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Back Problems Message Board


Back Problems Board Index


I've had few local opinions and am going to have to travel out of state for my more "formal" second opinions. Yes, surgery is my choice but I'm pretty scared about it. I simply do not want to fuse my SI because it's just such a risky surgery. My local SI surgeon has basically left it up to me. He agrees that I am very young for this surgery and we both are concerned that I would lose a major shock absorber of my body. We're also concerned by the amount of disability I have at 28 and want to give me some quality of life back. My second opinion will be in the future, but it's going to take a while because there are very few skilled surgeons who do this surgery and I will have to travel out of state. Same with the piriformis surgery. The two specialists who do this surgery are in California and I'm in Alabama. The surgery is not so much a "piriformis release" but more a detailed neurosurgery for a pelvic nerve entrapment syndrome. The recovery for it is pretty tolerable and the success rates are pretty good. The question is which to do first and which will increase my odds of the other one being successful. It's hard to find surgeons who specialzie in piriformis release and hard to find SI surgeons and darn near impossible to find a skilled surgeon who believes in both. There is one in Atlanta who does...I'm very, very not impressed with his outcomes or methods.

It's hard because I basically have two pretty uncommon problems. Well, they are are common but it's pretty rare for these problems to get to the severity that I have it. I have been a hard core athlete and have trained my little heart out for years. I think I had a predisposition for this due to various body mechanics, a weird little sacralized L6, and an odd climbing accident a year ago (where I had to stand in an odd position for 12 hours waiting for a rescue). All of this has left me with a blown out right SI and bilateral piriformis syndrome.

I do want surgery, simply because right now I don't have a chance of getting better with the conservative methods. We have done everything short of snake oil and it's obvious to me and my docs that something needs to be done...that or I could do pain management for the rest of my life. That's a hard pill to swallow (no pun intended) because I'm basically housebound now with minimal driving, walking, life, etc. I am an ICU nurse and I want to work again so bad. Even if it's in a doc's office doing blood pressure...I just love being a nurse so much and I want to do the job I love. Not sit here at home at the age of 28 with no hope of ever getting better.

So, that's the details thus far. Thank you for the hugs and the prayer. You all are the most supportive group. It means the world to me.

Julie
The next month is devoted to second opinions. Yes, surgery is my choice but I'm pretty scared about it. I simply do not want to fuse my SI because it's just such a risky surgery. My local SI surgeon has basically left it up to me. He agrees that I am very young for this surgery and we both are concerned that I would lose a major shock absorber of my body. We're also concerned by the amount of disability I have at 28 and want to give me some quality of life back. My second opinion will be in the future, but it's going to take a while because there are very few skilled surgeons who do this surgery and I will have to travel out of state. Same with the piriformis surgery. The two specialists who do this surgery are in California and I'm in Alabama. The surgery is not so much a "piriformis release" but more a detailed neurosurgery for a pelvic nerve entrapment syndrome. The recovery for it is pretty tolerable and the success rates are pretty good. The question is which to do first and which will increase my odds of the other one being successful. It's hard to find surgeons who specialzie in piriformis release and hard to find SI surgeons and darn near impossible to find a skilled surgeon who believes in both. There is one in Atlanta who does...I'm very, very not impressed with his outcomes or methods.

It's hard because I basically have two pretty uncommon problems. Well, they are are common but it's pretty rare for these problems to get to the severity that I have it. I have been a hard core athlete and have trained my little heart out for years. I think I had a predisposition for this due to various body mechanics, a weird little sacralized L6, and an odd climbing accident a year ago (where I had to stand in an odd position for 12 hours waiting for a rescue). All of this has left me with a blown out right SI and bilateral piriformis syndrome.

I do want surgery, simply because right now I don't have a chance of getting better with the conservative methods. We have done everything short of ********** and it's obvious to me and my docs that something needs to be done...that or I could do pain management for the rest of my life. That's a hard pill to swallow (no pun intended) because I'm basically housebound now with minimal driving, walking, life, etc. I am an ICU nurse and I want to work again so bad. Even if it's in a doc's office doing blood pressure...I just love being a nurse so much and I want to do the job I love. Not sit here at home at the age of 28 with no hope of ever getting better.

So, that's the details thus far. Thank you for the hugs and the prayer. You all are the most supportive group. It means the world to me.

Julie





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