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Brain & Nervous System Disorders Message Board


Brain & Nervous System Disorders Board Index


I am so sorry that this accident happened to your young daughter.

Do you have health insurance where she can have a PET scan which shows the brain much better, any problems done to the optic nerve, and intricate blood vessels? They probably ruled out subdural hematoma, etc.

It takes a long time for trauma to heal. Has she seen an orthopedic physician for her hip?

I am concerned that she is using Motrin for pain. That in itself can cause stomach/intestine problems for young individuals (internal bleeding).

Does she have cervical inflammation? That can generate the migraines. As long as she has cervical inflammation, she will have the migraines. Does she have a neurologist? If not, it is time for her to see one right away and to have continued monitoring until she is much, much improved. Hopefully, you'll find one that is very sensitive to your daughter's needs.

Have you had her eyes checked by an ophthalmologist? Keep watch on those especially if she has any blurred vision. What I've learned, I would have her eyes checked every six months for the next three years at least. Have her inform you of any visual problems such as "flashing spots", "blurred vision" that does not resolve after a migraine, and when reading--"trying to see around a spot" that does not resolve after a migraine, any floaters that appear (dark little spots in her eyes--especially if they form a web pattern---hopefully before this happens she'll have had the exam). Anytime you have a head injury, always inform your eye doctor. The medical community is aware that trauma can affect the eyes. Particularly when it is frontal or directly to the eye. However, they don't seem to correlate any back of head or neck trauma as the cause of eye problems that might occur a year or so later. There are incidences where patients have had trauma, whiplash, and end up later with eye problems.

I don't know if a neurologist will prescribe these medications for a 14 year old. You might read about these drugs but I've heard for spinal and joint pain that BEXTRA is a good reliever. It is very expensive though. A combination of Celebrex with Soma (muscle relaxer) will help with severe inflammation caused by a traumatic accident.
Zanaflex is a good muscle relaxer and can also help with migraines. Zomig can abort those painful migraines and allows the patient to continue functioning without drowsiness. A combination of Zomig and Amerge (non-drowsy too) is also good. The neurologist may prescribe taking a Zomig at the first onset of the migraine, followed 2 hours later by an Amerge tablet. Very effective. For nausea and vomiting, the first step is taking a phenergan (suppository: necessary to be able to take the oral medications for migraines and/or hip pain).

I think you need a sensitive medical team of a neurologist to treat her head/spine/migraines and pain, orthopedic physician to treat her hip, ophthalmologist to monitor her eyes, and physical therapist. There are doctors who are sensitive to their patient's needs and I hope she gets the care she deserves. This kind of trauma takes time to heal. She may be contused to the bone in some areas.
Hi hon! I think I can help you here! I have the same problem from falling from a horse and I'll tell you, untreated, it only gets worse! I went through chiropractic and a massage technique called structural integration...it hurts like crazy, but it was the first time I didn't hurt.

Now, for her symptoms, completely normal for what she's going through, this doc's just an idiot. It's called: pelvic unleveling; malpositioned pelvis; malrotated pelvis, etc. also, is her sacrum tender? The spot right above her butt crack (sorry, don't know the technical term) but it is tremedously painful. It's listed under: sacroiliac joint dysfunction; sacrum pain; sacrum ligament dysfunction; and a few others. She may also have pains on the pubic mound....I found out when I was pregnant that it's not one piece! Mine seprated! It causes pain that can shoot down the crotch area, the thighs, and even radiate into the tummy area, where about the ovaries are. It's listed under: pubic symphesis dysfunction; pubic sympheseal separation, etc.

Look all these up and you'll find all her problems are related to the problems in her hips. You'll also notice that people in car accidents that suffer any kind of pelvic trauma are more at risk than most for head trauma and lasting neurological defecits! It's awful and worse when no one will listen to you or help you. I know from experience. My brain injury went undiagnosed for ten years and I've subsequently developed narcolepsy as well.

Please take your daughter to a pediatric hospital that specializes in trauma cases. They'll likely be the most familiar with this.

I will look back over the sights I have bookmarked on my computer and e-mail the mods to see which ones I can give you. They have great advice and will give you a full description of what she's going through. I know this is scary, but hang in there. The vertigo is normal this long, but is indicative of a problem that could be long term or life long. But, once you get a diagnosis, you can go from there. You also have time on your side. Brain injuries and other neuro probs can make great strides in the first year and upto the second. After that, upto the ten year mark, there will be slight improvements, although not as large or noticeable as the first two years.

I still suffer from problems, but again, it's 11 years now, post-injury. Are you suing for the damage done to your daughter? If you are, don't accept a settlement unless it also covers any life long care that she could need, related to this. Also, request a neuropsychological evaluation. It will tell you where she has any deficits neurologically and they will document it and start a treatment program for her. This is extremely expensive, but well worth it.

What is the status of your situation right now? Are her bills being covered? If so and you're still getting nowhere with the docs, ask for a patient advocate, most hospitals have them but won't tell you because they cost them money and get you more services. They act as a go between with you and the doctors and make sure they are listening to you and getting your daughter what she needs.

Again, I'll check back often and post those sights ASAP. Good luck and take care of yourself and your daughter and we'll be talking soon.
I hate to be right, but yes her leg will stay that way unless you do some intense massage therapy with it. The problem with the bone is that when it's adjusted back into place, the muscle has also been damaged and is reconnected to the muscle in the current state, injured and misaligned. So, the muscle fights against the adjustment and sends it right back.

I had the same situation and started structural integration. It's similar to rolfing and it's painful. It's only painful while it's being done and leaves no residual pain. After about the fourth session, I could walk with hardly no pain. It was the first time in over 7 years. Then, I got pregnant with my second and everything else went right back out. It also didn't help that I slipped on the ice and knocked it right back out after paying $50 for an adjustment an hour before!

I also have problems in my neck on the same side that my hip hurts the worst. I took the injury on the right, but the left side is where I hurt the worst. But I had a totally different situation than your daughter. I was also a teen when it happened and being in a non-supportive home only made matters worse. She's lucky that she has a mom who cares so much.

Do you have a chance to go to a children's hospital? Can you take the x-rays from the chiro to the neuro so he can see the difference in the x-rays from the ER to the chiro...and maybe he'll understand that laying down isn't always the best way to x-ray someone with pelvic injuries. They should try doing one each way....but that's just me.

Have you looked up any of the neuro probs associated with pelvic injuries? Look up, neurological seguelae of pelvic injuries, pelvic injury sequelae....basically, stick sequelae in most searches because what it will do is list any of the other problems that are commonly and not-so-commonly associated with a certain condition.

Does your chiro have a massage therapist in his office or could he refer you to one? If she does see one, be in the room with her, no exceptions! I was sexually assaulted by one and although it's not likely to happen to her, better safe than sorry, like I was. Also, check the credentials and see if they'll give you references for any pediatric accident cases they've worked on. If you trust your chiro, I'd go with his recommendation. You can also look up any problems they may have had with the division of occupational and professional licensing. It will tell of any negative reports, status of their license, etc. The guy who assaulted me had his license permanently revoked w/ no chance of getting it back. So, if you see some red flags, run.

I hope this helps. You can also try hydro therapy with her. It is a lot easier on injured bodies....I know it's much easier for me and I have a better range of motion. You may be able to get the insurance to pay for all of this. You have a really good chance at a law suit. I don't like to encourage this because we all know how many people make a mountain out of a mole hill just for money, but she will need it.

She may have lifelong problems from this and need some sort of medical management for the long haul and that gets expensive. If you settle for a lump sum, make sure it also includes a provision for any expenses incurred through out her life or a determined amount of time on top of the intitial settlement.

I don't remember if I asked or you said, but do you have a lawyer? What is the status of her medical bills? Who is covering them right now? If you are, ask for a hard-ship form from the hospital....they don't offer these, you have to ask. This will allow you to recieve the benefit of a reduction in expenses or possibly a complete right off of the debt, depending on your situation. Also, check into the places you are going to see if they're considered non-profit. Many of them have to right off a certain amount of debt to keep this status.

Is she having some other consequences from all of this? Is she having emotional problems or fears from the trauma?

Well, good luck to you. I'm starting to ramble and have no idea if I made any sense. I'll have to look over it later and edit.....ah, the joys of brain damage! LOL
Sherry, I'm sorry about what's going on. I guess this is the upside of my problems, I've already been where you are right now and can help you through it a bit more than most who haven't been there. As far as the docs being put off by your knowledge, a huge, resounding, YES!! They either assume you're trying to outwit them or are researching things to make them up for whatever reason.

I want you to get a journal and document everything you're telling us. Also, you can double document it here on the board in case you need references to date and time. They can't dispute the times and dates on here because you have no relation to the moderators or anyone who could fib it.

I found an awesome head injury site and I'll see if I can post the web site. It gave me the most detailed information that I've ever seen! It had charts on aggression, emotional lability and several other self-check items. It helps you corralate what is irking you and triggering the over reaction and learn ways around them. The good news is that many of these things happen while we're adjusting to the injury and once the brain is healed, we'll be fine....the problem is for people like me who didn't get any help for over ten years is that the behaviors that developed to help you cope, stay in tact after they are no longer needed....many times because you have no idea that you are doing certain things.

As far as her weaknesses be overamplified....welcome to brain injury. They said that many traits that one possesses may be amplified substantially after an injury. Sometimes these are permanent. But you can both learn ways to cope and heal through them. I applaud you for taking time outs rather than blowing up on her.

One thing I can tell you is that if she has an above average intelligence level, she's going to have a harder time with this. I have or had an IQ over 130....apparently it's good, not sure of the number though...doesn't much matter....but they said that over a certain level, you have troubles adjusting because you know you're different from where you were. For example, I used to be able to read page after page of small text, no pics, and comprehend all of it. Now, if it's over a certain length, forget it.

I have to start over several times and it takes me so much longer to do things now. I also have a hard time with organization skills.....the biggest problem is I don't have ANY!! LOL There are some things you can do that will help her though...keep a fairly strict schedule, wherever possible....keep things in the same place and for those things that are smaller, organize them in a basket or something and show her where it all is and label them.

We don't like to admit that we can't remember that the toilet paper is under the sink. So, label it somewhere that she'll know to look or provide a list and location of items for her. This seems silly, but I can't tell you how many times I broke into tears over not being able to find something that I new had been in a certain place for years. It's so frustrating, embarassing, disheartening, etc. You name it....it's hard.

I have times when I can't even figure out how the stinking shower turns on! I will stand there naked trying to figure it out and I can picture this filing cabinet in the back of my head and I'm yanking on the drawer that says, "Shower Instructions" yet can't get it open....so after a few minutes, I realise that it's fruitless and go back to it when it kicks in.

Also, have little notepads or sticky pads around the house for her to write things down when they come into her head. That is by far one of my most frustrating problems! I think of something and then with in a few seconds, it's gone...and worst of all, you remember enough to know that you forgot something! So, now, I have a drawer that contains all my notes and I go through when I have the brain power to organize them and put them on the computer and then after that, I have to go through the now ledgible notes and re-type them into subjects.

I also get overloaded when there's too much sound or stress going on and it's likely to trigger me! I will either start screaming or bawling because I can't handle it and all the words are swirling around in my noggin and I can't understand what is being said. Loud noises also make me want to shut down. I have narcolepsy on top of it all and one of my cataplexy triggers is fear....and w/ the combo of brain injury and narcolepsy, I startle easily and it makes my legs give way.

I had to shut off the stupid volume to my speakers on the computer because that stupid MSN lady talks to me when I open my e-mail. I know she's coming, but every time, she scares me and I've fallen out of the chair more than once! Then, hubby got a small surround sound system for x-mas and compounded it...now I get scared in surround! Stinks! LOL
Hi SherryLou....long time, no 'see'. I'm glad to see that something is working. I have some great info for you and would love to share it. I have been doing a lot of work on my own to figure out a way around this danged brain injury junk and it's not easy. But, we can do just about anything once we figure out a way around it.

I, for one, have to print off everything, highlight the words and then write down the reason why I high-lighted it so I don't forget. It stinks! But, I'm learning to adjust.

I'm beyond tired right now, so I'm not going to be able to write it all down, but will be back to chat with ya. I don't know if your daughter has wanted to chat, I've not been on the computer in over a month....just too tired. Please do me a favor and post any questions that you have or any issues that are still in the forefront that have yet to resolve and I'll do my best to help ya out.

God bless and take care of yourselves. Micaela.....Angel





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