longer than two weeks the first time I used them, since I also hadn't really seen a difference either. Apparently though, they can take up to a month or longer to have any real effect, or so I've been told.

Just in case my food isn't digesting completely though, I've also started taking probiotics and digestive enzymes. They haven't led to any noticeable change yet, and I still tend to get a lot of phlegmy feel in the back of my throat after meals (which is a big part of why my doctor is thinking that GERD might be the main problem), but I figure that keeping them up can't hurt. Besides, it's only been just under a week that I've been taking them, so maybe that too requires long term use?

Glucosamine is something I've taken even before all this stuff started. It's mostly just for joint cartilage health. As I no longer have a car here, I do a lot of walking and stair climbing, so glucosamine is supposed to help keep wear down to a minimum. It's more a preventative thing to take for me, rather than something I've started taking because of a particular condition.

As for losing weight, yeah, I've shed a lot of muscle too, it seems. About half of the weight I've lost (about 10 pounds) is likely muscle according to this electronic scale I've got. That makes sense since I don't eat as much now that I'm not as active, and even then, I tend to eat even more fruit and vegetable than I used to, rather than the usual amounts of chicken or fish. (Beef tends to be too expensive for me here, and pork is something I rarely ate even before coming to Japan.) I'm not too worried about gaining it back at the moment though, since I'm just more concerned with getting quality sleep, stopping the chest pain, palps, and the heavy sensation when I'm trying to get deep breaths down.

As for my time in Japan, it's like anywhere. It has its perks and drawbacks. There are definitely many amazing things that I'm probably taking for granted now that I'll be missing when I return home. While there's valid criticism that Japanese government and industry is too centered on Tokyo, it does make the city incredibly dense with distractions. If you've got the time, money, and energy (of which I'm sorely lacking the latter two!) then it's a great place to explore and have a great time. I just hope that when the next "big one" hits, it leaves this city intact.

[QUOTE=Mojo37]bay7000,

How are you feeling? I am feeling "ok" today after having a couple of really bad days. I better enjoy the day with my kids because it is just a matter of time before I start feeling sick again.

I went to my appointments with the neurologist and my internal medicine doctor. My neurologist said that he highly recomends for my primary care doctor to refer me to the local medical university or the Mayo clinic because there is obviously something wrong with me and it is not anxiety.

My internist said that she would like for me to go and see a gastroenterologist before she gives me a referal to the medical university. If the gastro and the medical university don't find anything wrong then she will be sending me to the Mayo clinic.

It is looking more like I have an infectious disease that is just progressing now into something more severe or I have some kind of hormone producing tumor that is just dumping adrenaline or some other hormone into my system non-stop. I am really thinking that it could be the tumor because I have all the symptoms and the only test that came back abnormal was my cortisol which came back really high. The only thing that doesn't make sense is that I am loosing a lot of weight and high cortisol makes you gain. I will keep you posted. I hope you are feeling better.[/QUOTE]

Despite how we're all feeling at the moment, it's kinda' nice that your doctors are at least inclined to escalating you to a research hospital like Mayo to figure out what the problem might be. I wish my doctors had that initiative, so I'm a tad jealous, here! A previous doctor (the one before my current one) basically once told me, "look, I can't find anything wrong, so it has to be all in your head. Come back in six months if it is still bothering you." I was pretty angry afterward, and that didn't help much.

In any case, I hope you get that chance soon. You deserve answers, just like the rest of us, and once you get it, you're that much closer to addressing the problem, rather than just trying to ease the symptoms. Good luck, Mojo!





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