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Blood and Blood Vessel Board Index
Pages: 1Showing 1 - 17 of 17 for knees polycythemia. (0.005 seconds)

... Hi, my name is Randall and I was diagnosed with polycythemia in 2000 (total blood cell count over one million) and had symptoms dating back to 1994. It started with itching on the inside of my lower arms, itching from my knees to my ankles (terrible itch for about 45 minutes) after hot shower, red in the face like a sun burn, tightness across my chess and pain behind my breast... (24 replies)
Polycythemia Vera
Sep 15, 2004
... to keep my knees under control. Also a couple of Ibuprofen. Then, of course, I have Polycythemia Vera. My bone marrow makes too many red blood cells, there is no cure but the Hematologist watches my blood tests carefully. ... (18 replies)
... weats, dizziness, ached all over and my face was very red.My energy level was rock bottom and after a hot shower I would get a terrible itching sensation from my knees to my ankles and itching on the inside of my fore arms. ... (2 replies)

... but had symtoms back to 1994. I new somethin was going on and didn't know what! I had itchin in my legs,arms,chest and back. From my knees to my ankles I got a really irritating itch after a hot. ... (102 replies)
Polycythemia Vera
Sep 13, 2004
... Russ - Thanks for wishing me a good day. I sure wish your situation was doing better. I'm on Medicare and pay for a supplemental insurance, so they pay for the phlebotomies, but the supplemental insurance is expensive. This is personal and don't answer it if you don't want to, but did your Doc tell you couldn't work because of Polycythemia? My hematologist wants me to... (18 replies)
... Hi! My name is Randy and I have been being treated for Primary PV for 12 years now.My symptoms started around 1994;but,didn't really know what was wrong with me until I was diagnosed by bone marrow test in 2000.My symptoms were red face,very annoying itch from knees to ankles after a hot shower (usually lasted about 45 min.),lots of anxiety,tightness across the chest.I spent a... (9 replies)
... Hello All. My name is Randy and I am 63 yrs young. My PV experiences started in the mid 90's. I started itching severely in my lower legs (from knees to ankles) for about 45 min. after showering. My face turned red and looked like a sunburn and bloodshot eyes all the time. In 1997 I started getting tightness across my chest and was hospitalized twice thinking I was having a... (8 replies)
Polycythemia Vera
Sep 13, 2004
... rculation. I am also on blood thinner, lexapro, and 3 different inhalers. Staying active is somewhat difficult. I also have arthritis in my back, neck, hips, and knees just like you. The Doc. said that my body was like a 70 yr. old man.. Ha Ha, seems like I could get some type of compensation for all that. ... (18 replies)
... Hi Bren, I found out about the polycythemia after an anual check up with the family doctor. ... (95 replies)
... :wave:Randy Hi, I Just want to say thankyou for your inspiration just by reading what you have gone through has helped me to deal with waiting to see my hematologist and since they took the blood almost 2 weeks ago I Go for my results tommorrow I Have been sick with the flu & bronchitis just trying to get better . My family doctor told me today he referred me to a... (95 replies)
Possible ET?
Apr 28, 2012
... from my knees to my ankles. ... (4 replies)
... Hi momallars, Has your son had a bone marrow biopsy? Has he ever been symptomatic with the high platelets? It's not totally surprising he doesn't have the Jak2 mutation. 90% of people with polycythemia rubra vera have it whereas anywhere between 40-70% of people with ET have it. (24 replies)
... Hi.My name is Randy and I am Polycythemic, which is a bone marrow disorder which causes the bone marrow to produce too many blood cells and more related to red cells. I went 6 years before being diagnosed. I had a red face like it was sun burned, lots of anxiety, night sweats, extreme loss of energy, tightness across my chest and itching inside my forearms and lower legs from... (1 replies)
... Hi Karen! U know it's been so long I can't remember the count levels. It really didn't take 6 years to diagnose. The sytoms started in 1994; but, I didn't know what was going on. I started itching in my arms, chest, and my legs fromy knees down to my ankle (after ahot shower) would itch like crazy for about 45 minutes and then turn into a burning sensation and then go away.... (95 replies)
Oct 7, 2008
... I started itching on the inside of my arms in 1994 and then terrible itching from my knees to my ankles after a hot shower. ... (1 replies)
Apr 30, 2004
... can be exercised while sitting by pulling the toes towards the knees then relaxing, or by pressing the balls of the feet down while raising the heel. ... (1 replies)
... can be exercised while sitting by pulling the toes towards the knees then relaxing, or by pressing the balls of the feet down while raising the heel. ... (5 replies)

Associated Tags: polycythemia vera

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