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Brain & Nervous System Disorders Message Board

Brain & Nervous System Disorders Board Index

Hi hon! I think I can help you here! I have the same problem from falling from a horse and I'll tell you, untreated, it only gets worse! I went through chiropractic and a massage technique called structural hurts like crazy, but it was the first time I didn't hurt.

Now, for her symptoms, completely normal for what she's going through, this doc's just an idiot. It's called: pelvic unleveling; malpositioned pelvis; malrotated pelvis, etc. also, is her sacrum tender? The spot right above her butt crack (sorry, don't know the technical term) but it is tremedously painful. It's listed under: sacroiliac joint dysfunction; sacrum pain; sacrum ligament dysfunction; and a few others. She may also have pains on the pubic mound....I found out when I was pregnant that it's not one piece! Mine seprated! It causes pain that can shoot down the crotch area, the thighs, and even radiate into the tummy area, where about the ovaries are. It's listed under: pubic symphesis dysfunction; pubic sympheseal separation, etc.

Look all these up and you'll find all her problems are related to the problems in her hips. You'll also notice that people in car accidents that suffer any kind of pelvic trauma are more at risk than most for head trauma and lasting neurological defecits! It's awful and worse when no one will listen to you or help you. I know from experience. My brain injury went undiagnosed for ten years and I've subsequently developed narcolepsy as well.

Please take your daughter to a pediatric hospital that specializes in trauma cases. They'll likely be the most familiar with this.

I will look back over the sights I have bookmarked on my computer and e-mail the mods to see which ones I can give you. They have great advice and will give you a full description of what she's going through. I know this is scary, but hang in there. The vertigo is normal this long, but is indicative of a problem that could be long term or life long. But, once you get a diagnosis, you can go from there. You also have time on your side. Brain injuries and other neuro probs can make great strides in the first year and upto the second. After that, upto the ten year mark, there will be slight improvements, although not as large or noticeable as the first two years.

I still suffer from problems, but again, it's 11 years now, post-injury. Are you suing for the damage done to your daughter? If you are, don't accept a settlement unless it also covers any life long care that she could need, related to this. Also, request a neuropsychological evaluation. It will tell you where she has any deficits neurologically and they will document it and start a treatment program for her. This is extremely expensive, but well worth it.

What is the status of your situation right now? Are her bills being covered? If so and you're still getting nowhere with the docs, ask for a patient advocate, most hospitals have them but won't tell you because they cost them money and get you more services. They act as a go between with you and the doctors and make sure they are listening to you and getting your daughter what she needs.

Again, I'll check back often and post those sights ASAP. Good luck and take care of yourself and your daughter and we'll be talking soon.

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