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Brain & Nervous System Disorders Message Board


Brain & Nervous System Disorders Board Index


Sorry in advance for this being long. Ugh, not even sure where to begin. I am 49 years old. I had my first bout of Papilledema and Pseudotumor Cerebre (brain and eye issues) at 19. I was put on Diamox to decrease intracranial hypertension. I went on to have two more instances of it. During the first bout of it I was also diagnosed with Meniere's and have had Tinnitus non-stop for over 15 years. At 25 I suddenly came down with severe anxiety disorder out of nowhere, I had it for about two years, went off meds and into therapy and then had two good years.

At the age of 30 my life fell apart. Fine one minute and the next every system in my body started to fail. Long story short, over a period of the last 19 years I have been diagnosed with Lyme, Lyme co-infections, Epstein-Barr, Cytomegalovrius, HHV-6, mycoplasma Pneumoniae, mold issues, roundworm parasite, Candida, MTHFR, unavailable hidden copper toxicity, adrenal fatigue, POTS, clotting disorder from the Lyme, and so on. Nothing has worked to get me well.

Flash forward to today, at age 49 I am now in Perimenopause, and am having horrible problems. POTS symptoms are worsening, reflux, asthma, pressure in head/brain which worsens when bending over or standing up, like an intracranial hypertension thing, have trouble saying words at times (see the word "dog" for example but it comes out as "green"), adrenaline surges which trigger anxiety, heart palpitations and tachycardia (though heart is fine per cardiologist), have trouble with memory & cognitive things, blurred vision even with glasses, sometimes objects I look at look like water is running down them or are vibrating, internal tremors, non-stop dizziness with bouts of vertigo, which is so bad that I can no long drive or go out alone, heat makes everything worse, headaches at times, allergies which are not helped by strict diet, ears always feel full or like they have pressure in them, fatigue so bad that I feel drugged, even my eyes are constantly at half mast (I look and feel stoned), hair falling out (thyroid tests all normal), 5 messed up neurotransmitters. I saw an ENT and his half assed response is that I have allergies and my Meneiere's is causing the dizziness and vertigo. He gave me nothing to help.

I have been researching the work of Dr. Frederick Carrick and Dr. Datis Kharrazian who talk about a connection between the brain, the gut and the vagus nerve and when the brain gets damaged, inflamed, has intracranial hypertensions, etc. it causes the vagus nerve issues, which cause all of the other issues. Inner ear disorders can also affect the brain which then goes on to affect the vagus nerve, stomach and other stuff. Does anyone else have this and if so what has helped? I am thinking of seeing a chiropractic neurologist, who is a specialist in this condition, but it is very expensive and not covered by insurance. Only a handful of people do this in my state. Thanks.
I also agree that it's highly possible there is a relation to the vagus nerve. This could be related to compression of the vagus nerve, inflammation or parasites and or candida or all of the above.

One thing I am trying now is oxygen and ozone therapies.

Thanks



[QUOTE=angelofeventide;5387071]Sorry in advance for this being long. Ugh, not even sure where to begin. I am 49 years old. I had my first bout of Papilledema and Pseudotumor Cerebre (brain and eye issues) at 19. I was put on Diamox to decrease intracranial hypertension. I went on to have two more instances of it. During the first bout of it I was also diagnosed with Meniere's and have had Tinnitus non-stop for over 15 years. At 25 I suddenly came down with severe anxiety disorder out of nowhere, I had it for about two years, went off meds and into therapy and then had two good years.

At the age of 30 my life fell apart. Fine one minute and the next every system in my body started to fail. Long story short, over a period of the last 19 years I have been diagnosed with Lyme, Lyme co-infections, Epstein-Barr, Cytomegalovrius, HHV-6, mycoplasma Pneumoniae, mold issues, roundworm parasite, Candida, MTHFR, unavailable hidden copper toxicity, adrenal fatigue, POTS, clotting disorder from the Lyme, and so on. Nothing has worked to get me well.

Flash forward to today, at age 49 I am now in Perimenopause, and am having horrible problems. POTS symptoms are worsening, reflux, asthma, pressure in head/brain which worsens when bending over or standing up, like an intracranial hypertension thing, have trouble saying words at times (see the word "dog" for example but it comes out as "green"), adrenaline surges which trigger anxiety, heart palpitations and tachycardia (though heart is fine per cardiologist), have trouble with memory & cognitive things, blurred vision even with glasses, sometimes objects I look at look like water is running down them or are vibrating, internal tremors, non-stop dizziness with bouts of vertigo, which is so bad that I can no long drive or go out alone, heat makes everything worse, headaches at times, allergies which are not helped by strict diet, ears always feel full or like they have pressure in them, fatigue so bad that I feel drugged, even my eyes are constantly at half mast (I look and feel stoned), hair falling out (thyroid tests all normal), 5 messed up neurotransmitters. I saw an ENT and his half assed response is that I have allergies and my Meneiere's is causing the dizziness and vertigo. He gave me nothing to help.

I have been researching the work of Dr. Frederick Carrick and Dr. Datis Kharrazian who talk about a connection between the brain, the gut and the vagus nerve and when the brain gets damaged, inflamed, has intracranial hypertensions, etc. it causes the vagus nerve issues, which cause all of the other issues. Inner ear disorders can also affect the brain which then goes on to affect the vagus nerve, stomach and other stuff. Does anyone else have this and if so what has helped? I am thinking of seeing a chiropractic neurologist, who is a specialist in this condition, but it is very expensive and not covered by insurance. Only a handful of people do this in my state. Thanks.[/QUOTE]
[QUOTE=angelofeventide;5387071]Sorry in advance for this being long. Ugh, not even sure where to begin. I am 49 years old. I had my first bout of Papilledema and Pseudotumor Cerebre (brain and eye issues) at 19. I was put on Diamox to decrease intracranial hypertension. I went on to have two more instances of it. During the first bout of it I was also diagnosed with Meniere's and have had Tinnitus non-stop for over 15 years. At 25 I suddenly came down with severe anxiety disorder out of nowhere, I had it for about two years, went off meds and into therapy and then had two good years.

At the age of 30 my life fell apart. Fine one minute and the next every system in my body started to fail. Long story short, over a period of the last 19 years I have been diagnosed with Lyme, Lyme co-infections, Epstein-Barr, Cytomegalovrius, HHV-6, mycoplasma Pneumoniae, mold issues, roundworm parasite, Candida, MTHFR, unavailable hidden copper toxicity, adrenal fatigue, POTS, clotting disorder from the Lyme, and so on. Nothing has worked to get me well.

Flash forward to today, at age 49 I am now in Perimenopause, and am having horrible problems. POTS symptoms are worsening, reflux, asthma, pressure in head/brain which worsens when bending over or standing up, like an intracranial hypertension thing, have trouble saying words at times (see the word "dog" for example but it comes out as "green"), adrenaline surges which trigger anxiety, heart palpitations and tachycardia (though heart is fine per cardiologist), have trouble with memory & cognitive things, blurred vision even with glasses, sometimes objects I look at look like water is running down them or are vibrating, internal tremors, non-stop dizziness with bouts of vertigo, which is so bad that I can no long drive or go out alone, heat makes everything worse, headaches at times, allergies which are not helped by strict diet, ears always feel full or like they have pressure in them, fatigue so bad that I feel drugged, even my eyes are constantly at half mast (I look and feel stoned), hair falling out (thyroid tests all normal), 5 messed up neurotransmitters. I saw an ENT and his half assed response is that I have allergies and my Meneiere's is causing the dizziness and vertigo. He gave me nothing to help.

I have been researching the work of Dr. Frederick Carrick and Dr. Datis Kharrazian who talk about a connection between the brain, the gut and the vagus nerve and when the brain gets damaged, inflamed, has intracranial hypertensions, etc. it causes the vagus nerve issues, which cause all of the other issues. Inner ear disorders can also affect the brain which then goes on to affect the vagus nerve, stomach and other stuff. Does anyone else have this and if so what has helped? I am thinking of seeing a chiropractic neurologist, who is a specialist in this condition, but it is very expensive and not covered by insurance. Only a handful of people do this in my state. Thanks.[/QUOTE]

Did you ever receive any help?
[quote=angelofeventide;5387071]sorry in advance for this being long. Ugh, not even sure where to begin. I am 49 years old. I had my first bout of papilledema and pseudotumor cerebre (brain and eye issues) at 19. I was put on diamox to decrease intracranial hypertension. I went on to have two more instances of it. During the first bout of it i was also diagnosed with meniere's and have had tinnitus non-stop for over 15 years. At 25 i suddenly came down with severe anxiety disorder out of nowhere, i had it for about two years, went off meds and into therapy and then had two good years.

At the age of 30 my life fell apart. Fine one minute and the next every system in my body started to fail. Long story short, over a period of the last 19 years i have been diagnosed with lyme, lyme co-infections, epstein-barr, cytomegalovrius, hhv-6, mycoplasma pneumoniae, mold issues, roundworm parasite, candida, mthfr, unavailable hidden copper toxicity, adrenal fatigue, pots, clotting disorder from the lyme, and so on. Nothing has worked to get me well.

Flash forward to today, at age 49 i am now in perimenopause, and am having horrible problems. Pots symptoms are worsening, reflux, asthma, pressure in head/brain which worsens when bending over or standing up, like an intracranial hypertension thing, have trouble saying words at times (see the word "dog" for example but it comes out as "green"), adrenaline surges which trigger anxiety, heart palpitations and tachycardia (though heart is fine per cardiologist), have trouble with memory & cognitive things, blurred vision even with glasses, sometimes objects i look at look like water is running down them or are vibrating, internal tremors, non-stop dizziness with bouts of vertigo, which is so bad that i can no long drive or go out alone, heat makes everything worse, headaches at times, allergies which are not helped by strict diet, ears always feel full or like they have pressure in them, fatigue so bad that i feel drugged, even my eyes are constantly at half mast (i look and feel stoned), hair falling out (thyroid tests all normal), 5 messed up neurotransmitters. I saw an ent and his half assed response is that i have allergies and my meneiere's is causing the dizziness and vertigo. He gave me nothing to help.

I have been researching the work of dr. Frederick carrick and dr. Datis kharrazian who talk about a connection between the brain, the gut and the vagus nerve and when the brain gets damaged, inflamed, has intracranial hypertensions, etc. It causes the vagus nerve issues, which cause all of the other issues. Inner ear disorders can also affect the brain which then goes on to affect the vagus nerve, stomach and other stuff. Does anyone else have this and if so what has helped? I am thinking of seeing a chiropractic neurologist, who is a specialist in this condition, but it is very expensive and not covered by insurance. Only a handful of people do this in my state. Thanks.[/quote]
just curios do you wear glasses





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