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Brain & Nervous System Disorders Message Board

Brain & Nervous System Disorders Board Index

Where do I even begin. I have just been diagnosed with a central nervous system disease...which one is yet to be determined. I would be grateful for any feedback on what I am experiencing...

Whatever it is, it's chronic and progressive. I was in a pretty bad car accident in Nov of 01'. 11K in damage to the car and a 3 day stay in the Trauma unit at UCDavis...6 weeks pregnant. I have 4 herniated discs in my neck. I honestly thought I was going to die, I firmly believe I have some sort of PTSD because of it. I cant get in a vehicle with out my hands and feet instantly breaking out into a sweat, my heart races and I feel dizzy. I have a fight for life anxiety about other people driving, I would rather stay home, its awful. I was taken out of work at 28 weeks PG due to pre-term labor. (He was born a week early, he is perfect!.)

As time has gone by things have gotten really bad, it started about . My symptoms don't seem to be isolated to one part of my body, I almost feel like there is something wrong with everything. If that makes sense. This is what I live with on a daily basis...

Sharp stabbing pains in feet, numbness in fingers and toes, random loss of circulation to hands (mostly left) that results in "claw hand" for about 30 seconds. random muscle twitches that rapidly jump from one place to another , rolling spasms, hand shaking that lasts 60min+, instant rapid heart beat that stops just as fast, LOTS of dizziness, lightheaded. two or three fingers or toes go numb suddenly (right now as I type its two numb toes!), upset stomach poor digestion (lightly put) poor appetite. Anemia. slurred speech, short term memory loss, numbness when uneven pressure is put on my feet. sharp, quick stabbing pain in head (lasts only seconds), extremely hypersensitive noise, touch, light. random adrenaline surges. Cant stand up for more than 5-10 min without leaning on something. Well that about sums it up.

The Neurologist ran 16 blood tests, gave me a EKG which came back abnormal, and did a few tests in the office which I failed miserably. He discovered that my blood pressure drops when I stand up. Not good. Also, he pinched my Achilles tendon pretty dang hard, and I didn't even flinch, apparently I should have felt significant pain...nothing's. He said it could be Dysautonomia Neuropathy, but from what I read its genetic and I should have shown symptoms sooner that 24 years old (26 now). What the heck is wrong, with my brain!

If your still reading, thanks. It took me a long time to admit this is real, and ask for help.

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