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Any advice would be greatly appreciated.

I fractured my L5, the pars broke off, and crushed the surrounding discs in 2001. My neurosurgeon fused with cadaver bone, cleaned it up inside, and placed rods, screws and a bracket to stablize it. I had a bone stimulator and the fusion took very well.

Unfortunately, there was nerve damage, and it has gotten continually worse through the years. In January I had a neurostimulator implanted, and that helped significantly, but the pain has returned, although still not full bore.

On the pain scale, at my very best with my meds, I can't get below a 3. My average day is a 5. The pain is severe and sharp in my lower right lumbar, and then a severe aching in my buttock, hip, and down my leg, with tingling and some numbness.

My pain doc says there is nothing left he can do, I just have to live with it. I have done the pt, exercise every day (walking and water aerobics.) I have three kids and a husband (very supportive, all of them) but it is very hard to participate in all my kids activities, but I do so and just try to hide the pain from them. I am worn out from all of it, and feel like there is no hope for a somewhat "normal" life.

Does anybody have any ideas???? Any good suggestions???? I'm stumped and feel like my pain dr doesn't understand what I live with. He told me that there is no way any pain returned after the neurostimulator, it just wasn't possible. He did an xray to make sure the leads were in place, but has not checked the "hardware" in my lumbar for a couple of years, and says that we would know if anything was wrong there. Basically, he says it's all in my head! I told him no, it's in my back!!!

Help!
Hi MadhouseMike. I saw my pain doc on Friday, trying to come to an agreement about my pain meds. I feel like I am talking to a brick wall! I took my husband in with me to lend some support. I have the stim, but I have had a return of some of the leg pain, mostly at night when I try to go to sleep. (he did finally admit that it is failed back syndrome, and it will never get better!) We discussed the pain mangement, he previously would only give me 4 vicodin a day, plus neurontin and soma. I told him that I wanted to have the ability to take up to 6 a day. He switched me to Norco (less tylenol) and said that if this doesn't work, that my only option is a morphine pump! I left there with a new presecription, and low and behold, he STILL gave me only 4 a day!!! This was after telling me that 6 was OK with him, but to take 2 before bedtime for the leg pain. I had already explained to him that it didn't help with the leg pain!! I asked for klonipin, I had previously taken it for restless leg syndrom, but my stim solved that problem. He told me that he WAS NOT FAMILIAR WITH THAT DRUG and would not prescribe it. TOTALLY FRUSTRATING!! I really want to find a new doc, but am in the end stages of getting my SS disability approved, and don't want to make any changes right now. I am going to go back to my MD who originally prescribed the klonipin and get it from him. I have to wonder why a doctor who can implant a stim on my nerves is not familiar with a nerve medication! Bunch of quacks out there! I am going to send him a written letter regarding my dosage of Norco, so maybe becaue it is written he will get the message. **REMOVED*** I cannot wait to get the disability thing done so that I can make a change. I wish you the best of luck, and try to not go to the pump, they say that once you are on it, you never get off! That is my biggest fear! :)





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