It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Brain & Nervous System Disorders Message Board


Brain & Nervous System Disorders Board Index


I would like to thank everyone who responded to my posting. I have been off work since march 3rd. Still having a nonstop migraine. It has eased a bit unless i bend over , sneeze, cough. or try to have a bowel movement. I am taking laxitives every other day to try and ease the pain from the bowel movement problem. It works, however I feel it's dangerous. A lot has happened since i posted. I have been to a neurosurgeon , my GP, and a neurologist/headache specialist. The neurosurgeon would'nt give me the time of day. My GP sent me there to get a good opinion on the mri I had done. The neuro thought I was there exploring an option for surgery. Again he said the pineal cyst is nothing to worry about. Next step was the neurologist. I have been on lots of medicine for inflamation, and seizures. The neurologist finally put me on in home IV therapy with a concoction he called his atomic mixture. It was raglan, DHE, and solu medrol. Very harsh medicine. I was so sick I dehydrated. Finally they brought a bag of saline and I recovered slowly from that experience. He only ordered the saline after I called his office and told them I had my bag packed and wanted him to admit me to the hospital. Normally, that is the last place I would want to go. Last week the neurologist said he really thinks the headache is from menopausel symptoms. I am 46. He put me on Depakote ER, one at night the first week and then two at night. I have not noticed much improvement yet but he said it may take two weeks before I do. I am also suffering most of the time without pain meds as the neurologist advised this may be feeding the migraine. All the doctors have told me that when this first started the meds I took caused the migraine to set in and I would have to wait until it goes away. I was taking Advil and then tried Excedrin migraine, plus I waited a week and a half before going to a doctor. I did'nt know. I never had a migraine before. Just thought it would go away. Also I forgot to mention, the neurosurgeon I seen thought the cyst was on the pineal gland and not in it. He also said the cavity around the gland was larger than most and was holding more spinal fluid than most, but again, it was still considered normal and not to worry. He also said the tremors I was having in my arms and head was just my body's reaction to pain. I guess this is true since I only have them when the pain's severe. I can remember when I was very young and my sister and I along with the neighbor kids used to play doctor. We would argue over who had to be the patient since everyone wanted to be the doctor or the nurse. I feel like I am playing all three now and I don't like it a bit!!!
Thanks again and I will keep you all posted. My prayers are with you.
redky
:angel: HELLO TO ALL THAT HAVE A PINEAL CYST/TUMOR. I DISCOVERED MY IN APRIL OF 2004. I HAVE BEEN BLESSED TO FIND OUT ALOT. FIRST OF ALL,
ALL DOCTORS ARE TAUGHT IN SCHOOL THAT THE PINEAL GLAND IS USELESS. THIS IS NOT TRUE IT CONTROLS YOUR MELATONIN THAT SENDS BODY PARTS MESSAGES FROM THE BRAIN TO FUNCTION. IF THIS GETS AFFECTED THEN CERTAIN PARTS DON'T WORK RIGHT AND TESTING THAT BODY PART WON'T SHOW THIS. ALSO IT IS RESPONSIBLE FOR YOUR FUNCTION OF YOUR KIDNEYS. IF YOU HAVE A BIG ENOUGH CYST/TUMOR THEN IT WILL EFFECT YOUR BODY. LIKE I KEPT GETTING LOW, VERY LOW HEART RATES AND I NEED OXGEN BUT SHOWED I WAS FINE EXCEPT LOW HEART RATES, IT STABLED MY HEART RATE!!!

I ALSO WAS TOLD THAT A NEUROLGIST IS NOT PUTTING HIS LISCENSE ON LINE MEANING HE NOT GOING TO OPERATE ON YOU JUST TREAT SYSTOMS NOT HELP TOO MUCH IF ALL POSSIBLE TRY TO GO TO A NEUOR-SURGEON. I HAVE FOUND SOME RESEARCH THAT HELP EXPLAINS ALOT OF THE SAME PROBLEMS YOU ALL HAVE. SOME OF THIS DOESN'T PERTAIN TO US BUT VERY GOOD INFORMATION WWW.flurideaction.org/pesticides/pineal.2003.abstracts.htm THIS IS INFORMATION COLLECTED ALL AROUND THE WORLD. I ALSO HAD THE SAME PROBLEM WITH DR. NOT BELIEVING ME. I STUDY SOME INFORMATION FROM A BOOK CALLED "WHAT YOUR DOCTOR DOESN'T KNOW ABOUT NUTRITIONAL MEDICINE MAY BE KILLING YOU" BY DR. RAY STRAN. THIS HELP ME FIGURE OUT THAT I HAD A AUTOIMMUNED DISORDER AND LEAKY GUT SYDROME. MOST DOCTORS DON'T BELIEVE IN IT. I CONTINUED TO EDUCATE MYSELF AND FOUND DR. AND CLINICS THAT HELP OUR CONDITION. I WENT TO DR. KALIDAS 407-355-9246 WHO IS A WORLD FAMOUS DR. WITH MD AND NATURE DOCTOR DEGREE AND I HAVE KNOWN HIM MANY YEARS. DR. K HELPED SHOW ME HOW THIS IS CONNECTED TO OTHER DISORDERS I HAVE BEEN TOLD I HAVE AND WHY THE THINGS ARE GOING ON THAT ARE GOING ON WITH MY BODY AND WHY I GET DIZZY AND ALL THE OTHER STUFF THAT COMES WITH THIS PINEAL CYST/TUMOR AND I HAVE THE WEBSITE TO A CLINIC THAT DOES SURGERY. I HAVE REFUSED HOSPITAL STAYS AND A SHUNT BECAUSE MY BRAIN SWELLLS AND MY HEAD IS SORE ON ONE SIDE AND ALL THAT GOOD STUFF. I HAVE BEEN GIVEN A TREATMENT THAT HELPS CYSTS/TUMORS CALLED A TRANSDERMAL. IT HAS DONE WANDERS FOR ME!!!!!!! I WILL SEE SOON IF MY HAS SHRINK OR NOT. THIS TREATMENT HAS HELPED MANY CONDITION. I AM DOING RESEARCH AND TRYING TO COME UP SOMETHING TO HELP PEOPLE WHO ARE IN OUR SITUATION. I KNOW HOW UPSETTING IT IS WHEN NO ONE WILL LISTEN TO YOU OR TELLS YOU THAT IT IS NOT CONNECTED TO YOUR PINEAL . YES, IT IS AND THERE IS RESEARCH PROVING IT. IF YOU DON'T GET HELP DON'T GIVE UP!!! AS YOU SEE YOU ARE NOT THE ONLY ONE THAT GOES THUR WHAT YOU GO THUR. I HAVE MY DAYS BUT I AM WANTING TO SHARE MY INFORMATION WITH YOU. i HOPE THIS HAS GAVE MANY OF YOU HOPE. I KNOW IT CAN GET VERY UPSETTING ALWAYS BEING TOLD THE THINGS THAT YOU ARE. REMEMBER DOCTORS ARE PEOPLE AND DO NOT KNOW EVERYTHING THEY LEARN ABOUT NEW STUFF TO. ITS IF THEY ARE WILLING TO LEARN AND NOT ACT AS THOUGH THEY ARE GOD!! I WILL CONTINUE TO DO MY RESEARCH AND GO ON AND HOPEFULLY WE CAN START LETTING DR. KNOW THAT THE PINEAL DOES SERVE A PURPOSE CAUSE GOD DOESN'T PUT ANYTHING IN YOUR BODY THAT DOESN'T HAVE A PURPOSE!!!!!!!!! OH, GLUTATHIONE IS IN MY TREATMENT YOU CAN GO TO GLUTATHIONE.COM ALOT OF DR. MAY NOT HAVE HEARD OF IT. IT IS IN THIER PHYS. REFFENCE BOOK, SO IT IS COVERED UNDER INSURANCES!!! JUST TRY TO GO TO A DR. WHO IS EDUCATED IN THIS. DR. KALIDAS DOES PHONE CONSULTS AND DOES KNOW THE USUAGE OF THIS WANDERFUL ALL NATURAL PRODUCT. SEE YOUR BODY MAKES GLUTATHIONE AND IT IS USED TO HELP WITH MANY CONDITIONS!!! JUST HANG IN THERE I KNOW IT GETS HARD.
GOOD LUCK AND GOD BLESS, :angel:
KIM
In the past 9 mo or so, I have had really bad migraines and headaches, as well as temp lobe seizures and have gained a lot of weight. On an MRI, they found an "incidental" 9mm pineal cyst. Like so many of you, I have serious concern that the headaches/migraines and seizures are more than coincidental with the cyst. (I wonder about the weight, but can't really point to much evidence that might link it with a pineal cyst.)

I would like to find a neurologist/neurosurgeon or two who might at least be open to the possibility that the cyst is not just incidental to do an evaluation. If nothing else, it seems logical that the cyst would press on adjacent structures and/or fill up part of the venticle, squeezing the CSF and putting increased pressure on surrounding tissue.

I would also like to know what options there may be for treatment. I know about the surgery and drainage possibilities if there is a blocking of the CSF and consequent hyrocephalus, but I wonder if people are aware of other options.

From the research I have done, I wonder if part of why the docs so often consider the cysts incidental to these sx (as well as visual changes and nausea) is that the pineal gland is pretty deeply imbedded in the brain and is adjacent to structures critical to sight, movement, etc. If it is difficult to access the cysts without significant danger of permanent damage to these functions or death from the surgery to drain the cyst, there might be little opportunity to do the surgery and see if it relieves some of the sx.

Many thanks for any thoughts folks may have and good wishes to the rest of you struggling with this!
[QUOTE=redky;881311]A Few Days Ago I Was Diagnosed With Pineal Cyst. I Have Had A Severe Headache For 19 Days. I Had Severe Nauesa For A Week And A Half Until I Recieved Suppositories From My Dr. In The Last Several Days I Have Developed Motor Function Problems With My Arms And Head. Not Real Bad But Noticeable. I Have An Appointment With A Neurologist Tues March 2. Any Info Anyone Can Give Me On What To Expect Will Be Appreciated. I Have Read A Little About This And Come To The Conclusion That It's Not Taken Very Seriously. I Am Not A Person Who I Sick Very Often And Right Now I Am Really Sick. Please Help Me If You Can. I Am Very Scared And My Family Is A Mess Over This Whole Thing.
Thanks !
Redky[/QUOTE]

How are you now?

I am located in Evansville, Indiana. I am a somewhat healthy (I have had migraines and scoliosis for years), 35 year old female, teacher and mother of two.

I recently demanded an MRI due to a constant headache in the back, left side of my head, lack of sleep, forgetfulness and a weird sensation in my head that I canít explain. I have had sleep problems for years and have been on numerous medications for lack of sleep and seasonal depression.

According to my MRI, I have a 1cm pineal / arachnoid cyst in my pineal gland. I have read the research. My family doctor and neurologist say that it is no big deal. My neurologist said I need injections in my head and I need to go to a sleep study. She says that this will make my migraines and the rest ďhead throbbingĒ go away.

Iím trying to get into a specialist in Louisville, KY (John Joseph Guarnaschelli).

Due to what Iíve recently read, Iím a bit concerned. I realize that I was born with cyst, but I more recently have had symptoms. My doctors say that my problems are not related to the cyst. I would like to believe this!!! How do they know that they are not?

There are not many postings on an arachnoid cyst in the pineal gland. They say it is benign, but how do they know without a biopsy? I havenít read success stories for those who have had treatment or those who have waited. Are there any success stories? Iíve also read that after having one surgery, that the surgeries will continue.

Please help!!!!
[QUOTE=jjricha;2939332]How are you now?

I am located in Evansville, Indiana. I am a somewhat healthy (I have had migraines and scoliosis for years), 35 year old female, teacher and mother of two.

I recently demanded an MRI due to a constant headache in the back, left side of my head, lack of sleep, forgetfulness and a weird sensation in my head that I canít explain. I have had sleep problems for years and have been on numerous medications for lack of sleep and seasonal depression.

According to my MRI, I have a 1cm pineal / arachnoid cyst in my pineal gland. I have read the research. My family doctor and neurologist say that it is no big deal. My neurologist said I need injections in my head and I need to go to a sleep study. She says that this will make my migraines and the rest ďhead throbbingĒ go away.

Iím trying to get into a specialist in Louisville, KY (John Joseph Guarnaschelli).

Due to what Iíve recently read, Iím a bit concerned. I realize that I was born with cyst, but I more recently have had symptoms. My doctors say that my problems are not related to the cyst. I would like to believe this!!! How do they know that they are not?

There are not many postings on an arachnoid cyst in the pineal gland. They say it is benign, but how do they know without a biopsy? I havenít read success stories for those who have had treatment or those who have waited. Are there any success stories? Iíve also read that after having one surgery, that the surgeries will continue.

Please help!!!![/QUOTE]
[/B]

I am wondering the same thing - I to have a 1.4 cm pineal cyst and alot of symptoms - after careful research, I have come to the conclusion that many people with the Pineal Cyst have the same symptoms I have - I too was going to a neurologist who blew me off as saying my symptoms are not due to my cyst/tumor - but after reading that all neurologists say the same thing - you are fine, no fluid flow is interupted due to your cyst so you don't have any problems from the cyst itself - I am now going to a Neurosurgeon at UCLA on the 21st of Sept. '07 - I will be speaking to him in depth of my issues and am going to get some serious answers - would be happy to relay anything that I find out if you are interested!! Good luck to you and me both as it is an awful awful feeling to feel this way all the time!!
HI!! I had a pineal gland cyst ( about 3cm) , I also live in Indiana and Dr. Gaurnaschelli was the first Doctor that I went to. I ended up having surgery to remove it March of this year, and its been a very long recovery. However I feel great and have not had any symptoms since my surgery!! I ended up have my surgery done in New York @ nyu . My cyst had done damage to my brain stem which was causing reflex problems and the gland had to also be removed. Most doctors don't want to do this surgery because of the risks, however sometimes these cysts do need to be removed. I have a lot of info. on these cysts if anyone needs it. Brittany
julainem
I have had surgery to remove a pineal gland cyst. So feel free to ask any questions.





All times are GMT -7. The time now is 07:45 PM.





© 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!