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Brain & Nervous System Disorders Message Board

Brain & Nervous System Disorders Board Index

Hi. I am a 42 year old female. Approximately 8 months ago I made 4 separate trips to my regular Dr. and Urgent Care with complaints of ear pain and pain in the left side of my head. This was not like a headache, this was a constant severe pain in the left side. After the fourth visit I was diagnosed with Trigeminal Neuralgia. I was put on Neurontin, 900 mg a day. The symptoms seemed to subside. Out of fear of the symptoms returning I remained on the medication. In May I started having episodes that last from a few minutes to sometimes several hours. These episodes are like periods of amnesia. I keep functioning, for the most part but I do not remember. Even after being told what happened I can't recall any of it. When I come out of it I am extremely confused and exhausted. My MRI and EEGs were normal. My neurologist decided to wean me off of the Neurontin hoping that the episodes were a reaction to the med. As soon as I went from 900 mg per day to 600 mg per day the ear and head pain returned. I tolerated it for 3 weeks then called my neurologist, who put me on Tegretol. I am now completely off of the Neurontin, but still on the Tegretol. I am still having episodes, the pain in my ear and left side of my head is absolutely miserable. I don't know what to do, my quality of life right now is terrible and my family and I are very frustrated. I have been told that there is nothing wrong with my ear over and over again. I have bipolar disorder and I get the feeling from the neurologist that she wants to blame that for these episodes. I was diagnosed with bipolar disorder over 20 years ago and have a good handle on it, I do not believe it has anything to do with it. Within the last month I was diagnosed with Type II Diabetes, and high cholesterol. I also have high blood pressure. I have been on bp medication for 2 years, I am now on cholesterol medication as well as the Tegretol. I am not a fan of medication, I would much rather handle things naturally when at all possible. I have adjusted my diet and exercise routine in order to get the cholesterol and diabetes under control. I just don't know what to do, I am seeing an allergist next week, I am working on getting a second opinion from another neurologist, I don't know where else to turn. Has anyone else ever dealt with this or have any suggestions??

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