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I just got home from the hospital and have my stimulator in. I just started using it on a consistant basis today, to see what I think about it. Alot of what I read here, about that the only way they could get the vibrations to the correct area of pain, mean having to turn it on so strong that it also hurt...well that is what it was like for me and my trial unit. But this time around, the rep. told me that it should never be that high that it hurts. Actually, she said that if the lead is placed in the correct place, the various stimulations will work on the pain, even if you can hardly feel it.

I started out skeptical, but did it because it was the last step besides from meds. for my life. When I 1st tried it today, I took it off after an hr. or so, thinking that it wasn't covering the pain and I did not like the sensation. (I think I had convinced myself that it probably wasn't going to work.) After a few mins. of it being off, realized the pain I was in and I did not remember feeling that pain with it on. So, I tried it for another couple of hrs. and then decided I did not like the vibrations changeing with ea. movement and thought that maybe I'd have to wear it a little at a time, until I got use to it and I took it off again. Again, as soon as I turned it off...I had terrible bursitis pain in my hip and low. back. It then dawned on me that the stimulator was working on the pain. I put it back on and adjusted the level. I am starting to change my mindset and will let you all know if I get used to the vibrations enough that the benefit outweighs the old pain.

If anyone has questions about the procedure, please feel free to ask.

Lorie:angel:
OK guys, I have a good update for you all. After experiencing with the stimulator yesterday, by using it for an hr. or so and taking it off for a while and ea. time leaving it on a little longer etc. Well, when I went to bed, I decided I would try to sleep with it on, and kept the remote next to my bed. I really thought that I would not be able to sleep with the vibrations...but before I knew it, I was waking up in the morning. I could not believe that I never felt anything as I slept and when I woke up, I could not even feel the vibrations. I was told that I would get use to the vibrations, but did not expect not to feel it at all. I have kept it on all day today and I have had very little pain, anywhere. The only times I felt some pain, was when I did a few things that I should not have done...I still have to remember not to bend, twist or lift.

Just thought I would share my experience. I am more suprised than anyone, as I went in with the thought that I did not expect this to work...since everything else has failed. But so far, I am a believer in this product.

Lorie:angel:
I can tell you that I have the AB stimulator and prior to having it put in, I started researching, just as you all are doing. I found several sites that had ongoing litigations with Med Tronics and there were also blogs where people were saying that their leads had migrated and had to continuously go in to have them replace the lead and/or batteries. So, I asked my Dr. what brand he used and what the differences were. He explained that Med Tronics still uses their original product even thought there are 2 other companies that have updated the systems.

One of the differences was that the ends of the leads, on the older systems, were the size of a pin head. That is placed in your spine and after some time, scar tissue builds up and surrounds that lead and holds it in place. But because the end of the lead was so small some of them were migrating (or moving) into the spine and had to be pull back out and re-implanted. Also, due to the small size, the scar tissue was less likely to build up enough to continue to hold it in place.

A 2nd difference was that the older ones had batteries that had to be taken out and replaced ever 3-5 years.

The newer ones, have leads that have ends that are the size of a small bandage. With that room, when the surgeon implants it, they also sew it into the spine, so while the body is making the scar tissue, is is staying in place. Also, you charge the batteries right through your skin. They don't have to go back in to replace a dead battery.

"Should I be looking for a doctor that uses that brand. Should I be researching which brand of stimulator I want to have. How would I figure that out?"
Do a search on Med Tronics and then do one on Advance Bionics. There is a 3rd one that I will look up and let you know about. I have forgotten the name. But, it is supposedly just as good as AB. Then, you will have to ask your Dr. which one he uses. I have found that the Drs. that I talked to, all used 1 or the other. None of them offered it as your choice. So, other than looking for a different Dr. you would probably have to go with what your Dr. chooses to use. But you could still get all the info. from your Dr. and that will help you to decide if it is something that you want to do.

"Did you have this done by a surgeon or a PM doctor?"
They 1st do a trial, in the PM doctor's office and if the trial works, then you will go to the hospital for the implantation to be put in. I have heard some say it is an out patient procedure, but the nurse that got me registered said that she's never had any out patients. That most stay 1 or 2 days, to make sure the system is working and to get the patient up and walking etc. So, I guess that might be an indiv. Drs. policy.

I am thrilled that I got it and I would tell anyone to consider it, if they have tried all the other conservitive things and they have not worked. My thought going into it was that if it worked, it might be what gives me my life back. If it did not work, I lose 2 or 3 weeks of recovery time and it was worth loseing those 3 weeks to possibly find some help. My Dr. had said that we had exhausted all the treatments and I would just have to see him monthly for my meds, for the rest of my life. I was willing to try just about anything for some relief.

I wish you all the best and feel free to ask me anymore questions.

Lorie:angel:
[QUOTE=lfoster21;3547108]OK guys, I have a good update for you all. After experiencing with the stimulator yesterday, by using it for an hr. or so and taking it off for a while and ea. time leaving it on a little longer etc. Well, when I went to bed, I decided I would try to sleep with it on, and kept the remote next to my bed. I really thought that I would not be able to sleep with the vibrations...but before I knew it, I was waking up in the morning. I could not believe that I never felt anything as I slept and when I woke up, I could not even feel the vibrations. I was told that I would get use to the vibrations, but did not expect not to feel it at all. I have kept it on all day today and I have had very little pain, anywhere. The only times I felt some pain, was when I did a few things that I should not have done...I still have to remember not to bend, twist or lift.

Just thought I would share my experience. I am more suprised than anyone, as I went in with the thought that I did not expect this to work...since everything else has failed. But so far, I am a believer in this product.

Lorie:angel:[/QUOTE]
Lorie, we sound so similar with our expectations...I have tried so muchand nothing works, and am scheduled for the trial medtronics scs the 18th of Nov. I am scared to death of nothing ever changing with the pain in my right leg, foot and back...I feel as though I have been througn hell and back and drug my family with me...I have a wonderful husband and two boys that are so supportive and i love them so much, but i feel it is timefor the pain to quit controlling our lives...i have something special that i am supposed to do with my life and i have got to get over this and pursue this...God Bless you and thank you for all of your encouragement. Please say a prayer for me.... carol





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