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Arthritis Message Board

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Hi Terri,

I am always looking on these boards, so of course will help you as much as I can, I know what you are feeling like. Sometimes people wonder what is wrong with me because unlike rheumatoid arthritis, I do not look as though anything is wrong, with rheumatoid their joints really change. My hands are the worst for shape, my fingers are all bent at the top and my knuckles are large. My knees swell terribly and my ankles today are huge. I have found the meds do help with pain, but unfortunately not the fatigue, sorry. I feel extremely exhausted by the end of every day, the meds you take also add to the tiredness but sometimes just out of the ordinary I wake up and feel really good, that is when I get more done. I gave up work last year as not only did I have my problems but mum has cancer and I have to help her as well. Giving up work was the best thing I could have done, it took the worry away of trying to feel and look good to do a days work. The leflunomide (dmard) gives me terrible diarrohea and I was having to get up at 5 in the morning to go to the loo 6/7 times before I went to work then at work didnt eat or drink because didnt want to embarrass myself. Now, at home it doesnt matter. You must make life as easy as you can. I dont know how old you are, but you must rest and get as much sleep as you can. I have splints for my wrists, ask when you go to rheumy whether you need splints to help your wrists. Do all your housework etc in the early morning. I then rest in the afternoon, ready to cook dinner, as I have my husband, son and father-in-law looking at me for meals every day !! lol Can you walk far? Have you got a badge to help park in disabled bays to save you walking too much? You need to see what you can get to help you every day. I have had grab rails put in at home, I hated it as it looked sad but I couldnt do without them now. Please ask me anything. I said to the consultant that I felt like I have a bad case of flu all the time, and he said that is because psoriatic arthritis is an inflammatory disease the same as rheumatoid, it is a very frustrating illness as you will see from all the threads here. Take care,


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